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Brain Talk | Being Patient for Alzheimer's Patients and Caregivers

Advertise on podcast: Brain Talk | Being Patient for Alzheimer's Patients and Caregivers

Rating
★★★★★
4.7
from
12 reviews
Categories
Country
United States
This podcast has
150 episodes
Language
English
Publisher
Being Patient
Explicit
No
Date created
2021/03/09
Latest episode
2026/11/04
Average duration
36 min.
Release period
8 days

Description

Being Patient is the leading online community for Alzheimer's, dementia patients, caregivers. We talk to experts about Alzheimer's news, advice, stories and support! Visit www.beingpatient.com for the latest Alzheimer's news and researches!

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Check latest episodes from Brain Talk | Being Patient for Alzheimer's Patients and Caregivers podcast


What Cholesterol Means for the Brain and Alzheimer’s Risk | Dr. Cheryl Wellington
2026/11/04
This Live Talk is produced by Being Patient with support provided by NewAmsterdam Pharma. As with all of our reporting, the sponsor has no role in choosing guests, shaping questions, or reviewing content before publication.NewAmsterdam Pharma: https://spinoza.longboat.com/?lang=enMost people know that high cholesterol is bad for the heart, but what about the brain? Growing research suggests that cholesterol plays an important role in brain health and may influence the risk of Alzheimer’s disease and other forms of dementia. While cholesterol circulating in the bloodstream is largely separated from cholesterol in the brain by the blood-brain barrier, both can affect how the brain functions and ages.Dr. Cheryl Wellington, a professor and vice chair of research in the Department of Pathology and Laboratory Medicine at the University of British Columbia, studies how cholesterol and the proteins that transport it, including ApoE, influence brain health and Alzheimer’s risk.In this conversation with Being Patient founder Deborah Kan, Wellington explained how elevated LDL, often called “bad” cholesterol, in midlife may increase dementia risk and interfere with the brain’s ability to clear amyloid-beta, a protein associated with Alzheimer’s disease. She also discussed how cholesterol buildup in the brain’s immune cells may contribute to inflammation, particularly in people who carry the ApoE4 gene variant, and why lowering cholesterol earlier in life may offer greater benefits than starting treatment after symptoms emerge. The conversation also explored emerging blood-based biomarkers, including p-tau217 and GFAP, and their potential to help detect Alzheimer’s-related changes before symptoms appear.----If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
What Caring for Her Mother With Alzheimer's Taught Her About Her Own Diagnosis | Shon Lowe
2026/10/27
When Shon Lowe started forgetting things — putting groceries in the cabinet instead of the refrigerator, resetting passwords she’d used for years — her primary care provider told her it was menopause. She knew it wasn’t. She had spent years caring for her mother, diagnosed with younger-onset Alzheimer’s at 58, and she recognized what she was seeing. Lowe, 52, is a longtime caregiver and brain health advocate. Facing a three-month wait for a neurologist, she ordered her own genetic testing, started journaling her symptoms, and walked into that appointment with a file. She was diagnosed with mild cognitive impairment in November 2025. In this conversation with Being Patient founder Deborah Kan, Lowe describes the early changes that worried her, how she built a case her doctor couldn’t dismiss, what being on the other side of the diagnosis has taught her about her mother, and why stigma, medical mistrust and the absence of basic services in Black and brown neighborhoods keep people from getting diagnosed at all. Journey to Diagnosis is a Being Patient series sponsored by Eisai. As with all of our reporting, the sponsor has no role in choosing guests, shaping questions, or reviewing content before publication. Eisai: https://www.eisai.com/index.htmlJourney to Diagnosis: https://beingpatient.com/journey-to-diagnosis/ --- If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
What a Normal Brain MRI Can Miss | Dr. Michael Lipton
2026/10/20
