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Transcript and more information: https://bit.ly/AIBD211   Flare-ups in chronic illness can reopen feelings of grief. Clinical psychologist Dr Antonia Repollet shares her journey with Crohn's disease and how it informs the way she helps patients navigate the emotional challenges of long-term health conditions. Learn ways to maintain your identity despite symptoms, how to come back from comments like "you don't look sick," and how a GI psychologist can be an ally in managing life with a relapsing-remitting condition.   Key chapters and timestamps: [00:00] - Introduction: Meet Dr Antonia Repollet, GI psychologist [02:18] - Navigating Crohn's, bullying, and school without accommodations [05:28] - Bridging mind, body, and lived experience to land in GI psychology [07:25] - When and why Dr Repollet discloses her health journey to patients [11:19] - The 7 Stages of Chronic Illness Grief and why the cycles aren't setbacks [14:46] – Coping with invisible illness stigma and responding to "you don't look sick" [19:31] - Reclaiming identity and purpose outside of managing a chronic illness [21:23] - Rejecting the dichotomy of toxic positivity and worst-case scenarios [25:48] – How evidence-based tools such as CBT, gut-directed hypnotherapy, and support groups can help patients cope [29:35] – Closing on how pets, such as cats like Pearl, Bubba Bear, Loki, and Freya, are important allies in managing hard days What you'll learn: Why new anger or sadness during an active flare isn't an emotional setback. How the 7 Stages of Chronic Illness Grief can help process complex issues. Ideas about responding to remarks like "You're too young to be this sick." Steps to reconnect with your values and passions despite managing chronic illness. Why performative wellness sparks burnout and how vulnerability creates true connection. How GI-tailored mental health modalities address the biological gut-brain axis. Resources Steroid Side Effects: https://www.hopkinsvasculitis.org/vasculitis-treatments/prednisone/ Psychological Stages of Chronic Illness/Chronic Pain: https://www.jennifermartinpsych.com/yourcolorlooksgoodblog/2015/4/27/psychological-stages-of-chronic-illnesschronic-pain Grief and Chronic Illness:  Processing the "Old You" — Dr. Antonia Repollet: https://www.gipsychology.com/blog/grief-and-chronic-illness/ Find Antonia Repollet, PsyD at: Instagram: @drantoniarepollet LinkedIn: @antoniarepollet   Find GI Psychology at: Website: https://www.gipsychology.com/ Instagram: @gipsychusa Facebook: @GIPsychology YouTube @gipsychologymindyourgut LinkedIn: @gipsychology Twitter/X: @GIPsychUSA Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer  Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Cystic fibrosis (CF) is thought of as a lung disease, but it affects the entire body. Amber Tresca speaks with Nicholas Kelly, MS, RD—a registered dietitian, public speaker, and cystic fibrosis advocate. His diagnosis is a result of his mother's advocacy and research. Nick describes how he balances wanting to fit in with his determination to stand out, how he navigates chronic illness disclosure in the workplace, and his "triple minority" experience within the CF community. Plus, Nick shares practical nutrition tips to help you rethink your relationship with food.   Chapters: 00:00 – Amber Tresca introduces Nicholas Kelly, RD 01:29 – What is cystic fibrosis (CF)? The GI, pancreas, and full-body impact 02:43 – Dismantling racial misconceptions and the rise of gene therapies 03:48 – Researching symptoms without Google to beat false negatives 05:28 – Choosing excellence over chronic illness limitations 08:16 – Moving from pushing through to body awareness and acceptance 09:09 – Securing attendance flexibility and extended exam time 10:34 – Maintaining health privacy and avoiding workplace bias 11:44 – Advocating as a "triple minority" and bringing passion to clinician-patient communication 14:01 – Rebuilding a realistic relationship with food 17:04 – Meeting unpredictable illness with empathy 18:28 – 3 Energy-saving nutrition hacks for fatigue 20:31 – The nutritional value of sweet peas and the two-rinse low-sodium trick 22:14 – Connecting with Nick Kelly: Website, social channels, and resources 23:18 – Triple-combo CFTR modulator therapies and finding a cure for CF 24:45 – Outro: Episode wrap-up, show