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This week, Mary and Alex discuss Pinktober, Breast Cancer, and charitable giving. --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message

Reposting this incredible interview with Yohanna Hoehler in honor of Gynecologic Cancer Awareness Month! Yohanna Hoehler (39), is a Vulvar Cancer Survivor and Advocate. She is the founder of the Vulvar Cancer Awareness Forum, a non-profit organization. VCAF focuses on raising awareness and educating on all things Vulvar Cancer and provide support to those who have been diagnosed. Yohanna also actively advocates and lobbies for new Vulvar Cancer research and treatment advancements as most of what we know about this cancer is based on outdated information. IG Handle: @vulvarcancerawareness --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message

In case you're new here, we wanted to kick off Gynecologic Cancer Awareness Month with a retelling of Mary's perspective following Alex's cancer diagnosis. During Gynecologic Cancer Awareness Month (GCAM), visit foundationforwomenscancer.org (link in bio) for information about gynecologic cancer symptoms and treatment, risk and prevention, clinical trials and survivor stories. Gynecologic oncologists are medical doctors with specialized training in treating gynecologic cancers. If cervical, ovarian, uterine/endometrial cancer, vaginal, or vulvar cancer is suspected or diagnosed, seek care from a gynecologic oncologist.  The Foundation for Women’s Cancer (FWC) offers free, downloadable educational materials, many of them available in three languages: English, Spanish, and Mandarin Chinese. These guides can help you learn about the five gynecologic cancers and related topics such as postoperative pain management, financial resources for cancer patients, survivorship and more.  #GynecologicCancerAwarenessMonth #GCAM #MoveTheMessage and #Move4Her --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message

On this week's episode, Alex speaks with Dr. Tania Small.  Dr. Small is the Global Head of Oncology Medical Affairs and Chair of R&D Diversity, Equity, and Inclusion Council at GSK.  They discuss disparities in diagnosis, treatment, clinical trials, and survival rates of uterine and endometrial cancer among Black, Asian, and Hispanic women.  Dr. Small shares her thoughts on ways physicians and pharmaceutical companies, as well as patients, can make changes to bring about meaningful change.  #GynecologicCancerAwarenessMonth #GCAM #MoveTheMessage #WorldGoDay #Move4Her #GynecologicOncology #RacialBias #BlackWomen #advocacy #anchor #podcast #research #spotify #nonprofits Stay Connected  Email Us: [email protected] Instagram:@downthereaware  Facebook: Down There Aware  Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Summary Keywords  Gynecologic Cancer Awareness Month, GCAM, Move The Message, World GO Day, Move4Her Gynecologic Oncology, Racial Bias, Black Women, advocacy, anchor, podcast, research, Spotify, nonprofits --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message

In case you're new here, we wanted to kick off Gynecologic Cancer Awareness Month with a retelling of Alex's cancer story. During Gynecologic Cancer Awareness Month (GCAM), visit foundationforwomenscancer.org (link in bio) for information about gynecologic cancer symptoms and treatment, risk and prevention, clinical trials and survivor stories. Gynecologic oncologists are medical doctors with specialized training in treating gynecologic cancers. If cervical, ovarian, uterine/endometrial cancer, vaginal, or vulvar cancer is suspected or diagnosed, seek care from a gynecologic oncologist. The Foundation for Women’s Cancer (FWC) offers free, downloadable educational materials, many of them available in three languages: English, Spanish, and Mandarin Chinese. These guides can help you learn about the five gynecologic cancers and related topics such as postoperative pain management, financial resources for cancer patients, survivorship and more. #GynecologicCancerAwarenessMonth #GCAM #MoveTheMessage and #Move4Her --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message

