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Champions for HD Podcast

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Rating
★★★★★
5
from
11 reviews
This podcast has
30 episodes
Language
English
Publisher
Shelby Lentz
Explicit
No
Date created
2020/05/15
Latest episode
2024/02/15
Average duration
82 min.
Release period
85 days

Description

Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone.

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Testing, Finding Support, and Mental Health with HD - With Jenna Woodard
2024/02/15
*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how she found out about her own diagnosis. Jenna also talks about the negative testing process she went through and the lack of support and information she received. She shares the challenges of living with a parent who has HD and the difficulties in convincing them to seek help. Lastly, she discusses the importance of sharing personal experiences and dealing with negativity. In this conversation, Shelby and Jenna discuss various topics related to living with Huntington's disease. They talk about dealing with insensitive comments and the importance of not engaging with negativity. They also share their experiences of being open about their condition and the support they have received from the HD community. The conversation touches on the challenges of starting a family when living with HD and the process of applying for in vitro fertilization. They also discuss mental health and coping strategies, emphasizing the importance of finding support and community. Follow Champions/External links: linktr.ee/championsforhd Website Follow Shelby: https://www.shelbylentz.com/ linktr.ee/shelby_lentz Support the show Support the show
The Champions for HD Podcast - Speech-Language Pathology with Paige Wikman
2023/04/16
*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. If you are interested in participating or would like to know more about this study, click here: https://www.championsforhd.org/research to schedule a time with Paige or email her at ([email protected])  Spotify Podcast Link: https://open.spotify.com/show/0UsVV0F... Apple Podcast Link: https://podcasts.apple.com/us/podcast... Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsfo... https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ Support the show
Losing a Spouse With Huntingon's Disease with Amy Abbott
2023/04/02
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Amy Abbott. Amy lost her husband, Jody, to Huntington's Disease. Jody was a musician and had a true love for music. Amy shares the dark moments her and her children had to go through behind the scenes as Jody's HD unfortunately progressed. She is sharing the good, the bad, and the ugly of caregiving. Amy is also our Champion for HD Caregiver for 2022. She was nominated and received the award last year. I hope you enjoy our conversation! Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Subscribe to Kevin's YouTube Channel: https://www.youtube.com/user/backonmyish Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ https://www.facebook.com/shelbylentzmusic/?ref=bookmarks Support the show  Support the show Support the show
"You Only Get one Life...Find Joy" Finding Light in the Darkness of Living with HD with Kevin Bailey
2022/08/23
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Kevin Bailey. Kevin is living with Huntington's Disease and lost his mother to it in a tragic way. Kevin was one of our first donations in 2018 when we became an official 501c3 nonprofit. It was an honor to be able to share his story on our show. I hope you enjoy our conversation! Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Subscribe to Kevin's YouTube Channel: https://www.youtube.com/user/backonmyish Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ https://www.facebook.com/shelbylentzmusic/?ref=bookmarks Support the show  Support the show
Living Gene Positive in a Relationship - with Sarah and Brandon
2022/05/13
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Sarah and Brandon, a couple who are battling HD. Brandon was diagnosed with HD a few years back. They talk about the highs, the lows, and the importance of a strong foundation and partner in a relationship with HD. I hope you enjoy our conversation! Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ https://www.facebook.com/shelbylentzmusic/?ref=bookmarks Support the show (https://www.championsforhd.org/donate) Support the show Support the show
Catching up With Londen & Autumn Tabor - Autumn's Sweet 16 and more!
2022/04/03
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease.  Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntington's--an already incredible rare disease. Any way that they can find to spread awareness: they do. They never stop fighting.  Londen and Autumn have an impressive 75,000+ viewers on their joint TikTok account where they speak about life with JHD and work to both educate and reform thought on JHD. I hope you enjoy our conversation.   Follow Londen and Autumn: https://www.instagram.com/londenandautumn/  https://www.tiktok.com/@londenandautumn?lang=en Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ https://www.facebook.com/shelbylentzmusic/?ref=bookmarks Support the show (https://www.championsforhd.org/donate) Support the show
Living Life Gene Positive with Samantha Peterson
2022/03/28
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Samantha Peterson joins me to share living her life gene positive with Huntington's Disease: the highs and the lows. She shares how she fights everyday not only for herself, but her children. Listen to the episode to hear more about how Samantha is a Champion for HD! Order Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Follow Samantha: https://www.instagram.com/samantha_juliannaa/ Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ Support the show (https://www.championsforhd.org/donate) Support the show
A Year Review of 2021: Over $30,000 Raised! 20 Families Served. Thank you!
2022/01/05
Order Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Brave Breanna Dutch: https://www.huntington.nl/webwinkel/voor-kinderen.html Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Tell Us Your Story: https://www.championsforhd.org/tell-us-your-story Social Media Ambassador App: https://www.championsforhd.org/social-media-ambassador Annual Reports: https://www.championsforhd.org/annual-reports Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/  Support the show (https://www.championsforhd.org/donate) Support the show
The Stages of Huntington's Disease Progression - Growing up with HD Trauma as a Child - With Jessica Geraghty
2021/11/02
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Jessica who shares her tramautic childhood living with her mother, who suffered from HD, and how it effects her currently. She also shares her life living gene positive. Listen to Jessica's full episode to hear more about how she is a Champion for HD! Order Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Follow Domonique: https://www.instagram.com/niqueclaire2/ Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ Support the show (https://www.championsforhd.org/donate) Support the show
An Open Conversation about HD Mental Health and Suicide - How to Overcome the Darkness with Domonique Link
2021/09/17
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Domonique who shares her HD testimony. Her mother battled HD and su*cidal ideations. Domonique has tested positive for the disease and shares her life with a positive diagnosis and the importance of mental health in the HD community. Order Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Follow Domonique: https://www.instagram.com/niqueclaire2/ Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ Support the show (https://www.championsforhd.org/donate) Support the show (https://www.championsforhd.org/donate) Support the show
I wrote a children's book! Brave Breanna: How One Girl Smiled Her Way Through Juvenile Huntington's Disease
2021/09/08
Order Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ Support the show (https://www.championsforhd.org/donate) Support the show
The Importance of a Support System & Being Kinder to Ourselves with HD - Kya Rawlins
2021/08/02
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Kya Rowlins. She shares her journey with HD in her childhood through her mother's battle with the disease, and her life being at-risk. Listen to Kya's episode to learn more about how she is a Champion for HD! Follow Kya: https://www.instagram.com/kya90/  Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_lentz/ https://www.shelbylentz.com/ Support the show

Podcast reviews

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5 out of 5
11 reviews
★★★★★
Sarah Sholar 2021/01/13
Amazing!
Shelby is such an inspiration. This podcast is a must listen!
★★★★★
Regina.mcleod 2020/05/19
Excellent!
Wonderful podcast with an amazing mission!
check all reviews on apple podcasts

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