Advertise on podcast: PH Insights

Guest: Samichiė Thomas, PAH patient On this episode of PH Insights, guest Samichiė Thomas joins host Angela Golden to discuss her experience navigating her recent pulmonary arterial hypertension diagnosis while living with multiple chronic illnesses Thomas shares her experience managing difficult conversations with her family, the importance of self-advocacy and the challenges faced after years of misdiagnosis. She emphasizes the need for community support and the significance of addressing the unique challenges faced by patients, particularly within marginalized groups.

Guest: Akshay Muralidhar, MD, co-director Pulmonary Hypertension Program at Arizona Pulmonary Specialists On this episode of PH Insights, Akshay Muralidhar, MD, Arizona Pulmonary Specialists, joins host, Jenna Olitsky, to explore the complex intersection of pulmonary hypertension and hereditary hemorrhagic telangiectasia. Olitsky and Muralidhar break down the unique symptoms and complications that arise when the two conditions coexist.Muralidhar also discusses the importance of multidisciplinary care and how centers of excellence offered by organizations such as PHA and CureHHT provide the comprehensive support needed for improved quality of life. Listen today to learn how the latest in treatment advancements and research are reshaping the landscape of care for those living with PH and HHT. Download PHA’s Pulmonary Hypertension and Hereditary Hemorrhagic Telangiectasia brochure to learn more.

Guest:Nicole Creech, PHA Board of Trustees member, PH patient, and support group leader On this episode of PH Insights, Nicole Creech revisits the podcast to share more about her 18-year journey of managing her pulmonary hypertension diagnosis on pump therapy. She discusses how she found support within the PH community and helps others turn their struggles into empowerment to live life fully. Tune in to hear how Creech discovered that there’s so much more to life beyond a diagnosis*. Visit Treatments for Pulmonary Hypertension to learn about the targeted treatment options for those living with PH.   *Every pulmonary hypertension journey is unique. The Pulmonary Hypertension Association encourages patients to work closely with their health care team, adhere to prescribed treatments and discuss any concerns with their providers. Personal experiences shared in this episode should not replace medical advice, nor should they be interpreted as an endorsement of not following a physician's recommendations.

Guests: Charlie Burger, MD; Greg Elliott, MD, MACP; Akshay Muralidhar, MD; Naomi Habib, MD On this special episode, host Jenna Olitsky introduces thenew medical advisory team for PH Insights. Experts Naomi Habib, Charles Burger, Akshay Muralidhar and Greg Elliott (who will serve as the team’s senior advisor) will bring clinical insight and expert perspectives to the podcast. Listen in as they share their journeys in PH care, reflecton how the field has evolved to improve quality of life for patients and discuss what excites them most about supporting the PH community. Read more about the medical advisory team.

Host: Jenna Olitsky, PAH and HHT patient, PHA’s Patient and Caregiver Education Committee member. Guest: Allison Dsouza, a PAH patient, nurse and PHA Board member. On this episode of PH Insights, Allison Dsouza discusses her journey pursuing a career in nursing after being diagnosed with pulmonary arterial hypertension as a teenager. Together, Olitsky and Dsouza explore how Allison has balanced treatment, managed symptoms and navigated the realities of living with a chronic illness while building hercareer. They also discuss self-advocacy in the workplace and adapting to life's unexpected changes to find balance.

Guests: Debbie Charlton, Scleroderma patient, advocate and support groupleader Karen Brown, Scleroderma patient and advocate On this episode of PH Insights, host Jolie Lizana discusses scleroderma with guests Debbie Charlton and Karen Brown, who are both patients and advocates. They share their firsthand experiences living withscleroderma, its symptoms and the challenges to receiving an accurate diagnosis. Brown and Charlton highlight the importance of advocacy and community support for rare disease patients as they navigate the condition themselves. Explore Support Groups The Pulmonary Hypertension Association offers in-person, virtual and Facebook support groups. Find a support program that works for you, visit ⁠https://phassociation.org/support/⁠    National Scleroderma Foundation offers more than 40 Foundation-affiliated scleroderma support groups supported by more than one hundred facilitatorsaround the country.