A brain MRI that reads “normal” or “unremarkable” can be reassuring. It can also leave you with symptoms nobody can explain. Dr. Michael Lipton, professor of radiology at Columbia University Irving Medical Center and an attending radiologist at NewYork-Presbyterian, explains what a conventional MRI actually measures — what a radiologist can see with the naked eye — and why that misses a great deal. An expert reading a scan needs roughly 10 percent brain volume loss before atrophy becomes visible. Software measuring the same images can detect around 1 percent. In this conversation with Being Patient’s Mark Niu, Lipton covers why psychiatric and cognitive symptoms so often come with clean scans, how volumetric imaging picks up early hippocampal shrinkage in Alzheimer’s, what his research has found in soccer players who’ve never had a diagnosed concussion, what an ongoing NIH-funded study is showing about the brain after mild COVID, and what he tells patients whose scan looks fine but who know something is off. --- If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
Diagnosed With Alzheimer’s at 46: Inherited Alzheimer’s and the PSEN1 Gene | Francisco Rios and Zahydie Burgos
2026/10/13
Journey to Diagnosis is a Being Patient series sponsored by Eisai. As with all of our reporting, the sponsor has no role in choosing guests, shaping questions, or reviewing content before publication.Eisai: https://www.eisai.com/index.htmlJourney to Diagnosis: https://beingpatient.com/journey-to-diagnosis/ For more than a year, Francisco “Pako” Rios experienced memory lapses, difficulty concentrating, disrupted sleep, and changes in his behavior. His symptoms were initially attributed to depression and anxiety. But Rios, whose father, grandfather, and great-grandmother all had Alzheimer’s disease, suspected something more serious.In 2022, an MRI ordered for an unrelated reason revealed brain atrophy, prompting further testing. Rios was diagnosed with early-onset Alzheimer’s at age 46. Genetic testing later identified a mutation in the PSEN1 gene, which is associated with dominantly inherited Alzheimer’s disease, a rare form of the condition that can affect people decades before the typical age of onset.In this conversation with Being Patient founder Deborah Kan, Rios and his wife and care partner, Zahydie Burgos, discussed the challenges of a diagnosis at a young age, the lack of support services for people living with younger-onset dementia, and Rios’ participation in a clinical trial combining the Alzheimer’s drug lecanemab (Leqembi) with an experimental anti-tau therapy. Despite side effects, Rios explained why he remains committed to the trial and what he hopes his participation will mean for future generations.----If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
What Is Posterior Cortical Atrophy? One Couple's Road to Diagnosis | Scott & Anne Cunningham
2026/10/05
Posterior cortical atrophy is a rare form of Alzheimer's disease that shows up first in vision and spatial processing rather than memory — which is why it is so often missed. Scott Cunningham was a psychiatrist for 40 years. He couldn't cut a board straight. He couldn't assemble a log rack. He stopped being able to read an analog clock, despite a perfect SAT math score. He went through two cataract surgeries before an ophthalmologist realized the problem wasn't his eyes at all. His wife Anne, a social worker, had quietly pieced together what was happening before the MRI confirmed it — a diagnosis the couple first read in a patient portal, before any doctor called. In this conversation with Being Patient founder Deborah Kan, Scott and Anne Cunningham describe the years of subtle signs that preceded his December 2020 diagnosis, why his ApoE4/4 status led his neurologist to advise against anti-amyloid treatment, the gene therapy trial he's now in year three of, and the vision services Anne argues are almost entirely missing from PCA care. They also talk about what has let Scott stay independent — contrast tape, an induction stove, an orange suitcase — and why he still rollerblades every day. Journey to Diagnosis is a Being Patient series sponsored by Eisai. As with all of our reporting, the sponsor has no role in choosing guests, shaping questions, or reviewing content before publication.Eisai: https://www.eisai.com/index.htmlJourney to Diagnosis: https://beingpatient.com/journey-to-diagnosis/ --- If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
Four Years to Get a Memory Test: An Early-Onset Alzheimer's Diagnosis at 60 | Sean Terwilliger
2026/09/29
