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The Lucas Project provides recognition, respite, and resources to family caregivers of those with special needs. 16.3 million People in the U.S. are caregivers to a child with special needs. That number is staggering and also a wake-up call.  Most of us know of someone who is caring for a child with special needs and if you don’t personally know of someone, you can be assured that they are in your neighborhood; probably hiding behind closed doors isolated and exhausted. Caregivers often project the perception that “everything is okay,” when in fact, it probably is not okay and they would so appreciate having someone reach out and lend a hand.  It is our job as a society to surround these caregivers and support them through the difficult times, because a child is only as healthy as the caregiver, and society is only as healthy as the families within it. At The Lucas Project, we care for the caregivers. Get Jess Ronne's books from Amazon: https://amzn.to/4b6jQCF Lisa Whittle's books from Amazon: https://amzn.to/3S8EbhQ Atomic Habits: https://amzn.to/48OhrdY Connect to learn more: Website: https://thelucasproject.org/ Email: [email protected] As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

Embracing Another Normal integrates the deep expertise of Kris Burbank, thought leader and coach on parenting children with disabilities, and the wisdom and insights of Dr. Linda Hoopes, award-winning author and researcher on personal resilience. It articulates six fundamental challenges of raising children with disabilities, shares stories of how parents and families have navigated these challenges, and provides a framework for connecting successful strategies to the key building blocks of resilience. Connect to learn more: Link to "Embracing Another Normal" (Amazon): https://amzn.to/3Okf6PP Kris Burbank's Substack "Another Normal": https://anothernormal.substack.com?utm_source=navbar&utm_medium=web&r=f674k Linda Hoopes Substack "Prosilience": https://prosilience.substack.com?utm_source=navbar&utm_medium=web&r=f674k Kris' Website: https://www.krisburbank.com/ Prosilience Website: https://prosilience.com/ "Welcome to Holland": https://www.emilyperlkingsley.com/welcome-to-holland Transcript: https://docs.google.com/document/d/1e26ABhn-7y3MBAvt1bcOOH2c4_LEUEc8/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

NR2F1 Foundation's mission is to support those impacted by an NR2F1 mutation, aka Bosch-Boonstra-Schaaf optic atrophy syndrome through education, advocacy, and research. BBSOAS, also known as Bosch-Boonstra-Schaaf Optic Atrophy Syndrome, is a rare neurological disorder caused by a disruption in the NR2F1 gene. BBSOAS is characterized by a wide array of clinical features, but the most common are vision impairment caused by optic atrophy, developmental delay, and intellectual disability. There are currently a few hundred known cases of BBSOAS worldwide with diagnoses rapidly increasing every month. The phenotypic spectrum of Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) is broad and variable, but the most well-established characteristics include developmental delay/intellectual disability and visual impairment (including optic nerve atrophy, optic nerve hypoplasia, and cortical visual impairment). Other common features include hypotonia, oromotor dysfunction, and mild and inconsistent dysmorphic facial features. Morphological changes in brain structures including thinning of the corpus callosum, and autism spectrum disorder are also considered common. Individuals are at an elevated risk of seizures, including infantile spasms. Genotype-phenotype correlations have been proposed, with individuals with mutations in the DBD typically showing a more severe phenotype, and individuals with whole-gene deletions and truncating mutations tending to have moderate to mild symptoms. Individuals with point mutations outside of the DBD most often manifest the mildest phenotype. BBSOAS is considered a static encephalopathy and has not been shown to be progressive/degenerative. There is no progression of the eye phenotype known, including no known progression of optic atrophy. Connect to learn more: Email: [email protected] Website: https://nr2f1.org/ FB: @NR2F1 Foundation IG: @nr2f1foundation Transcript: https://docs.google.com/document/d/1tiJV3qJmtUPPokZvdbIdlBEF7pgbXEyi/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

JelikaLite - Precision Autism Through Light ASD is a lifelong developmental disorder. The rates continue to rise, the cause remains unknown, and current solutions are inadequate. Autistic individuals frequently have difficulties with communication, social interactions, repetitive behavior, and focus, impacting their ability to integrate into society. JelikaLite believes that all children can lead fulfilling and productive lives. That is why they are developing Cognilum, an innovative solution to enhance the child's communication skills while reducing a child's troublesome autism symptoms, enabling them to improve their lives. Cognilum is a therapeutic wearable device that provides non-invasive brain stimulation with near-infrared light, sensors, and a machine-learning personalization platform. Connect to learn more: Website: https://jelikalite.com/ Sign up for early access: https://jelikalite-23877686.hubspotpagebuilder.com/jelikalite-early-access-campaign Email: [email protected] Floreo: https://floreovr.com/ GoMo Health: https://gomohealth.com/ Transcript: https://docs.google.com/document/d/1nZa0hJ0k-u9b78ppXScSst4sIdJ1gMyY/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

