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TSC Talks!

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Rating
★★★★★
5
from
5 reviews
This podcast has
155 episodes
Language
English
Explicit
Yes
Date created
2018/10/07
Latest episode
2026/05/06
Average duration
35 min.
Release period
109 days

Description

TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes!

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Check latest episodes from TSC Talks! podcast


TSC Talks 3.0 (not) Research ~ In the Stone Chamber
2026/05/06
Taking a break from the harsh closed loops and hunkering down in dis stone chamber to give a little freestyle riff for this episode from the stone chamber no links  except go watch the video. the audio just won't cut it on this one https://youtu.be/bEIqg2lcDU0 Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks 3.0 Research~Episode 10
2026/04/29
I bust through the third wall or whatevs in Episode 10 of TSC Talks 3.0 Research. Dropped the whiteboard til the end. Summed up the 9 episodes and added a bit on the end about CPTSD, TAND and the fact that the entire family system is drawn into the grid as data churnin' emotin' node. Used the Google AI to investigate the theories I had on amplification of TSC by multiple factors for purpose and product and it proved true based on the research plus lived experience thus far. Source Links for Further Research I. Rare Disease Advocacy and Funding (Conflicts of Interest) [TSC Alliance: Corporate Policies](https://www.tscalliance.org/about-tsc/corporate-policies/) [TSC Alliance: COVID-19 Vaccine Position Statement](https://www.tscalliance.org/wp-content/uploads/2021/08/TSC-Alliance-COVID-19-Vaccine-Position-Statement-Update-August-2021-FINAL.pdf) [TSC Alliance: Phenotypic Variability Research](https://www.tscalliance.org/tsc-matters/phenotypic-variability-in-tuberous-sclerosis-complex-tsc/) [TSC Alliance: 2024 Talking Points](https://www.tscalliance.org/wp-content/uploads/2024/01/2024-Talking-Points-Final.pdf) [NORD: Mission and Values](https://rarediseases.org/about-us/mission-values/) [NORD: Research Grant Programs](https://rarediseases.org/advancing-research/research-grant-programs/)  [EURORDIS: Our Funding](https://www.eurordis.org/who-we-are/our-funding/) [Mass General: Herscot $50 Million Gift](https://giving.massgeneral.org/stories/herscots-make-50-million-gift-to-mass-general) [NEJM: Industry Support for Patient Advocacy](https://www.nejm.org/doi/full/10.1056/NEJMsr1610625) II. Gene Therapy (CRISPR), Risks, and Regulation  [FDA: Cellular & Gene Therapy Products](https://www.fda.gov/vaccines-blood-biologics/cellular-gene-therapy-products) [CRISPR-Cas9 Off-Target Effects (Synthego)](https://www.synthego.com/blog/crispr-off-target-editing/) [CRISPR: Genome Engineering Advantages and Limitations (Taconic)](https://www.taconic.com/resources/crispr-genome-engineering-advantages-limitations) [FDA: Regulatory Distinctions for Cell and Gene Therapies (LinkedIn)](https://www.linkedin.com/pulse/fda-vs-ema-key-regulatory-distinctions-cell-gene-therapies-ywzye) [Informed Consent and Clinical Trials (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC2659702/) [Immune Evasion in Engineered CRISPR Enzymes (Broad Institute)](https://www.broadinstitute.org/news/scientists-engineer-crispr-enzymes-evade-immune-system) [The Ethics of Gene Editing (Innovative Genomics)](https://innovativegenomics.org/crisprpedia/crispr-ethics/) III. Vaccines, Toxins, and Environmental Amplification  [TSC Drug Market & Prevalence (OpenPR)](https://www.openpr.com/news/3536609/tuberous-sclerosis-complex-drug-market-2034-epidemiology) [Vaccines and the Rise in Pediatric Cancer (The Vaccine Reaction)](https://thevaccinereaction.org/2018/05/is-there-a-link-between-vaccines-and-the-rise-in-pediatric-cancer/)  [Study of Vaccinated and Unvaccinated Children (Weston A. Price)](https://www.westonaprice.org/health-topics/vaccinations/chronic-disease-a-study-of-vaccinated-and-unvaccinated-children/#gsc.tab=0) [Role of Environmental Toxins in Epigenetic Dysregulation (PLM Institute)](https://plminstitute.org/plmi-blog/the-role-of-environmental-toxins-in-epigenetic-dysregulation/) [Childhood Vaccination Schedule Explosion (Twitter - NVICLoeDown)](https://twitter.com/NVICLoeDown/status/1687176816774033408) [COVID-19 Vaccine Added to Childhood Schedule (Children's Health Defense)](https://childrenshealthdefense.org/defender/childhood-covid-vaccine-schedule/) [The Role of Environmental Exposures in Genetic Disease (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC4021822/) IV. Alternative and Holistic Approaches [Ketogenic Diet Inhibits the mTOR Pathway (AESnet)](https://aesnet.org/abstractslisting/the-ketogenic-diet-inhibits-the-mammalian-target-of-rapamycin-\(mtor\)-pathway) [Ketogenic Diet for Epilepsy in TSC (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC5540690/) [Curcumin Inhibits mTOR Activity (ScienceDirect)](https://www.sciencedirect.com/science/article/abs/pii/S0944711318304860) [Natural Treatment for TSC (Inspire Forum)](https://www.inspire.com/groups/tuberous-sclerosis-complex/discussion/natural-treatment-for-tsc/) [Natural Products and Patenting (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC8521639/) [Anti-Inflammatory Living (Holistic Health Code)](https://www.holistichealthcode.com/articles/unlocking-metabolic-health) contact Jill: [email protected] Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks 3.0 Research~Episode 9
2026/04/22
In this episode, I get into mitigation strategies related to the increasing reliance on tech with the arrival of 6G particularly for those living with a chronic and or rare disease that is on multiple medications and dependent on the grid. What would be considered alternative or holistic therapies such as grounding, sound therapy, ketogenic diet and exercise have all been proven to help support the full field in finding homeostasis even with a condition such as TSC and can improve overall health and quality of life as a support beyond meds and other more drastic regimens. I also talk about the similarities between CPTSD and TAND (TSC Associated Neuropsychiatric Disorder) and the importance of understanding the "energetics" of a rare disease when advocating for one's self and/or loved ones. The system will add additional labels and complicate understanding. I hope to explore further the CPTSD connection as I feel it as AS relevant as the limited focus of TAND. Full list of links: https://docs.google.com/document/d/e/2PACX-1vQv_yBMqtFvxQmhm31TXozv20_nEGxCTwjUCclYrEK2yE9NGR6rQqc1GyMsA76lUNtNrZda-FF_Z2IM/pub Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks 3.0 Research~Episode 8
2026/04/15
Episode 8 of TSC Talks 3.0 Research... continuing on with the extensive history of the rare disease Tuberous Sclerosis Complex, the set up for data harvesting and gene editing and the inevitability of enhanced grid adhesion. Woohoo! Next episode I'm gonna go into mitigation and the upswing of the sitch.  Links: mindandbodyexercises.com https://medium.com https://maescenter.com rockarch.org tikvahhealthandwellness.com nih.gov nih.gov nutritiondiagnostics.com.au nih.gov psychologytoday.com nih.gov mcgill.ca chop.edu https://historyofvaccines.org nih.gov jpeds.com https://time.com nih.gov nih.gov nih.gov 2minutemedicine.com nih.gov nih.gov sciencedirect.com nih.gov cdc.gov nih.gov https://richd.org nih.gov wikipedia.org empr.com https://historyofvaccines.org https://drgreenmom.com mayoclinic.org kaiserpermanente.org nih.gov kff.org forbes.com itu.int ciocoverage.com https://studyfinds.org Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks 3.0 Research~Episode 7
2026/04/08
The history of Tuberous Sclerosis Complex. they're juicing it. Some queries related to the complexity of epigenetic variables and the overlords decision to focus on genetics only for the sake of "simplicity"... Just my opinion? I welcome all listeners and critical thinkers. 📚 Primary Research & Databases PubMed Central (Full-Text Archive): https://pmc.ncbi.nlm.nih.gov PubMed (Citations & Abstracts): https://pubmed.ncbi.nlm.nih.gov ScienceDirect: sciencedirect.com Wiley Online Library: https://onlinelibrary.wiley.com Springer Link: https://link.springer.com ResearchGate: researchgate.net Academia.edu: academia.edu 🏥 Health Organizations & Agencies NIH / National Library of Medicine: https://www.ncbi.nlm.nih.gov NINDS (Neurological Disorders): https://www.ninds.nih.gov MedlinePlus: https://medlineplus.gov HRSA (Health Resources): hrsa.gov Texas Children’s Hospital: texaschildrens.org TSC Alliance: tscalliance.org Epilepsy Foundation: epilepsy.com 🔬 Specialized Medical Journals The Lancet: thelancet.com Pediatric Neurology: pedneur.com Neurotherapeutics: neurotherapeuticsjournal.org Frontiers in Science: frontiersin.org eLife Sciences: https://elifesciences.org AMA Journal of Ethics: ama-assn.org AAP Publications: aap.org ACR Journals: https://acrjournals.onlinelibrary.wiley.com ACR Abstracts: https://acrabstracts.org 2 Minute Medicine: https://www.2minutemedicine.com 📰 News, Legal & Historical Context TIME Magazine: https://time.com Medical Xpress: https://medicalxpress.com History of Vaccines: https://historyofvaccines.org Texas Vaccine Lawyers: texasvaccinelawyers.com Digital Commons (Rockefeller): rockefeller.edu HealthCentral: healthcentral.com Changing Aging: https://changingaging.org Medium: https://medium.com Meridian Health Clinic: https://meridianhealthclinic.com Wikipedia: wikipedia.org WikiDoc: wikidoc.org contact Jill ~ [email protected] Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks 3.0 Research~Episode 6