Guests: Steven H. Abman, MD, professor, Department of Pediatrics, director, Pediatric Heart Lung Center University of Colorado School of Medicine and Children's Hospital Colorado Greg Elliott, MD, MACP, professor of medicine, University of Utah, emeritus professor of medicine, Intermountain Health Karen A. Fagan, MD, chair, Department of Medicine, interim chair, department of family and community medicine, professor of medicine, The George Washington University School of Medicine and Health Sciences Paul B. Yu, MD, PhD, cardiovascular medicine specialist at Brigham and Women’s Hospital, associate professor of medicine at Harvard Medical School, director, Cardiovascular Research Center, On the latest episode of PH Insights, we hear the final part of the two-part episode focusing on PHA’s continued support pulmonary hypertension research. Researchers and PHA contributors Steven Abman, Greg Elliott, Karen Fagan and Paul Yu, they shift focus to the future of PH care including advances in science and strategies for fostering innovation and collaboration.

Guest: Neal McDermott, pulmonary arterial hypertension and scleroderma patient On this episode of PH Insights, Neal McDermott, a patient navigating scleroderma and pulmonary arterial hypertension, shares his journey from diagnosis to managing multiple chronic illnesses. McDermott’s story offers hope and encouragement, emphasizing resilience and the potential for improved quality of life through treatment and transplant evaluation. For more information, visit Pulmonary Hypertension and Scleroderma

Guests: Steven H. Abman, MD, professor, Department of Pediatrics, director, Pediatric Heart Lung Center University of Colorado School of Medicine and Children's Hospital Colorado Greg Elliott, MD, MACP, professor of medicine, University of Utah, emeritus professor of medicine, Intermountain Health Karen A. Fagan, MD, chair, Department of Medicine, interim chair, department of family and community medicine, professor of medicine, The George Washington University School of Medicine and Health Sciences Paul B. Yu, MD, PhD, cardiovascular medicine specialist at Brigham and Women’s Hospital, associate professor of medicine at Harvard Medical School, director, Cardiovascular Research Center, Massachusetts General Hospital For 35 years, PHA has been at the forefront of discovery in treating and managing the progression and symptoms of pulmonary hypertension. On this two-part episode of PH Insights, we hear from researchers and PHA contributors Steven Abman, Greg Elliott, Karen Fagan and Paul Yu as they discuss their research and how it’s helped advance PH treatments and diagnosis.  Part 2 will air July 8th. Learn more about how the Pulmonary Hypertension Association supports research by visiting Research Programs - PH Association

Guest: Michele Freeman, licensed professional counselor and PHA support group leader.   On the next episode of PH Insights, we continue our focus on mental health awareness with licensed professional counselor and support group leader Michele Freeman. Freeman discusses the mental health challenges faced by those living with pulmonary hypertension and their caregivers. She explores the differences between depression and anxiety, the impact of chronic illness on mental health and practical strategies for managing these emotions.  Tune in to learn practical strategies to help you manage tough days.   Find support with PHA  Connect with support in a way that fits your needs.   For 24-hour support for mental health or substance abuse issues, call 988, a national hotline that provides support by call, text or chat.   Call PHA’s Support Line: 800-748-727. Connect with PHA’s support programs. Find a PHA Peer Mentor

Guest: Dan Lier, Amyloidosis patient and founder of Elevate Amyloidosis and co-author, The Rare Disease Playbook On this episode of PH Insights, host Jolie Lizana speaks with Dan Lier, a rare disease patient and advocate. Lier shares his inspiring journey navigating an amyloidosis diagnosis and discusses how changing his mindset and choosing positive thoughts aided in overcoming the challenges of living with a rare disease. Lizana also makes the connection for those living with PH and how many, regardless of diagnosis, can benefit from resilience tools and other lessons shared in this thoughtful conversation. Find support with PHA  Connect with support in a way that fits your needs.   For 24-hour support for mental health or substance abuse issues, call 988, a national hotline that provides support by call, text or chat.   Call PHA’s Support Line: 800-748-727. Connect with PHA’s support programs. Find a PHA Peer Mentor

