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Living with Parkinson’s | Bryce Perry

Advertise on podcast: Living with Parkinson’s | Bryce Perry

Rating
★★★★☆
4.3
from
23 reviews
This podcast has
186 episodes
Language
English
Date created
2025/04/07
Latest episode
2026/11/10
Average duration
21 min.
Release period
2 days

Description

The Good, the Bad, and the Reality Your Source of Strength, Hope, and Support. Diagnosed with Parkinson’s in 2010 at age 40, Bryce Perry has spent over 15 years navigating the daily challenges, unexpected changes, and surprising lessons that come with living with a progressive disease. Through it all, he’s found purpose, perspective - and plenty of humour. Living with Parkinson’s is a real, raw, and often surprisingly funny podcast that explores what life is truly like with Parkinson’s. Whether you’re newly diagnosed, deep into your journey, or supporting someone who is, this show delivers honest stories, practical advice, and a healthy dose of encouragement. From medication and mindset to relationships, work, identity, and adapting to constant change, Bryce dives into the good, the bad, and - most importantly - the reality of life with Parkinson’s. It’s a podcast built on truth, resilience, and the belief that you can still live fully, even when life looks different than expected. Listeners say: “You nailed it. I thought I was alone until I found your videos.” “I laughed out loud… and then cried. This is exactly what I needed today.” “Bryce says what we’re all thinking but don’t always have the words for.” “Your honesty and humor are a gift. Please keep sharing.” New episodes every week. Subscribe and join a growing community of people who are doing life today - together.

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Check latest episodes from Living with Parkinson’s | Bryce Perry podcast