2026/04/01
In Episode 6 of TSC Talks Research 3.0, I finish up the discussion of CRISPR and TSC and the trajectory, I get into cannabis and the way they've deglimmered exploration of consciousness for those with rare diseases on hefty meds and how this relates to the cultivated biosphere that limits the full potential of the divine human. So many the templates for data and experimentation to build the current Healthcare 4.0 system and Precision Medicine. While many will be helped, there will be a dependence on the grid system. YouTube Video: https://youtu.be/OqLKIZ7Q54s?si=8svWmKHp4ekiFOnR Links: https://www.liebertpub.com/doi/10.1089/crispr.2024.0079  https://pubmed.ncbi.nlm.nih.gov/39654514/  https://pediatricsnationwide.org/2024/01/11/innovative-gene-therapy-approach-for-treating-patients-with-tuberous-sclerosis-type-2/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7793581/  https://innovativegenomics.org/news/crispr-clinical-trials-2026/ https://frontlinegenomics.com/sickle-cell-disease-a-2024-update/ epidiolexhcp.com  nih.gov  sciencedaily.com  https://www.researchgate.net/publication/348347376_Gene_therapy_for_tuberous_sclerosis_complex_type_2_in_a_mouse_model_by_delivery_of_AAV9_encoding_a_condensed_form_of_tuberin globalgenes.org neurologylive.com berkeley.edu ccf.org Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks 3.0 Research~Episode 5
2026/03/25
In this episode I share information on the risks and side effects of CRISPR for individuals with TSC and in general as well as go into how those affected with TSC are "test bunnies" for much of this new technology, and my theories with documentation of why this is happening. I also go over some of the "no touch" technologies being rolled out and tested on those with diseases such as TSC where the nature of the genetics, a "monogenic" disorder, makes it a more suitable population to experiment on to gain information than other more common disorders, such as Alzheimer's, which involve 100s of genetic factors.  TSC population is kept in that "test bunny" role without ever addressing the external factors that make the disease more difficult to manage in the first place. LINKS: pmc.ncbi.nlm.nih.gov pubmed.ncbi.nlm.nih.gov https://pmc.ncbi.nlm.nih.gov/articles/PMC7672342/ https://cdmrp.health.mil/tscrp/default http://tuberous-sclerosis.org/research/tsa-funded-research/ https://www.mdpi.com/2075-1729/15/3/368 https://www.tscalliance.org/wp-content/uploads/2023/02/Training-Packet-Documents.pdf https://pmc.ncbi.nlm.nih.gov/articles/PMC3010088/ https://pmc.ncbi.nlm.nih.gov/articles/PMC4527140/ https://pubmed.ncbi.nlm.nih.gov/19028034/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6851053/ https://www.youtube.com/watch?v=hXRRq-dFuYg https://www.youtube.com/watch?v=Hu2TvhhdEHY https://www.youtube.com/watch?v=BFuXttZspaY https://pmc.ncbi.nlm.nih.gov/articles/PMC5727703/ https://globalgenes.org/raredaily/transforming-tsc-epilepsy-with-a-precision-therapy/ https://pediatricsnationwide.org/2024/01/11/innovative-gene-therapy-approach-for-treating-patients-with-tuberous-sclerosis-type-2/ https://pmc.ncbi.nlm.nih.gov/articles/PMC3164024/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11944049/ https://www.biorxiv.org/content/10.1101/2024.02.22.581652v1.full-text https://pmc.ncbi.nlm.nih.gov/articles/PMC6408922/ https://www.mdpi.com/2076-3417/14/3/1132 https://pmc.ncbi.nlm.nih.gov/articles/PMC3744999/ https://www.researchgate.net/publication/24217930_Magnetically_Responsive_Nanoparticles_for_Drug_Delivery_Applications_Using_Low_Magnetic_Field_Strengths https://pmc.ncbi.nlm.nih.gov/articles/PMC2933363/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7998448/ https://pmc.ncbi.nlm.nih.gov/articles/PMC9230665/ Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks 3.0 Research~Episode 4
2026/03/18