For four years, doctors told Sean Terwilliger he was fine. At 60, after failing a memory screening by a single point, he was diagnosed with early-onset Alzheimer's. Terwilliger moved through three states and four primary care physicians before one finally gave him the MoCA, a 30-point cognitive screening. He failed it by one point — enough to get him to a neurologist, an MRI and a PET scan that showed significant amyloid buildup. The guidance that followed the diagnosis was that his prognosis was eight to 10 years, and that he should come back in two weeks to start infusions. In this conversation with Being Patient's Mark Niu, Terwilliger describes the four-year fight to be tested, his 18 months and 39 infusions of Leqembi, and the p-tau217 blood test that showed he no longer meets the pathology threshold for Alzheimer's — a result that has left him unable to qualify for the clinical trials he now wants to join. He also explains how writing The ALZBlog and his book ALZ Fired Up! brought him out of the despair that followed diagnosis, and why he gave spousal caregivers a name of their own: sisu. Journey to Diagnosis is a Being Patient series sponsored by Eisai. As with all of our reporting, the sponsor has no role in choosing guests, shaping questions, or reviewing content before publication. --- If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
Is Heading a Soccer Ball Bad for Your Brain? A CTE Researcher Explains
2026/09/22
Does heading a soccer ball damage your brain? Dr. Michael Alosco — clinical neuropsychologist, professor of neurology at Boston University's Chobanian & Avedisian School of Medicine, and co-director of clinical research at the BU CTE Center — explains why chronic traumatic encephalopathy (CTE) risk is driven by the lifetime load of repetitive head impacts, not by how many concussions a player has had. He covers what MRI and blood biomarker studies show about heading and white matter change, why soccer research lags far behind football, whether U.S. Soccer's youth heading limits go far enough, his verdict on Guardian Caps, and what he tells parents who want their kids to keep playing. --- If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter:   / being_patient_  Instagram:   / beingpatientvoices  Facebook:   / beingpatientalzheimers  LinkedIn:   / being-patient  Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
What Is the Best Diet for Brain Health? | Dr. Gil Carvalho
2026/09/10
What we eat can influence our health, but when it comes to protecting the brain and lowering dementia risk, nutrition advice can often feel confusing or contradictory. Which eating patterns have the strongest evidence behind them, and how much can diet really affect cognitive health over time?Dr. Gil Carvalho is a medical doctor and scientist who has a YouTube channel called Nutrition Made Simple, where he reviews the evidence behind popular nutrition claims and explains what the studies do and do not show. His research spans genetics, molecular biology, nutrition, behavior, aging, and neuroscience.In this conversation with Being Patient founder Deborah Kan, Carvalho said the diets linked to better brain health are not one named plan but a pattern: low in ultra-processed foods, high in fiber-rich foods like fruits, vegetables, whole grains, and legumes, and built around healthy fats such as nuts, seeds, fatty fish, and extra virgin olive oil. He explained why the Mediterranean, DASH, and MIND diets are close to interchangeable, what the evidence does and does not support for omega-3s, creatine, MCT oil, ketones, and multivitamins, and why the fear-mongering around seed oils is not supported by research. ----If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
How to Know When It's Time for More Dementia Care, According to a Long-Term Care Expert | Cory Fosco
2026/09/02
For families caring for a loved one with dementia, deciding when home care is no longer enough is rarely simple. The signs are often gradual — a missed medication here, a stove left on there — and knowing when to seek more support, whether through in-home help, adult day care, or a residential community, can feel overwhelming without a clear framework for how to approach it.Cory Fosco has spent 34 years working in long-term care, with experience in social work, admissions, skilled nursing, senior care, and health care technology. He is the author of “The Question of When: A Practical Guide to Knowing When It’s Time for Assisted Living, Memory Care, or Skilled Nursing.”In this conversation with Being Patient’s Mark Niu, Fosco discussed the safety, medical, and social signals that suggest a person with dementia may need a higher level of care, and why families so often wait until a crisis forces their hand. He broke down the range of care options, from in-home help and adult day care to assisted living, memory care and skilled nursing, and shared what to look for, and which questions to ask, when touring a community. Fosco also addressed common misconceptions about Medicare and long-term care costs, and offered guidance on how families can build a foundation now so they aren’t forced into a rushed decision later.----If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