notes, and production credits Find Nicholas Kelly, RD at: Web: https://nicholaskellyrd.com/ YouTube: https://www.youtube.com/@nicholaskellyrd Instagram: https://instagram.com/nicholaskellyrd Tik Tok: https://tiktok.com/@nicholaskellyrd LinkedIn: https://www.linkedin.com/in/nicholaskellyrd/ Facebook: https://www.facebook.com/NicholasKellyRD/ Twitter: https://x.com/NicholasKellyRD Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Pediatric GI Nurse Practitioner Morgan Check shares her journey living with Crohn's disease, navigating a diagnosis change, emergency surgery, and motherhood. She uncovers the challenges facing women with IBD, from bone density and fertility to dismissal in clinical settings, and gives actionable tips for effective self-advocacy. Transcript, video, and more at: https://bit.ly/AIBD209 This episode is sponsored by Connecting to Cure. What you'll learn: The challenges faced during the path to motherhood, including fertility issues and pregnancy complications. The impact of IBD on women's health, including fertility, bone density, and sexual health. Strategies for self-advocacy in healthcare settings, particularly for women. The importance of healthcare providers listening to patients and understanding their unique experiences. The role of community support organizations in providing resources and advocacy for patients. The intersection of personal experience and professional practice in healthcare. The significance of mental health and body image in managing IBD. Key chapters: [00:05] Host Amber Tresca introduces guest Morgan Check, a pediatric gastroenterology nurse practitioner who lives with Crohn's disease. [02:03] Morgan recounts her diagnosis with ulcerative colitis at 15. [04:32] Morgan starts Remicade, which led to ten years of remission. [05:38] At 25, Morgan needed emergency J-pouch surgery. [07:58] Morgan was rediagnosed with Crohn's disease. [10:37] Morgan discusses being a nurse practitioner with IBD. [14:06] Morgan shares her path to motherhood. [17:09] Morgan describes experiencing small bowel obstructions. [21:14] Morgan discusses specific health issues for women with IBD. [24:29] Advice for women on how to communicate with healthcare providers. [27:16] Tips for healthcare professionals on how to better listen to their female patients. [29:50] Discussing Connecting to Cure and how it supports patients and families. [34:14] Morgan talks about her son Ezra's "Taco Tuesday" food review videos. [36:20] Morgan shares her social media handle, "Gut Check with Morgan." Find Morgan Check, NP at: Instagram: @GutCheckWithMorgan Facebook: @GutCheckWithMorgan YouTube: @GutCheckWithMorgan Threads: @GutCheckWithMorgan TikTok: @GutCheckWithMorgan LinkedIn: Morgan Check, NP Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer  Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Adam Sikes was diagnosed with ulcerative colitis at 18 and later with stage 1 colon cancer. Along with his son Brandon, Adam shares how his family supported him through decades of illness, surgery, and recovery with a J-pouch. Adam and Brandon highlight how IBD affects families, the importance of screening, and the power of community support through groups such as Connecting to Cure. Transcript and more information available at: https://bit.ly/AIBD208 Chapters: [00:02:12] —  Adam discusses his diagnosis of ulcerative colitis at age 18. [00:04:05] — Adam describes his colon resection surgery after a perforation. [00:06:17] — Brandon shares his childhood memories of his dad's symptoms. [00:08:04] — Brandon recalls learning about his dad's cancer diagnosis. [00:10:50] — Adam explains how a colon cancer diagnosis led to j-pouch surgery. [00:14:15] — Brandon describes the changes in family life after his dad's j-pouch surgery. [00:17:05] — Adam talks about his concern that his sons might inherit IBD. [00:19:12] — Adam and Brandon discuss the importance of getting involved in advocacy. [00:23:56] — Brandon shares how he became involved with Connecting to Cure. [00:27:08] — Adam shares how pouch surgery has given him a new lease on life. [00:28:21] — Brandon outlines how to engage with Connecting to Cure. What you'll learn: The role of family dynamics in managing chronic illness. The involvement of children in patient education and advocacy influenced by a parent's health journey. The importance of early screening