TSC Talks 3.0 Research, Episode 4 Here's my ongoing convo with AI delving into the funding behind rare disease research, non profits and how there are vested interests in continuing to bypass the full range of knowledge about what impacts the genome such as environmental (vaccines included) amplifications so they can justify the need for gene therapy via crispr, etchttps://rarediseases.org/about-us/financials-governance/ https://rarediseases.org/collection/nord-financials/ https://rarediseases.org/nord-releases-report-on-the-state-of-rare-disease-diagnosis-care-and-treatment-in-america-over-three-decades/ https://rarediseases.org/nord-state-report-card/ rarediseases.org https://rarediseases.org/wp-content/uploads/2022/10/NORD_2020_Annual-Report_wFinancials.pdf https://rarediseases.org/wp-content/uploads/2022/01/NORD_2020_Annual-Report_FINAL_SpreadView_web.pdf https://rarediseases.org/wp-content/uploads/2022/10/NRD-1198-2019_Annual-Report_FNL_WebSize.pdf https://www.eurordis.org/who-we-are/our-funding/ https://www.eurordis.org/who-we-are/projects-and-partnerships/ https://www.eurordis.org/partnerships/ https://www.eurordis.org/get-involved/join-the-eurordis-round-table-of-companies/ https://www.eurordis.org/publications/eurordis-policy-on-financial-support-by-commercial-companies-2/ https://www.eurordis.org/our-priorities/research/ https://www.eurordis.org/eurordis-supports-member-states-efforts-operating-grants-reintroduction/ https://www.eurordis.org/videos/rare-but-real-talking-rare-diseases-part-1-6/ download2.eurordis.org vzacna-onemocneni.cz https://everylifefoundation.org/rare-hub/rare-hub-partners-current-1-3/ https://everylifefoundation.org/financial-support/ https://everylifefoundation.org/everylifeeveryaction/ https://everylifefoundation.org/sitemap/ https://everylifefoundation.org/wp-content/uploads/2025/08/ELF-AnnualReport-2024-8.5x11-Proof-v6-081225.pdf https://everylifefoundation.org/wp-content/uploads/2022/01/Guide-to-Patient-Involvement-FINAL-COMPLETE-GUIDE-Rev.pdf https://everylifefoundation.org/wp-content/uploads/2016/05/Industry-Brochure-FINAL-May-2016.pdf Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks 3.0 Research~Episode 3
2026/03/14
Episode 3 of TSC Talks 3.0 Research I drill down with the AI on the reality of what is happening in the rare disease expanse. The full expanse it's not explored we are jumping right into gene editing, like using whiteout, it isn't quite the same. It's a closed loop system. That is for sure. links: https://www.ninds.nih.gov/health-information/disorders/tuberous-sclerosis-complex# https://pmc.ncbi.nlm.nih.gov/articles/PMC7672342/ https://www.ncbi.nlm.nih.gov/books/NBK1220/# https://patienteducation.asgct.org/understanding-cell-gene-therapy/ethical-issues-germline-gene-editing# https://pmc.ncbi.nlm.nih.gov/articles/PMC12103018/# https://pubmed.ncbi.nlm.nih.gov/6873497/# https://pmc.ncbi.nlm.nih.gov/articles/PMC6277505/# https://www.researchgate.net/publication/326455213_Incidence_of_tuberous_sclerosis_and_age_at_first_diagnosis_new_data_and_emerging_trends_from_a_national_prospective_surveillance_study https://pmc.ncbi.nlm.nih.gov/articles/PMC11944049/# https://www.slu.edu/law/health/blog/2024/vence-bonham-dss.php# https://tuberoussclerosiscenter.wustl.edu/about-tsc/causes/# https://www.ncbi.nlm.nih.gov/books/NBK535878/# https://pmc.ncbi.nlm.nih.gov/articles/PMC5524257/# https://pmc.ncbi.nlm.nih.gov/articles/PMC5100696/# https://link.springer.com/article/10.1007/s11569-025-00479-8# https://www.ncbi.nlm.nih.gov/books/NBK535877/# https://pmc.ncbi.nlm.nih.gov/articles/PMC11306935/# https://pmc.ncbi.nlm.nih.gov/articles/PMC10338708/ https://www.thehastingscenter.org/genetic-therapies-for-rare-diseases-developing-ethical-regulatory-policies/# https://med.nyu.edu/departments-institutes/population-health/divisions-sections-centers/medical-ethics/education/high-school-bioethics-project/learning-scenarios/jesse-gelsinger-case https://www.cliffsnotes.com/cliffs-questions/5224266# https://www.bstquarterly.com/article/using-synthetic-biology-to-create-therapeutic-solutions/# https://www.sciencedirect.com/science/article/pii/S1359644621001574 https://www.sciencedirect.com/science/article/abs/pii/S1359644621001574# #raredisease #TuberousSclerosisComplex #GeneEditing Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks 3.0 Research, Episode 2
2026/03/03
​Episode 2 of ongoing research on Tuberous Sclerosis Complex based on the query~Is CRISPR CAS9 being researched to help/cure tuberous sclerosis?" An exchange with Google AI mode in reference to the above query with the intention of making it clear the trajectory for those with rare diseases in terms of overriding our biological organic template and moving towards a more synthetic version. I picked up where I left off with Episode 1 and talk through Epigenetic "Switches", Gut-Brain Axis and Neuroinflammation, Why Researchers Are Skipping These Links, Potential Reasons for the Research Focus, Funding and Corporate Partnerships, Neuroinflammation Research, The "TAND" Project (TSC-Associated Neuropsychiatric Disorders), The PREVENT Trial, Basic Science and "Somatic Mosaicism", The "Funding Gap" regarding Conflicts of Interest, The Logic of the "Omission", Lived Experience vs. "Proven" Science,Why It Feels "Diabolical" & Finding the "Clean" Data https://www.mdpi.com/1422-0067/22/14/7273 