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Send us a text On this episode of the podcast I am fortunate to be joined by Karen, Emma and Oonagh to discuss their campaign group #ThereForME.  They came together to form #ThereForME following personal experiences of either living with ME, Long Covid and/or caring for partners with severe ME. They are a small group who are making a huge impact.  We talk about their roles within the campaign group, how they came together and what they have done in such a short space of time.  The group talk me through the campaign #FundThePlan which is raising awareness on a new delivery plan for ME that has been a work in progress for around 3 years for ME, looking at research, attitude and education and living with ME. The government has stated there are no plans to fund the plan, which will have a continuing impact around the lack of resources for ME. The  #FundThePlan is something everyone can get involved with, by creating a short video asking Ashley Dalton and Wes Streeting to make a difference and  #FundThePlan. If you are living with the condition (and are able), caring for someone or a supporter/advocate please take the time to create your #FundThePlan video. The templates and information can be found across the #ThereForME social media platforms the links  can be found below, and if you aren't already please support and follow the group on social media.  To find out more have a listen to this episode, thank you for listening to the podcast, please share with anyone you feel it may help. As always take care #onedayatatime  My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text The 15th March 2025 marks International long covid awareness day, this year is also the five year milestone of the pandemic. For many it will also be reaching their personal 5th year of living with long covid.  Kerry and I wanted to mark this milestone with a very organic chat about where we are now, what we would like people to know and understand. We reflect on our personal journey's, the millions of people (of all ages) whose lives have been affected and changed. The losses and the gains in the form of a large and supportive community, we discuss how in the darkness and uncertainty the ME community reached out to let us know we are not alone. We discuss lack of understanding, the continued challenges however we also wanted to celebrate the amazing professors, scientists, consultants, doctors, advocates, charities and support groups, and our families and friends that are by our sides. We discuss the impact chronic conditions have on those we love.  We celebrate and thank everyone who stands in solidarity and while this is not an anniversary or something any of us wanted, it is an opportunity to shout louder, have our voices heard and make sure none of us feel alone. #solidarity #onedayatatime  My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text I am so pleased to be back recording the podcast, thank you for your continued support. I am pleased to have returning guest Patrick Ussher join me on this episode.  Patrick Ussher has had ME/CFS for 7 years. He has written a book ‘Understanding ME/CFS & Strategies for Healing’. which is now available as an audible, ebook or paperback copy. Click on the link below to find out more.  In  the book he communicates some of the latest, most exciting ME/CFS research as well as strategies he has used to improve his quality of life. The book is laid out with a broad audience in mind, inclusive of those living with ME/CFS and Long covid, their families and/or carers and medical professionals. It contains links to the relevant research and chapter summaries which are really helpful.  In this episode of the podcast we discuss his book and go into more detail around the section of the book covering (PEM) post exertional malaise, and the research findings of Professor Klaus Wirth and Professor Carmen Scheibenbogen. This is an interesting conversation with light bulb moments. We discuss how PEM is a nemesis for so many living with these conditions, and what the research findings suggest is happening at cellular level. We touch on pacing in the absence of medical treatment and  how important, although extremely challenging pacing is to avoid PEM.  Patrick, talks about mitodicure, a potential medication to treat patients with post exertional malaise. This is in its infancy, in terms of requiring funding and clinical trials, more information is available via the link in the show notes. To find out more about this and lots more have a listen to this episode.  