and awareness for inflammatory bowel disease (IBD). The challenges of living with a chronic illness and the need for better support and resources. The impact of j-pouch surgery on quality of life and family interactions. How community groups like Connecting to Cure help families cope with IBD. The influence of chronic illness on the aspirations and career choices of family members. The importance of understanding medical conditions and procedures through research and education. Find Adam Sikes at: LinkedIn: https://www.linkedin.com/in/adamsikes Find Brandon Sikes at: Instagram: https://www.instagram.com/brandonsikesss/ LinkedIn: https://www.linkedin.com/in/brandon-sikes-214620348/ This episode sponsored by Connecting to Cure Crohn's and Colitis: Web: https://www.connectingtocure.org Twitter: @connecttocure Instagram: @connectingtocure Facebook: @ConnectingToCure Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer  Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Episode transcript and more information at: https://bit.ly/AIBD207 Alicia Aiello, president of Girls With Guts, shares her journey with IBD, which began in childhood. She discusses major surgeries, including a proctectomy that resulted in an unexpected loss of her fallopian tubes and an ovary, and the early onset of perimenopause. Alicia opens up about navigating rectovaginal fistulas, feeling dismissed, and the importance of knowing when to switch providers. What you'll learn: The impact of inflammatory bowel disease (IBD) on women's health. Why proctectomy surgery might be used, how it affects women, and some potential complications. The challenges of rectovaginal fistulas and their effects on intimacy and mental health. The importance of self-advocacy and seeking second opinions. Some of the gaps in healthcare for women with IBD, especially regarding reproductive health and menopause. The role of community support and organizations such as Girls With Guts. How multidisciplinary approaches are important in managing women's health issues. Some personal coping strategies and hobbies outside of IBD advocacy. Upcoming events and resources for women living with IBD. Key Chapters & Timestamps: [01:12]: Introduction to Alicia Aiello, president of Girls With Guts (GWG). [03:01]: Alicia describes her abrupt diagnosis with ulcerative colitis at age 14. [04:36]: Alicia explains a proctectomy and details her surgical history, including rectovaginal fistulas. [07:26]: Alicia discusses her decision to seek a permanent ostomy. [09:19]: Alicia shares the unexpected outcome of her proctectomy surgery. [13:43]: Alicia talks about the lack of mental health support and reproductive care. [22:40]: Alicia shares the physical and mental toll of fistulas. [25:34]: Alicia offers advice on trusting your gut and advocating for yourself when you feel invalidated or rushed by a provider. [35:42]: Alicia outlines how providers can improve care for their patients. [38:24]: Gaps in care, including isolation and lack of information on aging with IBD. [40:49]: Alicia details the upcoming GWG  annual retreat and highlights the Cedars-Sinai Women's Health Conference. [45:54]: Alicia shares about her hobbies outside of advocacy. Resources: What is a Fistula? — Amber Tresca via Verywell Health: https://www.verywellhealth.com/what-is-a-fistula-1941776 Girls With Guts retreat information and registration — https://girlswithguts.org/calendar/gwg2026/ IBD & Women's Health Conference — https://www.eventbrite.com/e/your-life-your-hormones-your-ibd-womens-health-at-every-stage-tickets-1977517412815 Find Alicia Aiello at: Instagram: @alicia_aiello Facebook: @AliciaMarieAiello Find Girls With Guts at: Instagram: @ibdgirls           Facebook: https://www.facebook.com/IBDgirls TikTok: @ibdgirls LinkedIn: @ibdgirls Web: www.girlswithguts.org           YouTube: @IBDgirls Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer  Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