Financial Services for the World’s Largest Minority - Visible National Trust. Visible National Trust is the first national, universally accessible disability financial planning and wealth management solution for special needs families. For families, Visible National Trust is a leap forward in disability financial services, providing intergenerational stewardship of funds while safeguarding access to important benefits, and including the services of global and national financial institutions trusted by millions of people. BlackRock provides ETF model portfolios to the Trust and Huntington National Bank is the Trust’s custodian and sub-accountant. Visible’s complete solution includes all trust services, investment, custody, accounting and tax services, payments, and continuous access to account information. Visible’s asset-based fees are lower than prevailing fees for alternative services and include many benefits not available elsewhere. For financial advisors, Visible National Trust is a complete packaged solution for disability financial planning integral to implementing comprehensive wealth management and retirement plans for families that include a loved one with a disability. Visible seamlessly connects families and financial advisors. FMDT Pooled Trust interview: https://spotifyanchor-web.app.link/e/sIlTDdkjBFb Intro to Special Needs Trusts: https://spotifyanchor-web.app.link/e/7OYmDE3jBFb Estate Planning, Beyond the Basics: https://spotifyanchor-web.app.link/e/zTvINqikBFb Connect to learn more: Website: https://visiblenationaltrust.com/ Email: [email protected] Phone: 800-760-4234 Transcript: https://docs.google.com/document/d/15hjvYTbbAfsHAJKWJJLni0gBTMf6GYLN/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

Supporting Independence and Improving Quality of Life - MapHabit. Habit-building tools are important for everyone to keep routines on track.MapHabit's unique, science-based system helps make each day safer, more productive, and less stressful for individuals and their caregivers. Their approach leverages the power of combining assistive technology with behavior learning. Their innovative system organizes habits, routines, and tasks into visual maps. They are interactive and engaging step-by-step how-to guides that help members complete a daily activity independently, or with help from a support partner or a caregiver.These visual maps make it easier to get tasks done each day. Waypoints Technology article: https://waypoints.substack.com/p/technology-what-can-it-do-for-you Connect to learn more: Website: https://www.maphabit.com/ Phone: 1-855-515-4332 FB: @MapHabit IG: @maphabitatl Transcript: https://docs.google.com/document/d/1i48APJnbSRIXKSxfzknkdn0q39iByvo5/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

Discover your potential as a family through live-in child care. Apex Social Group specializes in live-in care for families with special needs. Their caregivers have backgrounds in healthcare, therapy, and education. Apex Care Professionals are dedicated to child development and providing specialized support to families with special needs. With backgrounds in therapeutic, health, or educational fields, their candidates are dedicated to understanding and supporting the developmental goals of each child they care for. They specialize in providing exceptional care to families with special needs, including autism, developmental delays, ADHD, cerebral palsy, and more. They source our extraordinary candidates from prestigious European and American universities, vocational training schools, hospitals, and globally recognized organizations. Learn more: Website: https://apex-social.com/ Email: [email protected] FB: @ApexSocialGroup Meet their candidates: https://apex-social.com/meet-our-candidates/ Transcript: https://docs.google.com/document/d/12JQx4fshjh71GErprASRFQzEyAZf8hJj/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

It takes a village to raise a child with special needs. Meerkat Village connects you with your child’s providers and supporters in one place. Parents of children with special needs bear the daily struggle of keeping all their child's caregivers on the same page. It requires constant effort to ensure their child can make progress and thrive. Meerkat Village provides a forum for group collaboration and communication among the entire village of adults supporting the child. From therapists, teachers, and specialists to grandparents, neighbors, and friends, everyone is welcome in Meerkat Village. They empower, connect, and create hope for parents and their children’s providers by providing a simple way to track progress and develop strategies. "Superheroes on the Spectrum" (book) "The Village Vision Podcast" Connect to learn more: Website: https://meerkatvillage.com/ FB: @MeerkatVillage IG: @meerkatvillage Link to Transcript: https://docs.google.com/document/d/1XuW2kOFR-mI-G6oTvUqiQxn_-dGadkWB/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