Links from this episode:  More about Patrick: https://www.patrickussher.com YouTube channel: https://www.youtube.com/@me-cfs-strategiesforhealing  To see the main options for buying Patrick’s book in ebook, paperback or audiobook:  https://books2read.com/u/bOk9J0 Wirth’s ME/CFS pill ‘Mitodicure’: https://www.mitodicure.com The first Wirth and Scheibenbogen paper on a ‘Unifying Hypothesis for ME/CFS': My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text In this episode of the podcast, Robin McNelis joins me again for part 2 of a series where we aim to cover a variety of topics which will support pacing/micropacing and much more. In this episode we discuss the exertion types and what uses energy, we recap on what pacing is and why it is important when you live with a chronic condition such as ME and long covid. Robin discusses the principles of pacing and the varying forms of pacing, we discuss listening to your body and the challenges of this with PEM/PESE. Robin explains how monitoring your HR/HRV is important, what is available to monitor this data and how to understand what level to set your alerts at to remain within the anaerobic threshold. We discuss the lactate threshold and Robin explains the zones of this threshold and how important it is to remain within the lactate threshold, especially those with PEM. Robin advises how the lactate threshold can be tested at home, and clinical testing. We additionally discuss how those with Orthostatic intolerance, PoTs can find it challenging to maintain their heart rate within their threshold due to heart rate spikes. Robin gives some great advice on how to support this and lots of other amazing information and advice throughout this podcast, so grab a cuppa and have a listen. As always thank you for listening to the podcast, take care #onedayatatime Links from today's episode Website: https://www.robinthephysio.co.uk https://twitter.com/robinthephysio https://www.instagram.com/robinthephysio  My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text In this episode I have returning guests; Patrick Ussher a person living with ME/CFS for the last 6 years, he has a Youtube channel "Understanding ME/CFS" in which he talks about research into ME/CFS and Long Covid in an accessible way. He has written a medical hypothesis on the potential cause of excessive thirst following being misdiagnosed with psychogenic water drinking. I also have Peter Deen, whom is the founder of a start up company Streasure4health, Streasure4Health is developing an objective diagnosis and scalable diagnostic sensor for LongCovid and ME/CFS, which are rooted in their underlying mechanisms. It has developed an innovative approach to clinically map metabolic stress for the first time. Following on from the last podcast we discuss Patrick's personal journey with ME/CFS, how he had excessive thirst and would drink up to 20 litres of fluid per day. Patrick explains how this led to medical gaslighting following a hospital admission and subsequently his journey to his book "The myth of primary polydipsia" which is free to download, press on the link below for your copy. Peter subsequently contacted Patrick and they have collaborated since. Listen to this episode of the podcast to find out more, and check out the links below. As always thank you for listening to the podcast, take care #onedayatatime. Links from this episode: More information on Patrick Ussher: https://www.patrickussher.com Patrick Youtube channel; Understanding ME/CFS: https://www.youtube.com/channel/UC8p46sk36RDASjeGHhF9G1A/ Free book to download - The Myth of primary Polydipsia by Patrick Ussher: https://www.themythofprimary.polydipsia.com Book - Waterlogged by Tim Noakes: https://g.co/kgs/kQ7uQuP Medow study on Oral Rehydration Solution in POTS as effective as saline IV:  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6815702/ Downregulation of Renin-Angiotensin-Aldosterone System (salt retention hormonal network) in ME/CFS:  https://pubmed.nc My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text In this episode of the podcast I have guests Patrick Ussher a person living with ME/CFS for the last 6 years, he has a Youtube channel "Understanding ME/CFS" in which he talks about research into ME/CFS and Long Covid in an accessible way. He has written a medical hypothesis on the potential cause of excessive thirst following being misdiagnosed with psychogenic water drinking. I also have Peter Deen, whom is the founder of a start up company Streasure4health, Streasure4Health is developing an objective diagnosis and scalable diagnostic sensor for LongCovid and ME/CFS, which are rooted in their underlying mechanisms. It has developed an innovative approach to clinically map metabolic stress for the first time. We discuss how Patrick and Peter met and how this led to their collaborations. We will delve in deeper and discuss Patricks personal journey, experience of medical gaslighting and the eventual publication of his book, The myth of primary polydipsia on a future episode. We talk in this episode about metabolic stress, research, future projects and diagnostic tools from Streasure4health. Peter explains the science behind metabolic stress and how it affects