This week, Mary and Alex watched the 1944 film “Gaslight” to learn about the origin of the commonly-used term of psychology of the same name. They discuss ways in which they have been gaslit by medical professionals, as well as how to recognize medical gaslight and ways to advocate for your health when a doctor tries to downplay your symptoms. #Podcast #Spotify #Anchor #research #advocacy #cancer #gaslighting #IIH #CSF #ocularmigraine #lumbarpuncture #shoulderdystocia Stay Connected  Email Us: [email protected] Instagram:@downthereaware  Facebook: Down There Aware  Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links What is gaslighting? Examples and how to respond Shoulder Dystocia: Signs, Causes, Prevention & Complications Episode Highlights Intro [0:13] Welcome Back! [1:23] Pickleball  [1:57] Gaslighting [3:05] American 1944 movie [3:40] Mary’s personal gaslighting story [5:28] Shoulder dystocia [6:47] High risk pregnancy [8:35] Elective C-section [9:40] Advocate for yourself [11:34] Alex’s personal gaslighting story [12:05] Idiopathic Intracranial Hypertension (IIH) [12:20] Ocular Migraine [13:15] Lumbar puncture [13:40] Thank you, Merry-Jennifer! [15:20] Cerebral Spinal Fluid  [15:48] Vulvar Cancer Network [19:04] ER doc’s perspective needed [20:03] Opioid crisis [22:50] High pain threshold [23:03] Mary’s colonoscopy follow-up [23:43] Only apology[25:25] Ingrid Bergman & Angela Lansbury [28:33] Medical gaslighting [30:22] Thanks for listening! [31:20] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, cancer, gaslighting, IIH, CSF, ocular migraine, lumbar puncture, shoulder dystocia --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message

This week Mary and Alex discuss the lack of attention to detail that can have devastating results, especially in the medical community. They share personal experiences and cite articles that discuss the consequences that can result from a lack of attention to detail. #Podcast #Spotify #Anchor #research #advocacy #cancer #attentiontodetail #colonoscopy #eliquis #polyps #slowdown #trustyourgut  Stay Connected  Email Us: [email protected] Instagram:@downthereaware  Facebook: Down There Aware  Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Down There Aware Attention to Detail (or the lack thereof) – Hug the Mountain Bristol-Myers Squibb recalls pills with wrong dose - nj.com High Cost of Small Mistakes: Most Expensive Typos of All Time The Relationship of Parental Attitudes and Expectations to Children's Mathematics Achievement Behaviour - Delene Visser, 1987 Episode Highlights Intro [0:13] Welcome Back! [1:25] It is HOT!  [1:32] Back to school time [1:50] College town [2:38] Why today’s topic? [3:06] Attention to detail [3:30] Mary’s colonoscopy [3:50] Bloodthinnners [5:38] Trust your gut [6:14] That’s Sadie’s tail thumping! [6:35] Come prepared [7:17] Polyps [7:48] No one apologized [10:05] Write down names [11:59] Correct spelling of names  [13:30] Pharmaceutical mistakes [15:45] Oops! Battery died!  [16:37] Checks and balances? [16:41] Life and death [17:10] Mary’s theory [17:17] 90’s warm and fuzzy[17:30] Alex’s dishwashing lesson [21:10] My job as your mother [22:14] Children will rise to your expectations [23:16] Everything goes faster [23:27] Alex’s staple removal story [25:41] Thank heaven for Ginny! [28:35] A challenge to slow down [31:00] Thanks for listening!  [31:36] Summary Keywords  Podcast, Spotify, Anchor, research, advocacy, cancer, attention to detail, colonoscopy, polyps, eliquis, slow down, trust your gut --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message