The Stimulated Mind: How Everyday Habits Shape Brain Health | Dr. Tommy Wood
2026/08/25
Brain health is shaped by more than age or genetics. The way we exercise, eat, sleep, manage stress, support our metabolism, and stay engaged with the world around us may all influence how well the brain functions over time.Dr. Tommy Wood, associate professor of pediatrics and neuroscience at the University of Washington, studies brain health across the lifespan, from the neurodevelopment of infants born preterm to cognitive aging in older adults. He directs preclinical research in the University of Washington’s Division of Neonatology and is the author of “The Stimulated Mind,” a book on the science of keeping the brain sharp at any age.In this Live Talk with Being Patient founder Deborah Kan, Wood discussed how neuroplasticity works, why the adult brain makes almost no new neurons even as the connections between existing neurons keep changing, and which activities can build cognitive reserve. He also addressed the long-term brain health risks tied to preterm birth and concussion, the supplements with the strongest evidence behind them, and the daily habits, from exercise to sleep to social connection, that he relies on himself.----If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
What to Remember When You Are Forgetting: Living Well With Dementia | Dr. Zaldy Tan
2026/08/18
A dementia diagnosis can raise difficult questions about what comes next: How do you know what changes to expect? How should families prepare? And how can someone continue to live well as memory loss progresses?Those are some of the questions Dr. Zaldy Tan addresses in his new book, “What to Remember When You’re Forgetting: How to Live and Thrive With Memory Loss, Alzheimer’s and Other Dementias.” Tan, director of the Memory and Healthy Aging Program at Cedars-Sinai Medical Center and a professor at the David Geffen School of Medicine at UCLA, guides readers through the full spectrum of memory change, from recognizing early symptoms and pursuing an evaluation to navigating the different stages of Alzheimer’s and other dementias.In this Live Talk with Being Patient founder Deborah Kan, Tan discussed many of the issues families face, including what new blood-based Alzheimer’s biomarkers can and cannot tell us, how behavioral symptoms such as hallucinations and delusions differ across dementia types, and why getting a precise diagnosis matters. He also explained why preparing early, having conversations about future care, making new memories, and maintaining a sense of purpose can help people and families make the most of the years ahead.----If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
How Urinary Tract Infections Trigger Delirium in People With Dementia | Dr. Shouri Lahiri
2026/08/12
Urinary tract infections (UTIs) are among the most common infections in older adults, but in people living with dementia, they can trigger a sudden and dramatic change in behavior and cognition. A UTI that might cause mild discomfort in a younger, healthier person can instead set off delirium — an acute, fluctuating state of confusion — in someone with Alzheimer's or a related dementia.Dr. Shouri Lahiri is director of the Neurosciences Critical Care Unit and Neurocritical Care Research at Cedars-Sinai and leads the Lahiri Lab. His research focuses on the inflammatory mechanisms that link acute illnesses and infections to delirium and cognitive decline, including the role of immune signaling in brain changes during infection.In this conversation with Being Patient founder Deborah Kan, Lahiri explained why up to one-third of older adults with a UTI can develop delirium, and why that risk is even higher for people with dementia, who have less cognitive reserve to draw on. He discussed why early antibiotic treatment is critical and what caregivers can do — from monitoring hydration and sleep-wake cycles to recognizing subtle signs of urinary discomfort — to help prevent and manage delirium at home. He also shared where his lab's research into anti-inflammatory treatments currently stands.----If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
Inside ‘Memory Generation,’ an Interactive Theater Work About Living With Dementia | Sara Zatz & Sherrine Azab
2026/07/29