https://pmc.ncbi.nlm.nih.gov/articles/PMC11275973/ https://www.ncbi.nlm.nih.gov/books/NBK206940/ https://www.nature.com/articles/s41398-024-02752-y https://clinicaltrials.gov/study/NCT01289912 https://pmc.ncbi.nlm.nih.gov/articles/PMC9253752/ https://www.intechopen.com/chapters/82669 https://pmc.ncbi.nlm.nih.gov/articles/PMC6748183/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6278824/ https://www.nature.com/articles/s41439-022-00181-1 https://pmc.ncbi.nlm.nih.gov/articles/PMC3035853/ https://pmc.ncbi.nlm.nih.gov/articles/PMC5804531/ https://pubmed.ncbi.nlm.nih.gov/40558831/ https://docs.google.com/document/d/1ncDHvfDHkzVd1-H4Xgulz-mhSZxhwhydK6jWln90L5E/ (contact [email protected] for access) Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks 3.0 Research~Episode 1
2026/03/02
"Is CRISPR CAS9 being researched to help/cure tuberous sclerosis?" An exchange with Google AI mode in reference to the above query with the intention of making it clear the trajectory for those with rare diseases in terms of overriding our biological organic template and moving towards a more synthetic version. For many this will bring great relief as these rare diseases are challenging for affected and the ripple created in the realm. Instead of considering ALL the factors that have exacerbated and amplified rare diseases to the point of no return, our powers that be are forging ahead with gene therapy, at the germline. This disease is a data generator, and the affected population a perfect test template for gathering the intel needed , organ by organ to duplicate and integrate with the tech. No judgement, just sharing the conversation as I feel it's important to share these exchanges with the body of knowledge currently feeding the AI. https://youtu.be/lZKqFZWnp0c Here's a link to the queries. https://share.google/aimode/mwKaYPnKgzw54cs76 Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks Revival!! JUSTIN LESLIE of Project Whistleblower ~ Truth Under Fire
2024/03/18
This is a special edition, TSC Talks Revival episode with Justin Leslie! Justin is an ex-Pfizer scientist and whistleblower. Justin was also one of my first guests on my podcast "TSC Talks" in 2018, (https://bit.ly/3Iz0FUU) where he shared his story about his experience with diagnosis and living with TSC.   In "Project Whistleblower" Justin shares his personal journey, including living with Tuberous Sclerosis Complex (TSC), a condition that not only shaped his childhood but also inspired him to pursue a career in pharmacology, aiming to find a cure for his condition. During his time as a vaccine scientist at Pfizer, Justin began to collaborate undercover with Project Veritas. This partnership led to the revealing of mind blowing revelations about the COVID-19 ‘scamdemic’ and other alleged misconduct within Pfizer. However, he soon started to observe concerning behaviors within Project Veritas, such as the suppression of timely truths and vaccine concerns. These observations led him to question the integrity of the organization and its founder, James O’Keefe. In collaboration with Marty Leeds, Justin has produced the compelling documentary “Project Whistleblower.” This film delves into his experiences and his growing awareness of the covert tactics and manipulations at Pfizer, Project Veritas, and OMG Media Group. In an era rife with lies and deception, the documentary underscores the revolutionary act of truth-telling." (credit to Amanda Vollmer: https://yummy.doctor/video-list/advocates-for-truth-amandha-vollmer-adv-with-justin-leslie/) Contact info for Justin! Justin Leslie: https://justintegrity.net/ Justin’s Linktree: https://linktr.ee/justinleslie Contact: [email protected] Donate to Justin's work: https://www.givesendgo.com/ProjectWhistleblower WATCH THE DOCUMENTARY HERE:  https://justintegrity.net/project-whistleblower/ Produced by: https://linktr.ee.com/jillwoodworth https://jillwoodworth.com Short clip produced by @jillwoodworth https://jillwoodworth.com Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks! Final podcast~Wrapping it Up & Thanks
2022/06/23