The truth about inflammatory bowel disease (IBD) is that it goes beyond the gut. In this first ever live recording of About IBD, Amber talks with Dr. Puja Khanna from Cedars-Sinai to explore the extra-intestinal impacts of IBD, from skin conditions and eye inflammation to debilitating fatigue. Learn how sex-specific factors affect women and why building a multi-disciplinary care team is the best strategy for long-term health. Episode transcript and more information at: https://bit.ly/AIBD206 Chapters: (00:01): Amber introduces the first-ever live recording of the "About IBD" podcast, recorded at an event in Los Angeles. (01:31): Amber and guest expert Dr. Puja Khanna are introduced, detailing their backgrounds and expertise in the IBD space. (03:26): Dr. Khanna discusses common extra-intestinal manifestations of IBD, including issues with the eyes, liver, skin, and joints. (05:45): A discussion on how women are uniquely affected by IBD, including hormonal influences during puberty, pregnancy, and menopause. (06:30): Dr. Khanna explains the importance of a multidisciplinary care team and open communication with your gastroenterologist about all symptoms. (08:00): The importance of discussing reproductive health early, even in adolescence, to gather information and make informed decisions later. (10:18): Dr. Khanna offers advice on managing fatigue by addressing sleep, mood, nutrition, and energy conservation, even when labs are normal. (14:23): Amber and Dr. Khanna discuss the fine line between pushing through illness and recognizing one's capacity to avoid overexertion. (15:47): Dr. Khanna advises focusing on trends rather than daily details to avoid anxiety while still providing useful data to doctors. (20:04): Guidance on when to send a portal message versus seeking immediate care, emphasizing that patients should not hesitate to reach out. (22:41): How patients can understand that issues like joint pain or eye problems can be connected to their IBD. (26:01): Dr. Khanna explains the detective work involved in distinguishing between medication side effects and extra-intestinal manifestations of IBD. (30:00): Dr. Khanna discusses a multidisciplinary treatment approach that incorporates nutrition, mental health, and physical therapy alongside medication. (32:27): A discussion on the long-term safety of modern IBD medications and the genetic risk of passing Crohn's to children. (35:34): Dr. Khanna explains the role of diet, the microbiome, and specialized nutrition in managing IBD for human patients. (38:31): Dr. Khanna shares personal details about her family, her life in Southern California, and her experience as a triathlete. Concepts discussed: Women Experience IBD Differently Than Men: Why It Matters Inflammatory bowel disease's gender bias 5 ways inflammatory bowel disease affects women differently Find Dr Puja Khanna at: Twitter: @PujaKhannaMD Bluesky: @pujakhannamd.bsky.social LinkedIn: Puja Khanna, MD Instagram: @pujakhannamd Cedars Sinai: Dr Khanna Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Emergency room visits are a source of stress and can lead to fragmented care. Amber speaks with psychologist Dr Stephen Lupe to learn why inflammatory bowel disease (IBD) patients avoid the ER, the reality of medical trauma, and how a multi-disciplinary approach like the IBD Medical Home can revolutionize patient care.   Transcript and more information at: https://bit.ly/AIBD205   Sponsored by: Johnson & Johnson: http://tremfyaradio.com/   Find Stephen Lupe, PsyD at: Cleveland Clinic: https://providers.clevelandclinic.org/provider/stephen-lupe/4826753 Twitter: @Psylupe LinkedIn: @stephen-lupe Resources mentioned: Cleveland Clinic's Digestive Disease & Surgery Institute: Explore the multidisciplinary healthcare programs where integrated care models such as the IBD Medical Home are being used and expanded. https://clevelandcliniclondon.uk/clinical-institutes/digestive-disease-surgery/inflammatory-bowel-disease Posttraumatic Stress in Patients With Inflammatory Bowel Disease: Read the full foundational study on IBD-related medical trauma co-authored by Dr. Tiffany Taft in the journal Inflammatory Bowel Diseases, which highlights the psychological impacts and the 90% prevalence statistic discussed by Dr. Lupe. https://pubmed.ncbi.nlm.nih.gov/34137449 The Crohn's & Colitis Foundation: Access educational materials and find vetted local peer support groups. https://www.crohnscolitisfoundation.org/myibdlearning Digital Health: Discover the digital collaborative care platform mentioned by Dr. Lupe that uses clinical care teams, evidence-based dietary interventions, and behavioral therapies to support chronic GI health. https://pmc.ncbi.nlm.nih.gov/articles/PMC12534582 Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio.