the physical and cognitive function. He explains how his previous research and scientific knowledge are supporting the potential development for clinical diagnostics of  ME/CFS, and Long Covid via blood sampling, however this is in its infancy without clinical trials etc. Peter explains the lack of funding ME/CFS has experienced for decades, prevents advancement of the development of diagnostic and medical support tools to help people living with these chronic conditions. Have a listen to learn more about this and much more from this episode. As always thank you for listening to the podcast, take care #onedayatatime Links mentioned in this episode: Streasure4health website: https://www.streasure4health.com/about-us Dutch long covid foundation website: https://www.stichtinglongcovid.nl/ Dutch long covid foundation donation page - (disclaimer; I have no affiliation with this foundation)  https://stichtinglongcovid.koalect.com/nl-NL/p/help-mee-doneer/st My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text This is part 1 of a series with Robin McNelis, Clinical Specialist Cardiorespiratory physiotherapist. In this episode we discuss pacing and micro pacing, how it can be challenging to understand and to navigate. Robin explains the principles of pacing, identifying triggers, the lactate threshold and how to break down tasks and why this is important. Robin shares his own journey and how he identified his activity triggers and applied micro pacing. He explains how certain tasks can use the same energy requirement however the mechanics/movement of certain tasks can be more of a trigger spiking the heart rate and causing PEM/PESE. Robin discusses the difference between a strength issue and a fatigue issue. How it is not always understood that PEM is a physiological issue, not a muscle wasting issue. We talk about the lactate threshold and the protocol Robin has developed to test a person's lactate threshold. We will discuss this further on a future podcast episode. Have a listen to this episode of the podcast to find out so much more; if you would like to contact Robin his details can be found below. Thank you for listening to the podcast and as always #onedayatatime. Links from today's episode Website: https://www.robinthephysio.co.uk https://twitter.com/robinthephysio https://www.instagram.com/robinthephysio My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text This is part 3 of the short series of podcasts with the wonderful Rachel Jessey from Benourished. Rachel has so much knowledge and experience which is why we have discussed several interrelated topics over the 3 podcasts.  In this episode we focus on disrupted sleep, the process of natural  melatonin and cortisol to support and regulate the sleep pattern and the wake pattern in correlation with the circadian rhythm. We talk about natural light vs artificial light to support people who are bed bound or light sensitive, meeting the person where they are with their chronic illness.  Rachel and I discuss the benefits of introducing light during sunrise to release the natural cortisol triggering the healthy cortisol awakening response.  Rachel explains how having mobile phones and wearing smart watches during the night causes sleep disruption, this is because they are all connected to the wifi and emit electromagnetic frequencies, these can destabilise electrons, she explains how if you have MCAS the electrons are already destabilised. We discuss the importance of food for energy and the cortisol levels and avoid low blood sugar levels which takes the body into "fight or flight". Have a listen to the podcast to find out so much more. Thank you so much for listening, as always take care #onedayatatime **Disclaimer **This podcast is for informational purposes only and does not constitute medical or professional advice. In this episode, we discussed EMF (electromagnetic fields), their sources, and the use of wearables. Please note that while wearables typically use Bluetooth rather than WiFi, Bluetooth is still a source of EMF exposure. Any reference to CGM in this episode is not related to CGM (continuous glucose monitoring) devices used for medical purposes. Links from this episode: Rachel's details: https://www.benourished.co.uk Email: [email protected] Lumie lights https://www.lumie.com/?gad_source=1&gbraid=0AAAAAD_riileLYc6GY0VVqc7s2WyLYPw_&gclid=Cj0KCQjw0Oq2BhCCARIsAA5hubV7i1esrD8JF3Ogs3TVl4gyOlV-BxTRkyFFcMkoAVyLlWeNXBplPI4aAlHOEALw_wcB My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text Following on from the last episode of the podcast, as promised this is part 2 with Rachel Jessey from Benourised. We continue and expand on the short conversation we had at the end of the last episode on faecal implant, Rachel has so much knowledge and this is a really interesting topic. We also talk about the circadian rhythm and how we can reset this rhythm which supports