The experience of dementia, for people living with memory loss and for the family members and friends who care for them, is often told through the language of loss. But there is a growing effort to change that, creating work that centers connection, humanity, and what remains. One of those projects is “Memory Generation,” an interview-based theater production set in a memory cafe, where people affected by dementia gather in a space built around creativity and community.Memory Generation was created by Sara Zatz and Sherrine Azab and premiered this year at La MaMa in New York City. Zatz is the artistic director of engagement at Pink Fang,, where she develops community-based work rooted in first-hand interviews. Azab is a Detroit-based theater director and co-director of the ensemble A Host of People. Both drew on their own experiences as family caregivers for loved ones living with dementia, as well as interviews with people across the country and the lived experiences of the show’s performers.In this Live Talk with Being Patient’s Mark Niu, Zatz and Azab discussed how they built the production, why they set it inside a memory cafe, and how they worked to portray caregiving without reducing it to its hardest moments. They also reflected on questions of consent and whose stories get told, the strain that limited resources place on caregivers, and how the arts and community might help build what they describe as a more dementia-friendly society.---If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
I’m Still Me: Scott Redfern on Living With Alzheimer’s | Scott Redfern
2026/07/28
Journey to Diagnosis is a Being Patient series sponsored by Eisai. As with all of our reporting, the sponsor has no role in choosing guests, shaping questions, or reviewing content before publication.Eisai: https://www.eisai.com/index.htmlJourney to Diagnosis: https://beingpatient.com/journey-to-diagnosis/Scott Redfern first noticed cognitive changes in his mid-50s, when he began struggling to find words during stressful meetings and conversations at work. Because Alzheimer’s disease ran in his family, he sought medical guidance, but early cognitive testing and an MRI did not provide clear answers. After advocating for further evaluation, an amyloid PET scan confirmed amyloid buildup in his brain. Redfern, now 62, has since retired and is receiving Leqembi, also known as lecanemab, an anti-amyloid treatment approved for people in the early stages of Alzheimer’s.In this conversation with Being Patient’s Mark Niu, Redfern discusses the emotional impact of his diagnosis, the importance of finding compassionate care, and why patients may need to advocate for themselves when they know something is wrong. He also shares how writing his Substack newsletter “I’m Still Me,” volunteering, hiking, and staying connected with friends have helped him preserve his sense of identity. His message to others experiencing cognitive changes is that seeking answers early can provide access to treatment, support, and more time to plan how they want to live.----If you loved this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/
George King on Alzheimer’s Early Signs, Treatment, and Choosing to Live Fully | George King
2026/07/22
Journey to Diagnosis is a Being Patient series sponsored by Eisai. As with all of our reporting, the sponsor has no role in choosing guests, shaping questions, or reviewing content before publication.George King’s work spans film, theater, writing, and photography. With both parents having lived with dementia, King was already attuned to the possibility of cognitive change when he began noticing subtle shifts in his own memory. A word game on his phone eventually became an unexpected warning sign, prompting him to seek evaluation from a neurologist. Today, he documents his experience on Instagram at @dancing.with.delirium, using his platform to share what it is like to live with Alzheimer’s.In this conversation with Being Patient founder, Deborah Kan, King reflects on the path to diagnosis, the role of Leqembi in his treatment and the importance of finding a neurologist who answers questions clearly. He also discusses the daily adaptations that help him manage frustration, stay independent and continue traveling, creating, and engaging with the world. For King, living with Alzheimer’s is not about fighting the disease, but learning how to negotiate with it while continuing to live as fully as possible.----If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/

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4.7 out of 5
12 reviews
★★★★★
JYC-L 2023/05/16
Thanks
Very helpful and glad to find ur podcast to help managing the ‘journey’ with more clarity.
check all reviews on apple podcasts

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