Amber Tresca talks with Andrew Giffin, a product manager in Toronto who was diagnosed with Crohn's disease at 19 after years of symptoms in high school. Andrew shares his experience navigating three major surgeries, adjusting his career path away from law enforcement, and learning to manage stress as part of living with a chronic illness. He also discusses developing apps, including Brown Note, a free, anonymous peer-support app for people with digestive diseases. Brown Note was inspired by his own feelings of isolation while preparing for his third surgery and is available on Apple, Android, and the web. Transcript and more at: https://bit.ly/AIBD204 What you'll learn:

 Personal journey with Crohn's disease, including challenges in high school and college and the impact surgery has on personal and professional life. What goes into developing apps to support individuals with digestive diseases.  What goes into creating a bathroom finder app such as "Flusher." Explanation of Brown Note, an anonymous peer support app for people with IBD. Importance of community and support for those with chronic illnesses. Coping strategies for managing stress and emotional challenges related to illness, such as reading and music. Key Chapters & Timestamps: [00:00:05] — Introduction to Andrew Giffin [00:01:49] — Early Symptoms and Diagnosis Journey [00:03:53] — The Challenge of University Life [00:07:09] — First Surgery and Recovery [00:09:30] — A Ruptured Appendix Emergency [00:12:28] — Changing Career Aspirations [00:15:53] — Coping with Life Changes [00:18:32] — Developing the "Flusher" App [00:21:14] — Lessons Learned from "Flusher" [00:24:54] — The Creation of "Brown Note" [00:27:50] — The Goal of the "Brown Note" App [00:30:12] — Andrew's Current Reading Obsession [00:33:59] — How to Find "Brown Note" Find Andrew Giffen at: LinkedIn: https://www.linkedin.com/in/giffen/   Find Brown Note at: Web: https://www.brownnote.app/ Apple Store: https://apps.apple.com/app/id6759183219 Google Play: https://play.google.com/store/apps/details?id=com.brownnote.app Resources discussed on this episode: Melsheimer R, Geldhof A, Apaolaza I, Schaible T. Remicade® (infliximab): 20 years of contributions to science and medicine. Biologics. 2019;13:139-178. doi:10.2147/BTT.S207246 https://pmc.ncbi.nlm.nih.gov/articles/PMC6679695/ Anal Fissure vs. Fistula: What Are the Differences First Signs of Appendicitis and Symptoms You Shouldn't Ignore IBD in College or Grad School: Coping With Stress, Flares, and Feeling Left Behind Got2Go — New York City Bathroom Finder We Can't Wait: Restroom Finder App — Crohn's and Colitis Foundation GoHere® Washroom Access — Crohn's and Colitis Canada Pop culture references: The Smiths: https://www.amazon.com/s?k=the+smiths&rh=p_lbr_music_artists_browse-bin%3AThe%2BSmiths The Wheel Of Time Series: https://www.amazon.com/Wheel-Time-Book-Set-Crossroads/dp/B00132BG7U/ Frank Herbert's Dune Saga: https://www.amazon.com/Frank-Herberts-Dune-6-Book-Boxed/dp/0593201884/   Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio.

Certified travel advisor, business owner, and ulcerative colitis patient Sarah McGovern joins Amber to give tips and tricks on traveling with IBD. Sarah relates her IBD journey, including a rare medication side effect that landed her in the hospital. Now in remission, Sarah breaks down her blueprint for traveling with an invisible illness. On this episode, you'll learn concrete, practical strategies for traveling with IBD and how a travel advisor can help you relax on your next trip.   Transcript and more information at: https://bit.ly/AIBD203   Chapters: 00:04 — Introduction to Sarah McGovern 02:16 — Sarah's Ulcerative Colitis Journey 04:18 — Medication-Induced Pancreatitis 09:03 — Planning Travel with IBD 14:23 — Packing Tips for IBD Travelers 20:39 — Managing Food Restrictions While Traveling 25:38 — The Value of a Travel Advisor 33:00 — Traveling to Disney with IBD 37:03 — Disney's Disability Access Service 43:46 — Travel Hacks 48:16 — Essential Travel Programs 55:07 — Where to Find Sarah Online Resources: IBD Specific Travel Information: https://www.ibdpassport.com Delta SkyMiles® Gold American Express Card: https://americanexpress.com/en-us/referral/delta-skymiles-gold-american-express-card?ref=AMBERTxPsU&xl=cp01 Foldie Bag: https://amzn.to/4uUkk85 Packing Cubes: https://amzn.to/4euki0U Find Sarah McGovern at: Instagram: @halcyontravelco Facebook:@halcyontravelco LinkedIn: @halcyontravelco Website: https://halcyontravel.co Sarah's Personal Instagram: @sarahmcgovern99 Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer  Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Episode transcript and more information at: https://bit.ly/AIBD202 Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel Disease." A survey of more than 500 patients puts a spotlight on the ways IBD affects body image, relationships, intimacy, and mental health. Amber and Katie discuss masking symptoms, the difficulties of working a corporate job, and why having community is critical.   Chapters 00:05 — Host Amber Tresca introduces the podcast and her guest, Katie Neu, who lives with Crohn's disease. 01:25 — Amber and Katie discuss the IBD Social Circle, a community for patients, caregivers, and healthcare professionals. 04:25 — The conversation turns to the experience of "faking being well" to manage social and professional expectations with an invisible illness. 10:17 — Katie shares her experiences with the stigma surrounding IBD, from high school and college to the workplace. 13:59 — The discussion focuses on the significant barriers to maintaining a career while living with IBD, including needing accommodations. 23:20 — Amber and Katie discuss the impact of IBD on body image, dating, and intimate relationships. 31:26 — The hosts talk about why people hesitate to join support groups and the mental health benefits of finding community. 37:08 — Katie shares where listeners can find her online, including her Instagram and Substack, to connect and learn more. The IBD Social Circle White Paper: The power of community in inflammatory bowel disease Find Katie Neu of Badass With a Bad Ass at: Instagram: @badass.w.a.bad.ass LinkedIn: @badasswithabadass Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

After a devastating Crohn's disease flare, marketing executive Bari Gratton traded a high-stress career for the healing path of yoga therapy in California. Bari joins Amber Tresca to discuss the "Five Layers of Being," the toxicity of "pushing through," and how she is building community for the next generation of IBD patients. Episode transcript and more information at: https://bit.ly/AIBD201 Key Chapters & Timestamps: [00:00:00] – Welcome to About IBD with Amber Tresca [00:04:40] – Diagnosis in the late 90s: Life as a teen with Crohn's [00:12:35] – The 2017 Crisis: Three surgeries and a temporary ostomy [00:19:40] – The Barn Door Moment: Finding safety in a yoga studio [00:23:00] – Healing the Next Generation: Camp Oasis and teen advocacy [00:30:30] – Intro to the Pancha Maya Kosha (The 5 Layers of Being) [00:32:15] – Layer 1: Annamaya Kosha (The Physical Body) [00:34:10] – Layer 2: Pranamaya Kosha (The Energy/Breath Body) [00:36:45] – Layer 3: Manomaya Kosha (The Mental/Emotional Body) [00:39:50] – Layer 4: Vijnanamaya Kosha (The Wisdom/Witness Body) [00:42:30] – Layer 5: Anandamaya Kosha (The Bliss/True Nature Body) [00:52:00] – Why "Pushing Through" is a toxic practice for chronic illness [01:03:00] – Girls with Guts and the "Om My Guts" community What you'll learn: Why the "pushing through" mentality can exacerbate IBD and how to shift toward acceptance. Bari's journey from a high-stress NYC marketing career to becoming a yoga instructor. The profound impact of the Pancha Maya Kosha (Five Layers of Being) on managing chronic pain and anxiety. How a devastating flare led Bari to overhaul her life and work towards remission. The unique benefits of clinical yoga therapy for those with IBD. The importance of community through organizations like Girls with Guts and the Crohn's & Colitis Foundation. Resources mentioned in this episode: Team Om My Guts Bari Gratton Take Steps Greater Los Angeles/Orange County Chapter of the Crohn's and Colitis Foundation Find Girls With Guts at: Facebook: @IBDgirls Web: https://girlswithguts.org/ LinkedIn: @ibdgirls Instagram: @ibdgirls Annual Retreat: October 23 - October 