This week Mary and Alex discuss period poverty, what it is and what we can do about it. They describe the kickstart project of the Down There Aware nonprofit and explain how listeners can partner with us to truly make a difference in the lives of young girls who are living the nightmare of period poverty. #Podcast #Spotify #Anchor #research #advocacy #cancer #nonprofits #donations #DownThereAware #education #periodpoverty #femininehygieneproducts #periodshaming #Kelly&Ellie #ReadySetGoboxes  Stay Connected  Email Us: [email protected] Instagram:@downthereaware  Facebook: Down There Aware  Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Down There Aware Periods an open and honest conversation with an 11 year old and her mom Episode Highlights Intro [0:13] Welcome Back! [1:31] Thanks for voting!  [1:42] Spotlight on DTA nonprofit [2:00] Hard to know how to get the word out [3:38] Word of mouth - the best form of advertisement [4:32] First project: Ready, Set, Go (RSG) boxes [4:52] Kelly & Ellie, Season 2, Episode 12 [5:13] Period Poverty [6:02] Local girl’s initiative [8:17] Educational information for RSG boxes [8:45] Period shaming [11:54] Educate men about girl’s periods [12:28] Donations for nonprofit - Thank you! [13:16] Speak into existence - 500 RSG boxes by Christmas! [13:44] Assemble RSG prototypes [14:21] Why Ready, Set, Go? [15:30] How to donate [16:35] Goal by Christmas [17:40] Thanks for listening!  [17:44] Summary Keywords  Podcast, Spotify, Anchor, research, advocacy, cancer, nonprofits,donations, Down There Aware, education,, period poverty, feminine hygiene products, period shaming, Kelly & Ellie, Ready Set Go boxes --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message

This week Mary and Alex discuss nonprofits, what are they and how do they work? They, specifically, discuss their nonprofit, Down There Aware, its purpose, its mission, and how it grew out of the podcast of the same name.  #Podcast #Spotify #Anchor #research #advocacy #cancer #nonprofits #donations #DownThereAware #ProctorandGamble #periodpoverty #femininehygieneproducts Stay Connected  Email Us: [email protected] Instagram:@downthereaware  Facebook: Down There Aware  Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links www.downthereaware.com Episode Highlights Intro [0:13] Welcome Back! [1:22] July was a busy month! [3:48] Four Seasons of DTA [4:48] Sadie’s entrance [5:04] Alex’s four-year mark [5:45] Favorite Chef contest [7:20] James Beard Foundation [7:47] Down There Aware nonprofit [8:22] Tallahassee Democrat interview [9:40] Arts Admin Masters degree [11:20] Funding [13:10] Sadie’s exit [14:01] Ready, Set, Go! boxes [18:00] Kelly and Ellie inspiration [19:42] Volunteers [21:25] Video glitch - UGH! [22:54] Nonprofit documentation on website [23:27] Please consider donating to DTA [24:35] Info on feminine hygiene packaging  [24:55] Video is back!  [25:43] Proctor and Gamble plea [26:01] Toilet paper packaging in the UK  [26:27] Thank you for listening!  [28:04] Summary Keywords  Podcast, Spotify, Anchor, research, advocacy, cancer, nonprofits,donations, Down There Aware, Proctor and Gamble, period poverty, feminine hygiene products --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message

This week Mary and Alex speak with Barasch & McGarry Partner, Sara Director as well as 9/11 Survivor diagnosed with uterine cancer, Karen Smith-Hagman to discuss the World Trade Center Health Program recently naming Uterine and Endometrial cancer to the list of conditions covered by the Victims Compensation Fund. #Podcast #Spotify #Anchor #research #advocacy #cancer #911 #compensation #BaraschandMcGarry #uterinecancer #endometrialcancer #MemorialSloanKettering #WorldTradeCenter  Stay Connected  Email Us: [email protected] Instagram:@downthereaware  Facebook: Down There Aware  Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links https://www.911victims.com Episode Highlights Intro [0:13] Welcome Back! [1:21] Guest introductions [1:29] Uterine cancer [2:22] 9/11 Bill: Victim Compensation [2:42] World Trade Center Health Program [4:10] Compensation [4:20] Educated and informed doctors [4:32] “Never forget” [5:40] Men vs Women [6:15] 69 qualifying conditions [8:06] Karen’s story [8:50] Uterine/Endometrial cancer diagnosis [10:35] Memorial Sloan Kettering [10:45] 5 years NED [13:15] Initial symptoms [16:10] Transvaginal ultrasound [18:40] Total hysterectomy [20:51] Chemotherapy [23:01] Adding uterine cancer [27:16] Accommodations for employees with cancer [29:27] 1 in 3 people get cancer [30:31] Who is eligible for compensation? [33:35] Providers who KNOW what to look for [37:23] Autoimmune and heart conditions [38:57] Incredible work [39:34} Who to contact [40:10] Thank you! [42:58] Summary Keywords  Podcast, Spotify, Anchor, research, advocacy, cancer, 911, compensation,  Barasch and McGarry, uterine cancer, endometrial cancer, Memorial Sloan Kettering, World Trade Center --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message

