Advertise on podcast: Retina UK

Many people with inherited retinal dystrophies (IRDs) ask what they can do to protect their remaining vision and maintain good eye health. In this informative webinar, we'll explore practical steps you can take to support your sight and make the most of the vision you have. Led by Louise Gow, Head of Eye Health, Optometry and Low Vision at the RNIB, this session will cover the importance of regular eye examinations and hospital appointments, recognising changes in your vision, and understanding when and where to seek help. We’ll also discuss low vision adaptations, reducing glare, choosing suitable glasses and glare shields, UV protection, eye safety, and wider lifestyle factors that support overall eye health. Whether you’re newly diagnosed or have been living with sight loss for many years, this webinar will provide practical advice and information to help you feel confident in managing your eye health. Topics covered: - Why regular eye tests and hospital appointments matter - Recognising changes in vision and red flag symptoms - When and where to seek help - Low vision adaptations and support - Managing glare and choosing appropriate glare shields - UV protection and eye safety - Healthy lifestyle choices that support eye health - Making the most of your remaining vision

In this episode of the Retina UK Podcast, we sit down with Tilly Dowler, known to many on social media as @the_blind_stylist. Living with stargardt disease, Tilly uses her platforms to share honest insights into life with sight loss while challenging common misconceptions about visual impairment. We discuss her diagnosis, her journey to becoming more confident about her sight loss, and how she built a supportive online community through social media. Tilly also shares her passion for fashion and beauty, offering practical advice for maintaining personal style, applying makeup, and building confidence after sight loss. The conversation explores her career journey, from running her own boutique to launching a new online styling service, as well as the importance of disability representation in the fashion and beauty industries.

Our monthly e-Newsletter featuring the latest updates from Retina UK.

Professor Robin Ali, Director of the Centre for Gene Therapy & Regenerative Medicine, KCL.

Tina Garvey, Chief Executive, Retina UK.

Stories from some of our fantastic fundraisers. Jess Mortlock, Interim Director of Income Development. Tam Sanford and Lisa Sanford, who have a child living with inherited sight loss.

Our panel of experts share their professional and personal experience to bridge the gap between cutting-edge innovation, including AI, and everyday reality. Barrie Lane, Tech Advisor at Beacon Centre. Keith Dear, Tech Advisor at Sight for Surrey. Mark Baxter, Information and Support Coordinator, Retina UK. Anna Holloway and Ellie Dowdy, Retina UK Tech Peer Support Group volunteers.

Tina Garvey, Chief Executive, Retina UK. Professor Martin McKibbin, Consultant Ophthalmologist, University of Leeds. James Moore, who is living with inherited sight loss. Bhavna Tailor, Chief Executive, Stargardts Connected and Ethan Tailor, who is living with inherited sight loss.

A panel with representatives from biotechnology companies Sepul Bio, Alkeus and AAVantgarde.

Tina Garvey, Chief Executive, Retina UK.

Dr Henry Stennett, Senior Research Coordinator, Retina UK, Mark Baxter, Information and Support Coordinator, Retina UK. James Moore, who is living with sight loss

A panel session with members of our community. Paula McGrath, Deputy Chief Executive, Retina UK

Professor Susan Downes, Consultant Ophthalmologist Oxford Eye Hospital and Honorary Clinical Senior Lecturer at Oxford University. Dr Amanda Salisbury, Consultant Clinical Oncologist at Oxford University Hospitals NHS Trust. Clare Abbott, Senior Eye Clinical Liaison Officer

Our panel of experts share their professional and personal experience to bridge the gap between cutting-edge innovation, including AI, and everyday reality. Barrie Lane, Tech Advisor at Beacon Centre. Keith Dear, Tech Advisor at Sight for Surrey. Mark Baxter, Information and Support Coordinator, Retina UK. Anna Holloway and Ellie Dowdy, Retina UK Tech Peer Support Group volunteers.

Tina Garvey, Chief Executive Retina UK