Guest: Dawn Grandell, PAH and Sjögren’s patient, PHA peer mentor and support group leader Sjögren’s is an autoimmune disease that can lead to PH due to damage caused to the lung tissue. On this episode of PH Insights, peer mentor and support group leader Dawn Grandell shares her inspiring journey of living with pulmonary arterial hypertension and Sjögren's while discussing the importance of advocacy, support, and finding community. Read more about Pulmonary Hypertension Related to Sjögren’s by visiting the Pulmonary Hypertension Association’s Website. To find a peer mentor, visit PHA’s Peer Mentor page. Join Dawn at Rock the PHight, an evening of music, dancing, and PH awareness, in Shorewood, Illinois on June 27. Details are on the event calendar on PHA’s website.

Host: Jolie Lizana, PAH patient and advocate Guests: Matt Granato, LL.M., MBA, PHA's President and CEO; Kevin Heyen, PHA's Vice President, Development & Industry Relations; Jaeger Spratt, MSW, PHA’s advocacy and treatment access program manager; Eric Borstein, PAH patient and advocate; and Roopa Radhakrishnan, PH patient and advocate On this episode, the Pulmonary Hypertension Association takes you inside the rooms where real change begins. Get a behind-the-scenes look at the meetings where pulmonary hypertension patients’ and health care providers’ stories are heard, valued, and carry real weight. You will learn how advocacy meetings work, hear directly from individuals who traveled to Capitol Hill to speak on behalf of the PH community, and understand the impact their voices have in shaping policy. Most importantly, this episode breaks down how PHA can support you in advocating from wherever you are. Whether you are new to advocacy or already involved, you will see just how powerful your voice is and why it matters. Discover upcoming advocacy volunteer opportunities by subscribing to the monthly Advocacy Action Alert newsletter.

Host: Jolie Lizana, PAH patient and advocate, PHA’s Patient and Caregiver Education Committee member Guest: Mary Jo Farmer, MD, PhD; board certified pulmonary, critical care and sleep medicine physician, Mass General Brigham- Salem Hospital, associate professor of medicine at Tufts University School of Medicine Sleep-disordered breathing is far more common in pulmonary hypertension than most people may realize. On this episode of PH Insights, host Jolie Lizana sits down with a pulmonary, critical care, and sleep medicine specialist, Mary Jo Farmer, to unpack how nighttime oxygen drops, sleep apnea, and hypoventilation can impact your pulmonary vascular health and right heart function. Together, they discuss how clinicians diagnose and classify sleep‑disordered breathing, what happens in the body when sleep is disrupted, and how targeted treatment strategies can help. Visit Pulmonary Hypertension Related to Sleep Apnea to learn more.     Register for the PHA 2026 International PH Conference and Scientific Sessions to hear more from Dr. Farmer in, “The Impact of Treating Sleep Apnea and Hypoxia on Pulmonary Arterial Hypertension Management.”   PHA 2026 Scientific Sessions brings together health care professionals from all disciplines to earn continuing education credit, network with fellow pulmonary hypertension professionals, learn about the latest research and discuss best practices for PH treatme

Host: Meghan M. Cirulis, MD, MS, medical director, Intermountain Health Pulmonary Hypertension Center, assistant professor, pulmonary and critical care medicine, Intermountain Medical Center, adjunct assistant professor, University of Utah Pulmonary and Critical Care. Guest: Roberto Bernardo, MD, MS, ATSF, clinical assistant professor, Adult Pulmonary Hypertension Service, Vera Moulton Wall Center for Pulmonary Vascular Disease, Division of Pulmonary, Allergy & Critical Care Medicine, Stanford University School of Medicine   On this episode, host Meghan Cirulis speaks with clinician and researcher Roberto Bernardo about his work exploring ethnicity and social determinants of health for those living with pulmonary arterial hypertension in the Hispanic community. Bernardo discusses underlying disparities and offers insight into ways to improve quality of life for patients with limited access to care.  Bernardo also shares how PHA’s Pulmonary Hypertension Association Registry provided the data needed for his study.