When something feels off, Buoy it! Buoy helps people figure out health issues and find the right care. Their A.I. asks questions and helps narrow down what is going on based on your answers. No more guessing and filling in the blanks. It's like talking to your friend who happens to be a doctor. Editorial Standards They were founded based on the idea that searching for health information online shouldn't be scary and misleading. To combat this, their technology and all of their content are: Reviewed and edited by experts - doctors, clinicians, nurses, and therapists Created to be clear and actionable, not vague and alarmist And backed by clinical research Learn more: Website: https://www.buoyhealth.com/ Email: [email protected] FB: @BuoyHealth X: @buoyhealth IG: @buoyhealth Episode Transcript: https://docs.google.com/document/d/15tQLcHmm2uLZl2BvIHtqZRyU7RicKTCt/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

Dr. Lawrence Fung is an Assistant Professor (University Medical Line) at the Major Laboratories and Clinical Translational Neurosciences Incubator in the Department of Psychiatry and Behavioral Sciences at Stanford University. He received his BS with honors from the University of California at Berkeley, MS in Engineering from Johns Hopkins University, PhD from Cornell University, and MD from George Washington University. Dr. Fung completed his general psychiatry residency, child & adolescent psychiatry fellowship, and postdoctoral research fellowship at Stanford University. Dr. Fung is a researcher and clinician specializing in autism and the father of a neurodiverse teenager on the autism spectrum. He serves as the principal investigator of studies investigating the neurobiology of autism by state-of-the-art molecular neuroimaging and bioanalytical technologies. He studies novel pharmacologic interventions, including pregnenolone. Dr. Fung is the director of the Stanford Neurodiversity Project, which strives to uncover the strengths of neurodiverse individuals and utilize their talents to increase innovation and productivity of society as a whole. Dr. Fung directs the Adult Neurodevelopment Clinic, which specializes in assessing and treating adults on the autism spectrum.  Neurodiversity at Work: https://med.stanford.edu/neurodiversity/NaW.html Imitation Game (movie): https://www.imdb.com/title/tt2084970/ Connect to learn more Stanford Neurodiversity Project: https://med.stanford.edu/neurodiversity.html Transcript: https://docs.google.com/document/d/11Zrtm4dCWxvXYTtWME-f8clJijOn5rns/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

Everyone has the ability to #BeImpactful - Philip C. Clark. Be Impactful, create a plan that enables your child with special needs to live a great life. ENABLE Special Needs Planning, LLC, believes that everyone has the ability to be impactful in the lives of others. This ability is what gives each of us a sense of purpose in life. "80% of families do not have a comprehensive plan for their family, or their child with special needs". Phillip Clark founded ENABLE Special Needs Planning thanks to the positive impact of his younger sister, Sarah, who has Down syndrome. Episode Transcript: https://docs.google.com/document/d/1c1lbsmgL09pZZL42GuUwUS21JwJgGgiC/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true Learn more: Website: https://enablesnp.com/ Online Community (private FB Group): https://enablesnp.com/fb-group-landing-page/ Email: [email protected] FB: @EnableSpecialNeedsPlanning X: @ENABLEsnp IG: @enablesnp As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

The Connected Parent has a comprehensive database and easy-to-use filters to help you connect with the local & online businesses you need, reviewed by families like yours. They are a comprehensive, one-stop hub of resources local to you and reviews for those hard-to-find services your family needs. With their easy-to-use filters, narrowing your search to find therapists, recreational activities, advocates, and other resources in your area has never been easier.The best part? They're building out a community of reviews that gives you on-demand access to insights & recommendations that feel like they came straight from a personal friend. Episode Transcript: https://docs.google.com/document/d/1T8g6BhMypV7wmrjDrLHxLNLHC-557nrI/edit?usp=drive_link&ouid=117716030289987185197&rtpof=true&sd=true Connect to learn more: Website: https://www.theconnectedparent.net/ Email: [email protected] Phone: 877-313-6349 IG: @theconnectedparentsite FB: @TheConnectedParent Accessible Adventures: https://accessibleadventures.net/index.html#/ "The Body Keeps the Score" - https://amzn.to/47ewwVo "Together is Better", Simon Sinek - https://amzn.to/3QIFVgS Dan Palloto's TED Talk about Charity - https://www.ted.com/talks/dan_pallotta_the_way_we_think_about_charity_is_dead_wrong?language=en As an Amazon Associate, I earn commissions from qualifying purchases. For more information about True North Disability Planning you can find us here: Web: ⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠ Waypoints - ⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠ Facebook: @TrueNorthDisabilityPlanning X (Twitter): @NeedsNavigator --- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support