This week Mary and Alex speak with Cliff Reed, Founding CEO, and Dennis Watson, VP Business Development, of Travera, a company specializing in new technology enhancing the landscape of late stage cancer treatment. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. #Podcast #Spotify #Anchor #research #advocacy #cancer #Travera #genomics #DNA #MIT #FDA #CLIA #LDT #cancerresearch #technology #cancertechnology #innovation #groundbreaking #latestagecancer #stage4cancer #uterinecancer #ovariancancer #leukemia Stay Connected  Email Us: [email protected] Instagram:@downthereaware  Facebook: Down There Aware  Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links TRAVERA Episode Highlights Intro [0:13] Welcome Back! [1:25] Guest introductions [1:44] M.I.T. technology [3:42] Genomics and DNA sequencing [3:58] Limited patients [4:05] New measurement tool [4:48] MIT/Dana Farber Cancer Institute partnership [5:32] Infectious disease comparison [5:48] Multiple Myeloma [6:38] “Cheat code” [7:30] Commercial launch [9:09] Test offered for free [10:15] Working with physicians [10:55] Trial and error process for patient [13:20] Advocacy groups [15:25] Patient profile [16:01] Cancer mutation [17:57] Access to live cancer cells [18:38] Quick turn-around for results[21:30] No additional burden on patient [23:35] Early stage testing and limited data [24:28] Predictive accuracy over 80% [25:12] Late stage cancer patients [26:25] Response from oncology community [28:00] Difference in this x vivo test [29:25} No financial risk [30:00] Great value to research and future patients [31:57] MIT intent [34:57] Great creative minds in scientific research [36:15] Future of Travera’s efforts [36:55] The bigger plan [39:01] FDA approval/CLIA certification [40:05] Laboratory Developed Test (LDT) [40:21] Potential to greatly benefit newly diagnosed patients[41:49] Microchip specs [43:45] Physics vs biochemistry[46:20] Simple comparison to a diving board [47:05] Speed and logic [49:47] If someone is listening today and is interested [51:30] [email protected] [52:23] PHI and HIPAA [53:35] Hearing from those who know best [55:03] Thanks for listening! [56:19] Stay Connected  Podcast, Spotify, Anchor, research, advocacy, cancer, Travera, genomics, DNA, MIT, FDA, CLIA, LDT, cancer research, technology, cancer technology, innovation, groundbreaking, late-stage cancer, stage 4 cancer, uterine cancer, ovarian cancer, leukemia --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message

This week Mary and Alex discuss Sympathy Fatigue. Is it really a “thing” and what can be done if we are suffering from it?   #Podcast #Spotify #Anchor #research #advocacy #sympathyfatigue #Hank Green #HodgkinsLymphoma #LynchSyndrome #leukemia #compassion #cancer #communication #fertility Stay Connected  Email Us: [email protected] Instagram:@downthereaware  Facebook: Down There Aware  Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Are you experiencing compassion fatigue? Hank Green Lynch syndrome - Symptoms and causes - Mayo Clinic Episode Highlights Intro [0:13] Welcome Back! [1:25] Is Sympathy Fatigue a thing? [2:28] Cancer muggle [3:05] Compassion Fatigue [4:45] “I’m sorry.” [5:23] “Es tut mir leid.” [6:49] Cancer jokes [8:35] Communication from patient [9:20] Be intune to the patient [9:28] Difficult subjects [12:23] Leukemia [14:45] Fertility was the cost of treatment [17:30] Lynch Syndrome [18:05] Hank Green [18:18] Parent’s response to sympathy [20:17] “No” is a complete sentence. [21:05] Thanks for listening! [22:06] Summary Keywords  Podcast, Spotify, Anchor, research, advocacy,  sympathy, fatigue, Hank Green, Hodgkin’s Lymphoma, Lynch Syndrome, leukemia, compassion, cancer, communication, fertility --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message