Jill wraps up the podcast! I started in 2016 interviewing my kids and how they were affected by Tuberous Sclerosis Complex. It was absolutely divine inspiration from the start and branched out shortly after to interviewing community members and other professionals who worked with those affected. From there, I explored many different topics, providing information and resources in interview form, all with relevance to the individuas and/or parent/caregivers affected by a chronic illness like TSC. Pushing the boundaries of what was deemed "safe and effective" by our medical system, I continued to put info out there based on my own lived experience as a parent/caregiver living and dealing with what I'd come to discover is CPTSD if you want to use a label. It was my vision and still is that all "remedies" for improving the quality of life of all involved in the wheels of chronic illness, particularly one such as TSC which affects all the vital body organs, will be an option for all. Why should we hold back the river when there are so many speaking about how their lives have been impacted by sharing their truths, sharing what's worked for them and what potentially might help another ease the very real and almost daily traumas of attempting to live with an open heart and navigate our inverted systems of care. Many of these podcasts go against the grain of what people are comfortable hearing. There are always positive takeaways but there are some heavy heavy experiences that people are walking through and talking about and must be given voice. I think through honest conversation, and taking full responsibility for one's reactions to other's sharing from their most painful, heart-wrenching moments, we can begin to hear each other once again at least long enough to realize, we're all having vastly different experiences yet we all long to be here now, safe, loved, whole, home. Thanks for tuning in and being here there and everywhere. It's been the pleasure of a lifetime to have the opportunity to create and share this work. Love Jill Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks! Points of Light~Linsey Hurley~Holistic Health Coach Working with Cutting Edge Energy Healing Technologies "Silver Linings"
2022/03/28
I met Linsey Hurley this past December when we both participate in a Freedom Flash Mob dance event at a local mall. It was a fun and powerful event, a group of locals suddenly bursting into dance and raising awareness of our right to medical freedom! So, I figured the people I met at this event were pretty special. I got a text from Linsey a few weeks ago and we got to chatting. She told me a bit about her business and this new patch she had been guided to that was quite interesting. At that point, I decided to invite her on the podcast to discuss and was quite impressed with what I learned, and the potential of this new tool, X39 patches. Linsey is a holistic health coach, and she has worked with cutting-edge energy healing technologies for many years. She was led to the alternative health field after her experience witnessing her sister go through stage 4 breast cancer within the mainstream health system. Despite her and her sister doing much research and finding alternative treatments which when suggested, were basically brushed off and ignored. This was over 40 years ago. She ultimately lost her sister, and faith in our conventional system, which explains the silver lining. Her sister inspires her and is with her every day and she is grateful for her impact on her life, ultimately pushing Linsey into utilizing and sharing these amazing healing energy devices and tools today! The rest of this story is in the podcast. See timestamps from the transcript below. If interested in learning more, you can reach out to Linsey at [email protected] by phone at 9787937291. For more information on the product~ https://startx39.com and if you would like to sample some, contact Jill Woodworth at [email protected] or order at https://lifewave.com/jwoodworth Here are a few links with some scientific info~ http://stemcellpatchresources.com/wp-content/uploads/2019/11/QA.pdf https://www.lifewave.com/Content/images/home/science/pdf/Photobiomodulation-or-low-level-laser-therapy.pdf https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6073405/ https://newswire.net/newsroom/blog-post/00227659-the-science-behind-life-wave-s-wearable-phototherapy-technology.html https://theoptionsph.com/2021/01/10/lifewave-phototherapy-patches-too-good-to-be-true/ timestamps: 1-2:18 Introduction 2:18~Linsey’s story, holistic health coach…. started 40+ years ago when her sister was diagnosed with stage four breast cancer 3:06~this experience w/her sister and watching her go through all the conventional treatments to no avail despite doing research w/her sister on alternative options, led her to not have much trust in our conventional medical system 3:57~Again her experience with her sister led her to alternative health and deeper into spirituality to process this loss, which was over 40 years ago and she’s still here. She considers this a gift from her sister. 