Advertise on podcast: Mogil's Mobcast-A Scleroderma Chat

Today’s topic is one I’ve wanted to discuss for a very long time and one that’s particularly troubling to me: calcinosis. I was absolutely thrilled when Dr. Ariane Herrick agreed to join me for this conversation. She is incredibly knowledgeable on the subject and shared such valuable insight and information about this challenging condition. I’m so grateful for her time and expertise Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today, I’m joined by two incredible guests: Ted Haugh, who was finally diagnosed with systemic sclerosis in 2022 after symptoms began back in 2016 and five doctors later; and his wife, Erin, who not only cares for Ted but also lost her mother to scleroderma when she was just 17. Together, they share their powerful journeys and perspectives. Let’s listen to their stories. Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today’s guest is Dr. Kathryn Torok, a pediatric rheumatologist at the University of Pittsburgh and UPMC Children’s Hospital of Pittsburgh, where she directs the Pediatric Craniofacial Scleroderma Clinic. Scleroderma in children is rare, about five in 100,000 develop localized disease, and only about one in a million develop systemic disease. It's crucial to treat to target as early as possible. I learned so much from Dr. Torok about how scleroderma affects children and the best approaches to care. Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today’s guest is Dave Hanson, who shares his journey from his first confusing symptoms to finally receiving a diagnosis. It all began in the fall of 2019, when Dave started experiencing unusual symptoms — painful cramps and a vague but unsettling feeling that something wasn’t right. By early 2020, just before the pandemic, he noticed swelling in his hands and went to the ER. With no signs of Raynaud’s, doctors initially diagnosed him with psoriatic arthritis. It would take another year before he received the correct diagnosis: diffuse cutaneous scleroderma. Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today’s guest is the incredible Dr. Sara Reardon, a renowned pelvic floor physical therapist, author, and founder of V-Hive, a groundbreaking app for pelvic health. I wanted to have Dr. Reardon on the show because nearly 80% of people living with scleroderma are women, and many face challenges such as urinary issues and fecal incontinence topics we don’t talk about enough. Dr. Reardon offers thoughtful, practical, and empowering ways to address these concerns. Her book, Floored, is full of helpful guidance, and even at 66, I found myself learning so many things I wish I’d known years ago.  Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today I sit down with Dr. Reza Movahed, an oral and maxillofacial surgeon who’s making a real impact in the scleroderma community. As scleroderma patients we  know how this disease affects the mouth. Dr. Movahed helps patients regain function and comfort, and the surprising role sleep plays in maintaining oral health. Dr. Movahed was a crowd favorite at our July conference. Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today’s guest is Dr. Laura Hummers, a rheumatologist and co-director of the Scleroderma Clinic at the Johns Hopkins Scleroderma Center. In our conversation, we dive into the different phenotypes observable characteristics of scleroderma, as well as the three major antibodies commonly found in patients and how they aid in diagnosis. This episode is packed with valuable insights and information you won’t want to miss. Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today’s guest, Scleroderma Warrior Dr. Joseph Washington, is the definition of resilience and perseverance. His journey began with Raynaud’s symptoms in junior high, but it wasn’t until pharmacy school that he was diagnosed with diffuse systemic sclerosis. So much has happened in just four years since then, and I can’t wait for you to hear his inspiring story.  Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today’s guest is another incredible scleroderma warrior, Natalie Puccio. As many of you know, no two scleroderma journeys look exactly alike. Natalie and I discovered we had so much in common—both personally and in our symptoms—which made our conversation especially meaningful. One big difference, though, is that Natalie was diagnosed at just 24 years old and went on to have three children while living with scleroderma. She’s an amazing resource for anyone navigating questions or concerns about pregnancy and parenting with this condition. If that’s something you’d like support with, let me know and I’ll be happy to connect you with her.  Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today’s guest is rheumatologist Dr. Jessica Gordon. Together, we explore two topics that every scleroderma patient is familiar with skin and Raynaud’s.Dr. Gordon explains the three stages of skin progression in scleroderma, the challenges patients often face, and the treatments available. We also touch on Raynaud’s our discussion may be shorter, but it’s filled with helpful insights.I truly enjoyed this conversation with Dr. Gordon, and I know you will too. Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today’s guest is another incredible scleroderma warrior. Kristina Hamilton was diagnosed in 2022 at just 32 years old, while raising three young children. Like so many women, she was initially told her symptoms were simply due to stress. Not long after, she found herself hospitalized, her weight dropping from 120 to 68 pounds. Her life changed almost overnight. Yet Christina’s story is one of resilience, rising above her diagnosis to share her journey and inspire others. Join us as we hear how she faced her toughest battles, found her voice, and even landed in the pages of People magazine. Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today’s guest is Dr. Ebru, a dynamic force in the world of skincare. With a background in molecular medicine, immunology, and cosmetic chemistry, she created her skincare line, AveSeena, from the ground up. She was one of the first to connect inflammation, “inflammaging,” the immune system, and the skin microbiome in the development of her products. Beyond her scientific expertise, Dr. Ebru brings an upbeat energy and a wealth of valuable insights that you won’t want to miss. Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today’s guest is Shubhda Chaube. Shubhda is a scleroderma warrior who was diagnosed just a year ago on her 47th birthday, no less. Despite being early in her journey, she’s jumped in with both feet: attending multiple support groups, including one based in India, and starting a thoughtful blog called Calm Core Cozy Layer. She’s also working on a powerful project called From Patient to Pattern Seeker. Let’s learn more about her journey and the projects she is working on. Shubhda's blog, Calm, Core & Cozy Layers Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

As many of you know, I love to move and I’m always eager to share that energy. But I also understand that for some, especially those living with scleroderma, exercising can feel overwhelming. That’s why I’m thrilled to be joined by Will Gregory, a physiotherapist with over 20 years of experience working with the scleroderma community. Will shares powerful insights on why fatigue, not pain, is often the biggest barrier to physical activity. In this episode, he offers practical, doable strategies to stay active, including exercises for the hands and mouth. Whether you’re just starting out or looking for new ideas, you’ll find something valuable here. Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify

Today, we have an inspiring story of resilience, purpose, and advocacy. Our guest is Perry Bray, he was diagnosed in 2018 with diffuse systemic sclerosis, Perry faced life-altering changes, including stepping away from his beloved football and ministry work. But rather than let the diagnosis define him, Perry chose to redefine what it means to live with this rare disease. He became a powerful voice in the scleroderma community, joining the Renew Program and the Peer Mentor Program through the University of Michigan. He also shares his experiences and insights through his personal blog, creating a space of hope and connection for others. Perry’s journey is one of courage, adaptation, and impact and today, we get to hear it in his own words. Understanding Hypophosphatemia: Recognition, Diagnosis, and TreatmentEndocrine experts distinguish Hypophosphatemia from osteoporosis & osteomalaciaListen on: Apple Podcasts   Spotify