the natural absorption of vitamin D, sleep, digestion and more. I explain what I put into practice during my recent holiday and what the impact this has had , listen to this episode of the podcast to find out more. Rachel talks about the benefit of natural light thinking about the full spectrum of light, sunrise and sunset. Rachel and I talk about the different severities of chronic conditions and how we can support and meet patients where they are in their journey, and what benefits this can have. We touch upon the benefit of red light and will have a part 3 to this podcast to discuss this in more detail. This is another podcast filled with lots of information, I really appreciate Rachel joining me. As always thank you for listening to the podcast #onedayatatime   Links from this episode: Rachel’s details: https://www.benourisehed.co.uk/ Email: [email protected] Jack Ruse https://jackkruse.com/ Alexander Marakovsky https://www.longdom.org/open-access/the-industry-originated-probiotic-bacteria-role-in-covid19-60345.html Documentary: Hack Your Health: The Secrets of Your Gut https://www.netflix.com/title/81436688  My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text In this episode of the podcast I talk with a fantastic returning guest Rachel Jessey. We talk about all things gut related and the microbiome, Rachel explains how these can be effected by the Circadian rhythm and also how and what we can do to help support a "healthy gut". Listen to Rachel talk about a study that supports the thought process that the circadian rhythm is an important factor for gut health. Rachel explains how important the cortisol is within this rhythm, we expand on how the Cortisol can be low in people with Long Covid/post viral conditions. We discuss symptoms challenges and how treatment that we may need has an adverse effect on the gut, but what can we do about it? Rachel shares some little nuggets that may be able help counterbalance those effects. We briefly touch on faecal implant and this will be expanded on in a later podcast! Rachel has an educational course available; HIT and MCAS Masterclass, the links for this are below. As always thank you for listening to the podcast, #onedayatatime Links from this episode: Rachel’s details: https://www.benourisehed.co.uk/ Email: [email protected] Jack Ruse https://jackkruse.com/ Alexander Marakovsky https://www.longdom.org/open-access/the-industry-originated-probiotic-bacteria-role-in-covid19-60345.html My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text In this episode of the podcast I am grateful to speak with Gary and Karen, they talk with me openly about their acute and Long Covid journey as a married couple. We discuss how long covid impacts life and "the person we once was", Karen reads an impacting piece she wrote through a creative writing group titled "The goldfish bowl". I am sure this will resonate with many. Gary and Karen have been involved with fund raising and their local community pre pandemic and although things have changed for them, their kind and supportive hearts have led them to running an online and now also face to face Long Covid support group in their local area, listen to find out more, thank you so much to both Gary and Karen for joining me #onedayatatime Links from this episode: Long Covid Zoom Support group is held every fortnight on a Monday morning at 10.30 am and our next meeting, after the podcast, will be on July 22nd: To Join Zoom Meeting https://us02web.zoom.us/j/89081011346?pwd=MDZsNUJ4WlNHVVlSZEdvTiszMFBZZz09 Meeting ID: 890 8101 1346 Passcode: 123456 Karen and Gary have said “Although we hold the group for people who live on the Fylde coast, as we know how the local clinics and referrals work, others are welcome to join” Facebook page:  https://www.facebook.com/groups/387302115930921/ My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text In this episode of the podcast, I have returning guest Rachel Hext. Rachel and I talk ahead of the UK general election, we discuss the floors, failings and ongoing issues around the pandemic, clean air and PPE.  Rachel talks about her advocacy work including being part of media interviews and Panorama, and specifically Keyworker petition. She recalls the groups day at number 10 delivering their petition, the impact of this and support from certain MP's. We reflect ahead of the general election on the doorstep clapping at number 10 and the infamous WhatsApp messages and documents relating to Long Covid.  This podcast is filled with broad and relevant discussions, from children, clean air, teachers, retail workers, disability, gaslighting and so much more.  