5:36 the mainstream narrative keeps us in fear and subservience with no energy to consider why we are here 5:57~Linsey’s sister is still with her 6:32~Start of discussion on X39 patches which support the body’s natural systems 7:23~the body is brilliant! We can support it in the way it wants to heal 7:45~FDA glitch at beginning of the pandemic, Linsey could not use regular tools such as the Beamer and was led to X39 patches 8:06~X39 patches are a frequency device that activates the body’s stem cells. 8:37~A discussion of exactly what stem cell therapy is, what’s involved, the expense, often making it inaccessible and usually used as a last-ditch effort when all else has failed 9:53~further explanation of the patch, non-transdermal, made of amino acids and salt crystals, activates different reactions In the body 10:36~the science is putting frequencies on the skin that cause other reactions leading to doing some healing 11:04~David Schmidt is a scientist who was hired by the Navy to develop a patch for Navy Seals to replace amphetamines 12:02~Linsey uses a lot of patches now she has all her grandchildren living with her~more patches have been developed 12:24~David Schmidt brought this technology to a friend who was a coach of UCLA swimming, he’s been developing and working on it ever since. Different patches are all based on the frequency 13:15~X39 patch is the holy grail -activates GHK Copper Peptides that decline with age 14:10~It’s just actually about age reversal, have had a 70-year-old test with the body of a 50-year-old 15:00~Helps with all kinds of degenerative diseases, many testimonials, MS, Parkinson’s 16:17~comparison of different frequency devices, AO Scan, Beamer, all are wonderful and if possible used right now to get through these times when we are bombarded with energies, 5G, EMF… 17:20~Linsey had an autoimmune disorder, 15-20 years ago, had to quit her job, “3-year retreat”, trusted spirit, found Kangen water, another healing modality which was expensive but a good investment as she was able to heal. 20:29~Our healthcare systems are frustrating, organ-based, siloed, going from one drug to the next, Band-Aid instead of getting at the deeper reason for illness, no quality of life 22:06~Doctors educated at medical schools funded by big pharma and are taught nothing in regards to energy even though they use technology like MRIs which could be used in healing 23:18 Bruce Lipton~Placebo effect 24:00~Potential for special needs communities is huge with these patches, also for parents and caregivers 24:21~Only restriction is not to use the patches during chemotherapy as it will detox the chemo 25:05 If the patch effect is too strong, take it off for a few hours. Linsey’s experience with retracing 26:36~You won’t want to stop, you will see a decrease in results if you do not continue use, Linsey is very upfront about this. This is an out-of-the-box business paradigm and opportunity! Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks! Points of Light~Part Two~Leigh Anne Bianchi, Founder of Good Citizenship Project, Activating Good Citizens
2022/03/12
SEE SHOW NOTES FOR PART ONE FOR MORE DETAIL! I had the pleasure of interviewing Leigh Anne Bianchi, Founder of Good Citizenship Project recently on TSC Talks. She was joined by her business manager Carla Bell. We had a free ranging discussion covering many topics but all regarding the benefits of the sort of unconventional programming Leigh Anne has developed through GCP and how this meets many of the huge gaping unmet needs for those individuals diagnosed with autism and other special needs that our systems of care have become too siloed and disconnected to address. “Developing a sense of meaning and purpose, social-emotional skills, work ethic, and peer relationships by volunteering, distributing donations, and supporting local farms.” For more information on Good Citizenship Project, FB page: https://www.facebook.com/GoodCitizenshipProject/ phone: (508) 868-0293 email: [email protected] Timestamps for part 2: 0-52 Intro 00:54- Antonio’s Waitress Olivia treats them like humans, the start of the discussion on sexuality and special needs 2:26 All the PC of working w/special needs has made sexuality issues really challenging. People taken advantage of, they are developmentally younger and no one talks about this 5:03 Karaoke, real-world situations help 5:28 Dashboard confessionals, you can say stuff without eye contact when conversations about penises and vaginas come out. Pediatricians recommend using scientific wording, Leigh Anne took all the training on autism/special needs and sexuality and can talk candidly. 