26 Find the Crohn's & Colitis Foundation Los Angeles/Orange County Chapter at: Web: Greater Los Angeles/Orange County Chapter of the Crohn's and Colitis Foundation Instagram: @crohnscolitisfoundationla_oc Facebook: @ccflaoc Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Did you know that inflammatory bowel disease (IBD) isn't only a digestive condition? It can also attack your vision. Your host, Amber J Tresca, breaks down some of the most common eye-related extra-intestinal manifestations (EIMs) of Crohn's disease and ulcerative colitis. Learn how to identify the warning signs of episcleritis, uveitis, and scleritis, and find out when you need to see an ophthalmologist right away to protect your eyesight. Episode transcript and more information at: https://bit.ly/AIBD200 Key Chapters & Timestamps 00:00 - Introduction: Protecting your vision with IBD 02:07 - What are Extra-Intestinal Manifestations (EIMs)? 04:21 - How common is eye disease in IBD patients? 05:43 - Condition 1: Episcleritis (Symptoms and treatments) 07:15 - Why episcleritis often tracks with IBD flares 10:14 - Condition 2: Uveitis (Red flags and risks of vision loss) 13:58 - Condition 3: Scleritis (Rare but severe complications) 16:51 - Condition 4: Dry Eyes 18:23 - Risk Factors: Who is most likely to develop IBD eye issues? 20:10 - When to call your doctor and why you need an ophthalmologist 23:25 - Practical tips: Keeping eye drops in the fridge Sources: Vavricka SR, Schoepfer A, Scharl M, Lakatos PL, Navarini A, Rogler G. Extraintestinal Manifestations of Inflammatory Bowel Disease. Inflamm Bowel Dis. 2015;21(8):1982-1992. doi:10.1097/MIB.0000000000000392 Mintz R, Feller ER, Bahr RL, Shah SA. Ocular manifestations of inflammatory bowel disease. Inflamm Bowel Dis. 2004;10(2):135-139. doi:10.1097/00054725-200403000-00012 Crohn's & Colitis Foundation. Eye complications in IBD. Rosenbaum JT, Bodaghi B, Couto C, et al. New observations and emerging ideas in diagnosis and management of non-infectious uveitis: A review. Semin Arthritis Rheum. 2019;49(3):438-445. doi:10.1016/j.semarthrit.2019.06.004 World Health Organization. Vitamin A deficiency and ocular health. Rufo PA, Denson LA, Sylvester FA, et al. Health supervision in the management of children and adolescents with IBD: NASPGHAN recommendations. J Pediatr Gastroenterol Nutr. 2012;55(1):93-108. doi:10.1097/MPG.0b013e31825959b8 Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

T.L. Wright, known as The IBD Athlete and author of The SCD Athlete Cookbook, tells Amber about her frustrating decades-long journey to a Crohn's disease diagnosis. She explains the health reasons behind her pivot from triathlons and Ironman races to competitive bodybuilding. You'll leave this episode with a better understanding of how to fuel for your sport or workout while managing an immune-mediated condition. Episode transcript and more information at: https://bit.ly/AIBD199 The SCD Athlete Cookbook: Amazon and Bookshop.org Chapters: 00:00 - Introduction to the IBD Athlete 02:39 - A Lifetime of Unexplained Symptoms 04:18 - The "Go Hard" Endurance Sports Trap 08:09 - The Overlooked Connection Between IBD and Oral Health 11:04 - The 3-Year Promise 14:26 - Can IBD Patients Compete at an Elite Level? 21:21 - The Pivot to Natural Bodybuilding 26:54 - 5 Tips for Consistency on the SCD Diet 33:04 - The Dangers of AI Recipe Generation 35:29 - The Accidental Influencer 40:44 - Where to Find the IBD Athlete What You'll Learn: How upper GI Crohn's disease can be missed or misdiagnosed. Why the "tough it out" culture in endurance sports can be dangerous for athletes with chronic illnesses. How to transition athletic goals to better support a healing body. Practical tips for managing the Specific Carbohydrate Diet (SCD) as an active person. The importance of advocating for your health and understanding the connection between diet and IBD. More resources: Breaking the Vicious Cycle: Intestinal Health Through Diet Specific Carbohydrate Diet Association Special IBD diets via The Crohn's and Colitis Foundation Find T.L. Wright at: Web: The IBD Athlete Facebook: The IBD Athlete Threads: @theibdathlete Instagram: @theibdathlete Tik Tok: @TheIBDAthlete Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Episode transcript and more information at: https://bit.ly/AIBD198 What does a pregnant woman do when they need a biologic medication, but pregnancy isn't included in drug trials? Dr. Sonia Grandi and Dr. Christina Longo talk to Amber Tresca about the BIONIC study, a groundbreaking project using decades of real-world data to understand how biologics affect a pregnant woman and her baby. The BIONIC study is designed to empower patients to make confident, evidence-based decisions about their own health and their children's future. Timestamps 00:00 – Introduction to Dr. Sonia Grandi and Dr. Christina Longo. 04:14 – What exactly is an Epidemiologist? 06:33 – Why childhood asthma research led to the BIONIC Study. 11:05 – Why children and pregnant women are historically excluded from trials. 13:00 – Defining "Remission" in children: Why it's more than just labs. 17:01 – The BIONIC Study explained: Safety and biologics in pregnancy. 22:04 – The Patient Advisory Committee: Why lived experience matters. 25:52 – The "Grind" of Research Funding: How projects actually get built. 32:21 – Fun & Hobbies: Puzzles, running, and the "BIONIC" spirit. Find Sonia Grandi, MSc, PhD at: The Hospital for Sick Children (SickKids): Sonia Grandi, MSc, PhD Dalla Lana School of Public Health: Sonia Grandi, MSc, PhD Lab: IMPOWER Lab at The Hospital for Sick Children (SickKids) LinkedIn: @sonia-grandi Find Cristina Longo , PhD at: Université de Montréal: Cristina Longo , PhD CHU Sainte-Justine: Cristina Longo , PhD LinkedIn: @cristina-longo-67656040 Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Everyone needs sleep, but so many of us struggle to get enough. People living with IBD know that a good night's sleep can feel like a distant dream, whether it's pain, urgent bathroom trips, or racing thoughts keeping you up. But why exactly does IBD disrupt our sleep even during remission? And what is your sleep telling you about the risks of a flare-up? Episode transcript and more information at: https://bit.ly/AIBD197 Chapters: 00:04 Introduction and Host Background 01:32 IBD and Sleep: The Problem 03:00 Why Sleep Matters for IBD 04:14 Defining Sleep Disturbance in IBD 05:23 Inflammation's Role in Sleep Disruption 07:08 Wearables and Sleep Research in IBD 08:29 Mental Health, Pain, and Medication Effects 11:06 Why Prioritizing Sleep is Crucial 12:30 Practical Tips for Better Sleep 14:57 Communicating Sleep Issues and Seeking Support 16:12 Episode Wrap-Up and Resources  16:20 Credits and Outro More Information on Sleep: Alien: How IBD Inspired an Iconic Movie: 10 Tips to Get More Sleep Talking to Your Doctor About Sleep I Am So Tired Have You Tried Yoga? – An IBD Community Poll A Meditation Journey – Week 1 Struggling to Sleep? These 11 Foods Could Help You Rest Better 13 Foods to Eat Instead of Taking Melatonin for Better Sleep The Best Time to Eat Dinner for Better Digestion and Sleep Sources: Su XY, Wang YN, Huang YH, Dai C. The sleep quality and its association with disease activity in patients with inflammatory bowel disease: a meta-analysis. Rev Esp Enferm Dig. doi:10.17235/reed.2025.11305/2025. Zhang JZ, Song XZ, Song XN, Shen YL, Tang H, Li H. Prevalence and risk factors of sleep disorders in inflammatory bowel disease: a cross-sectional study. Int J Colorectal Dis. 2024;39(1):140. doi:10.1007/s00384-024-04712-w. Chaemsupaphan T, Pimolsri C, Subdee N, et al. Poor sleep quality is common and independently associated with disease activity and poor quality of life in inflammatory bowel disease: a long-term follow-up study. Therap Adv Gastroenterol. 2025;18:17562848241311142. doi:10.1177/17562848241311142. Kuzoian S, Jerson B, Brimacombe M, Schneeberg L, Hyams JS. Sleep tracking and sleep hygiene counseling improve fatigue in pediatric patients with inflammatory bowel disease. J Pediatr Gastroenterol Nutr. 2025;81(1):62-68. doi:10.1002/jpn3.70066. Xu TY, Zhang Y, Zhao SL. Association of Poor Sleep Quality With Adverse Outcomes in Patients With Inflammatory Bowel Disease: A Systematic Review and Meta-Analysis. J Dig Dis. 2024;25(11-12):664-673. doi:10.1111/1751-2980.13328. Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.