As always thank you for listening to the podcast #onedayatatime  Links from todays episode:  APPG on coronavirus- report Dec 2020 https://d3n8a8pro7vhmx.cloudfront.net/marchforchange/pages/326/attachments/original/1606989975/APPG_on_Coronavirus_Interim_Report_December_2020__%282%29.pdf?1606989975 Recommendations- compensation scheme https://www.pslhub.org/learn/coronavirus-covid19/appg-on-coronavirus-long-covid-report-22-march-2022-r6432/ Breathtaking  https://www.itv.com/watch/breathtaking/10a4089?gad_source=1&gclid=CjwKCAjwydSzBhBOEiwAj0XN4O9R3xoNuA0z2Fw30GrDFjhuzxO4z-UPFtw3e4ag_77DU0rT2nQzCRoCxPAQAvD_BwE My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text In this episode of the podcast, I talk about reaching the 4 year mark of living with Long Covid. I don't like to acknowledge this as an anniversary but I wanted to acknowledge the time that has passed, and what I have learnt along the way. It is strange how 4 years is such a long time, and in one way it has felt like the longest time ever! and the other has me questioning 'where have those years gone?' This is a reflection of the last 4 years and I wanted to acknowledge that, and the impact it has had/has on those we love the most. I think it's important to consider how much life has changed and how hard that is sometimes, but I also wanted to acknowledge how much we learn, and evolve, the resilience and hope. I hope you enjoy this episode of the podcast; please feel free to contact me if you would like me to discuss a particular topic or if you would like to be a guest on the podcast. Take care, see you on the next podcast #onedayatatime. Link from todays episode: FEVER https://open.spotify.com/artist/6sqc5lrCbcsjjpTAp6m6cH?si=oRvx9bDEQJC_6A8ZHmNyhA My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text On this episode of the podcast I chat to freelance writer and editor A. K. Davidson. We talk about her book; Poetry for life and other chronic conditions, which is due out on the 6th June, the link to pre order the book can be found below. Anna talks about her journey and experiences with acute and Long Covid, and how she now feels recovered, in a slower more thoughtful pace of life. We discuss how Anna put pen to paper to create these short and thoughtful poems, she admits this was not something she enjoyed while studying at university, however has found a source of therapy in being able to express her feelings while living with a chronic illness. As always thank you for listening to the podcast #onedayatatime Links from todays episode: https://www.instagram.com/@mondayispoetry Anna's website: https://www.therightword.co.uk Links to pre order the book; Poetry for life and other chronic conditions Waterstones:  https://www.waterstones.com/book/poetry-for-life-and-other-chronic-conditions/a-k-davidson/9781899587827 Amazon:  https://www.amazon.co.uk/Poetry-Life-Other-Chronic-Conditions/dp/1899587829/ref=sr_1_1?crid=2IL7OGIOVK6ZZ&dib=eyJ2IjoiMSJ9.J2C0eZVgv0a0rwtR60gCd3E88P4TiAp2z9zaECD41O9ljGdleXjp-0RXYmp-qdfE_hrVtoaJa3P5oBTnkO0UgE6yO81-ZbryVnrZofzOvK0TV6qc7MA9vpFHUTdGsHqLmeIiG4dbJlqQre9xOh64RBl-x8y0z8uLZzcToGydhU2KDWEmf_qq0zoB2uyUOuV6WsURQ9rekxhSTHCNt3lC2Q.1HoKBphcxfKGLJyLfQ2rqRjNUeHssui9bNJbCyvvIV4&dib_tag=se&keywords=poetry+for+life+and+other+chronic+conditions&qid=1713546303&sprefix=%2Caps%2C93&sr=8-1 My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc

Send us a text In this episode of the podcast I talk with Jess, the founder of the Turnto app, and Ally from Turnto Long Covid. Jess shares her inspiration for the Turnto app and her personal  journey with her son who has a rare form of cerebral palsy, and the challenges navigating health care services and trying to find treatment and  support (and what a journey!!). Jess explains how this has led to the development of the Turnto app. We discuss the reason for the app, the content and the resources within the app. I also talk with Ally, who lives with Long Covid, she explains her journey and how she connected with Jess, and the ongoing development and the upcoming release of the Turnto app for Long Covid, and also the app for ME/CFS. This is an innovative app, and more is explained on the podcast, you can join the waiting list to be one of the first to access this FREE app, links are below. *Disclaimer, I have no affiliation with the app* As always, thank you for listening to the podcast #onedayatatime Links from todays episode: Waiting list for Turnto - ME/CFS https://waitlist.turnto.ai/me-cfs Waiting list for Turnto - Long Covid app: https://waitlist.turnto.ai/longcovid Instagram https://www.instagram.com/turnto_longcovid/ Ally https://www.instagram.com/livinglongcovid Charlotte https://www.instagram.com/living.with.me.cfs Holly https://www.instagram.com/chronicfatiguecompanion  My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast Linktree: https://linktr.ee/joulest X https://twitter.com/julieTa58407536 Facebook page: https://www.facebook.com/livingwithlongcovid/ Instagram: https://www.instagram.com/julie_livingwithlongcovid Planners: https://amzn.eu/d/9v9MP4v Return to work planner: https://amzn.eu/d/1QVK8zn Well being planner: https://amzn.eu/d/a1Safxc