9:27 Why questions, keep asking them. See the question behind the action. One client wanted to see Leigh Anne’s breasts, curiosity, she didn’t react or file a report but discussed it with him. So many lives could be ruined if everything is flagged as inappropriate. This population never gets to ask questions 11:06 Leigh Anne had to spend 5 minutes spend w/individual who had sex offender charges in ISP and Leigh Anne knew charges were not true-example 13:16 Paying for Good Citizenship Project….if you have an autism diagnosis, sometimes easier to get funding, agencies often don’t want to pick up those with autism but things changing and agencies can help you get funding to cover through DESE/Wraparound Family Services, Public Partnerships through Participant directed programming conduit, Private pay, PCA funds, DDS Family Respite funds 20:11 Leigh Anne should be paid more for all she offers. Charges $30/hour but will work with families. Leigh Anne does not have a BCBA or other letters after the name that would allow her to be recognized as a service agent but has the lived experience and work experience to exceed those with mere education 23:26 Becoming a non-profit would mean more strings attached, Johnny her horse would have to be certified as a therapy horse, her dog a pit bull mix, too many hoops to jump through. Jack couldn’t have used a log splitter! 26:31 Investor/philanthropist would be ideal with no strings attached. Leigh Anne took a chance w/Camp Marshall, wanting to partner and have it be her home base. If associated with an agency the volunteers would need to get paid. All benefits from GCP are not recognized as beneficial for many who don’t understand the depth of what she does. 31:31 Work to ride is an option or unpaid internship/apprenticeship. So much happens in learning these farm skills that is energetic…deciding how to perform tasks and learning from any mistakes, having the freedom to learn from mistakes like using a pitchfork instead of a shovel for a particular job… 34:21 Farmers giving the flexibility to figure out the approach to completing a job is helpful. So then it’s not regimented, can focus on the end results, not the niggling details and farmwork facilitates executive functioning in this area. Learning at the moment, the Montessori approach is part of Leigh Anne’s process 37:31 Give individual rules, allow them to screw up and figure it out is more powerful than reading how to do something in a book or being told what to do. Forced problem solving, you remember you had to take a different approach. This is empowering! 40:46 GCP NEEDS MONEY TO EXPAND! Fundraisers coming soon. Discussion of fundraisers 43:36 Looking for a home base with specific parameters. She needs to bring her animals. This has been challenging, small private barns are nervous to have special needs population-liability. Leigh Anne looking for a life in a caretaker position 46:21 Jack came in (Jill’s son who participates in GCP). Leigh Anne is looking for a situation where most of the labor at the new setting is done by members of the GCP. She screens applicants for a good match, meets parents and individuals, gives a grace period. Wants it known GCP is a for-profit not an agency. 49:01 But Leigh Anne is more than a job coach. The people she supports are part of her family. “So you want me to pay for you to force my kid to do slave labor” is some people’s attitude. No, they are learning transformative, resume-worthy skills. 51:11 Leigh Anne went to Salter College, able to be successful b/c was focused on one thing. There is real value in jobs that don’t require a degree. People do not see the scope of autism…Ford Motor Co was seeking to hire those on the Autism spectrum b/c of attention to detail/focus. 55:11 One of the goals of GCP is to raise awareness of what an autistic person looks like which has spread by word of mouth, inspiring others to think outside of the box in creating programs for this population. B/c of relationships developed through GCP, Leigh Anne has options-a temporary place to live if needed “if you do good things, they come back”. In our society many expect something in return for every little thing 60:11 Carla Bell is Leigh Anne’s business manager, helping her with a business plan and fundraising has worked in special ed Thanks so much for listening!!! https://tsctalks.com Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

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charlie739574 2019/01/31
Great host
The host of this podcast makes difficult subjects easy to understand. Such a range of topics! The mental health aspect, seizures, autism it’s all he...
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Luckyl7 2019/01/31
So much information!
This is an amazing podcast! So much information that is applicable across a wide spectrum. Information on TSC, autism, seizures, special education, ...
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