Who Knew?! You’re Drinking WHAT?! | Strange Parkinson’s Mysteries
2026/11/10
Can Parkinson’s cause dry mouth AND drooling at the same time? Could hiccups be connected to Parkinson’s? And what does regular soda have to do with motor symptoms? Welcome to another episode of WHO KNEW?, where we uncover strange Parkinson’s research that makes you wonder what else this disease has been hiding! In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we're exploring three surprising discoveries: • Dry mouth and drooling together: Researchers found that 18% of participants experienced both symptoms. How is that even possible? • Hiccups and Parkinson’s: One research review reported hiccups in approximately 20% of people with Parkinson’s compared with 3% of people without it. • Regular caffeinated soda: A large observational study found an association between drinking regular caffeinated soda and more severe Parkinson’s motor symptoms over time. Interestingly, coffee, green tea, and diet caffeinated soda didn't show the same association. Important: These findings do not prove that soda causes Parkinson’s progression or that hiccups indicate Parkinson’s. They're research clues worth exploring. You'll also hear Carmen’s Care Partner Corner, where Carmen shares research involving more than 30,000 care partners across 66 countries. Her discovery? Invisible symptoms such as anxiety, apathy, hallucinations, and changes in thinking or behavior can place an enormous burden on care partners. And don't miss the tease for Part Two, where we'll explore a futuristic sleep technology that could one day help people with Parkinson’s get better rest! Which discovery surprised you most? For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
What Parkinson’s Care Partners Are Afraid to Admit
2026/11/09
“I love you with everything I have, but sometimes living beside Parkinson’s is really hard.” Those are words many care partners feel but rarely say out loud. We talk about medication, appointments, symptoms, and helping the person we love. But what about our own fears, exhaustion, frustration, and the feelings we're sometimes afraid to admit? In this special episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I'm stepping aside and handing the microphone to my wife, Carmen, for an honest conversation about what it's really like being a Parkinson’s care partner. Carmen shares the things care partners don't always say: • “I'm scared too.” The worry about what Parkinson’s may bring next. • Always watching: Constantly noticing changes, potential falls, medication timing, and safety concerns. • Knowing when to help: Balancing the desire to protect someone with respecting their independence. • Feeling frustrated: Why loving someone doesn't mean you never get irritated or overwhelmed. • Grieving the future you imagined: When Parkinson’s changes plans, dreams, and expectations. • Feeling helpless: When you desperately want to fix something that love alone cannot fix. • Protecting your relationship: Remembering you're still partners, not just a patient and caregiver. • Taking care of yourself: Why care partners need their own friendships, happiness, rest, and support. And then Carmen talks about one of the hardest feelings to admit: Resentment. Sometimes you resent Parkinson’s. Sometimes you resent the responsibilities. And sometimes you even feel frustrated with the person you love. Having those feelings doesn't mean you've stopped loving them. Carmen also shares something deeply personal. She never knew me before Parkinson’s. But that doesn't mean she hasn't experienced grief over the future we imagined together. Because Parkinson’s doesn't just affect the person diagnosed. It affects the relationship, the household, and the person standing beside them. And Carmen's message to care partners is one I hope everyone hears: “You don't have to be perfect to love someone well. You just have to keep choosing the person again and again.” Carmen-ism of the Episode "Sit down before gravity makes that decision for you." 😂 The Message of the Episode "Parkinson’s may live in our house, but it does not get to own the relationship." For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
When “Hurry Up” Actually Makes Parkinson’s Worse
2026/11/06
There are five words that can make my Parkinson’s worse almost instantly: “Bryce, we have to hurry!” Suddenly my hands stop cooperating, my feet get slower, and my brain seems to forget what it was doing. And somehow, the harder I try to move faster, the slower everything gets! In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I explain seven ways being rushed can make everyday life with Parkinson’s more difficult: • Movement becomes harder: Why adding pressure can interfere with movements that already require extra concentration. • Multitasking overload: How rushing while walking, talking, carrying things, or making decisions can increase hesitation and freezing. • Fine motor difficulties: Why buttons, zippers, phones, and credit cards suddenly become impossible when people are waiting. • Speech and thinking slow down: How time pressure can make finding words, answering questions, and making decisions harder. • The emotional toll: Why feeling responsible for making everyone late can create guilt, frustration, and anxiety. • When helping makes things worse: Why repeatedly saying "hurry up" may actually slow someone down further. • Planning ahead: How building extra time into your routine and reducing distractions can make everyday activities easier. And here's something I've learned: Sometimes nobody else is rushing me. I'm rushing myself. We remember how quickly we used to do things, and sometimes we forget to give ourselves the same patience we're asking others to give us. You'll also hear Carmen’s Care Partner Corner, where Carmen explains why helping someone with Parkinson’s sometimes means doing less, saying less, and giving them room to finish what they're doing. Instead of saying “Hurry up!”, try asking: “What do you need right now?” Because sometimes we need help. Sometimes we just need another minute. And those aren't the same thing. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
The Real Reason You Feel Dizzy With Parkinson’s
2026/11/05
Have you ever stood up and suddenly felt like something was wrong, but you couldn't quite explain it? Maybe your vision goes dark. Your legs feel weak. Your brain gets foggy. Or you suddenly need to grab the nearest chair. And here's what surprised me: Parkinson’s dizziness doesn't always feel like dizziness! Sometimes the room doesn't spin at all. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we explore seven ways dizziness and blood pressure problems can affect everyday life: • The stand-up whoosh: That sudden lightheaded feeling when you rise from a chair. • Weak legs: When your legs suddenly feel unreliable after standing. • Brain fog: Why a temporary drop in blood pressure may make thinking feel unusually difficult. • Vision changes: When your vision becomes blurry, dim, or briefly dark after standing. • Heat and dehydration: Why hot showers, warm weather, and insufficient fluids can make symptoms worse. • After-meal dizziness: Why some people feel weak or faint after eating. • Medication effects: How Parkinson’s medications, blood pressure medications, and other factors can contribute. One possible explanation is orthostatic hypotension, a drop in blood pressure when you stand. But not all dizziness is caused by blood pressure, and recognizing the difference matters. I also share a simple way to describe these episodes to your doctor: Position. Timing. Feeling. Instead of saying, "I got dizzy," explain what you were doing, when it happened, and exactly what you experienced. You'll also hear Carmen’s Care Partner Corner, where Carmen talks about recognizing these moments and why giving someone time to sit and recover can help prevent a fall. Because sometimes the smartest thing you can do when Parkinson’s challenges your balance is stop trying to prove you can beat gravity. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
Parkinson’s Sweating? Here’s What’s Really Happening
2026/11/04
One minute you're sweating. The next minute you're freezing. And everyone around you seems perfectly comfortable. Meanwhile, Carmen is asking me to pick a temperature. Believe me, I'd love to. But apparently Parkinson’s has taken control of my body's thermostat! In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we're talking about something many people don't realize Parkinson’s can affect: your body's ability to regulate temperature. We explore seven surprising things: • Excessive sweating: Why you might suddenly start sweating even when the room isn't hot. • Uneven sweating: How some parts of your body may sweat too much while others sweat too little. • Heat intolerance: Why warm weather can leave you exhausted, dizzy, or feeling completely drained. • Feeling unusually cold: Why your hands, feet, or entire body may feel freezing when everyone else is comfortable. • Medication-related sweating: How sweating can sometimes be connected to OFF periods or dyskinesia. • Night sweats: Why you might wake up soaked even when your bedroom isn't particularly warm. • When temperature problems become serious: Why severe overheating, dehydration, confusion, or sudden major changes require medical attention. And here's something that surprised me: Sometimes excessive sweating in one part of your body may happen because other areas aren't sweating properly! I also share a simple way to recognize patterns by tracking three things: time, medication cycle, and environment. You'll also hear Carmen’s Care Partner Corner, where Carmen explains why temperature problems can be frustrating for both people. Because apparently my internal thermostat is broken, and Carmen has become the customer service department. 😂 The biggest takeaway? You don't have to silently put up with temperature problems just because you have Parkinson’s. Recognizing patterns, making practical adjustments, and talking with your healthcare team can help you manage them. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
7 Parkinson’s Swallowing Signs That Are Easy to Overlook
2026/11/03
When you think of swallowing problems with Parkinson’s, you probably think of choking. But what if the warning signs start long before that? Maybe meals are taking longer. Pills feel like they're getting stuck. You're clearing your throat more often, or you've noticed something strange happening with your voice after eating. And here's the scary part: some swallowing problems can happen without you even realizing it. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I share seven swallowing changes worth paying attention to: • Meals taking longer: When chewing, eating, and finishing a meal require more effort. • Food or pills feeling stuck: When swallowing medication or certain foods becomes difficult. • Coughing or throat clearing: Especially when it repeatedly happens during or after meals. • Food remaining in your mouth: When your tongue and mouth aren't moving food as efficiently. • A wet or gurgly voice: When your voice sounds different after eating or drinking. • Drooling: Why it may be caused by swallowing less frequently rather than producing too much saliva. • Silent aspiration: When food or liquid enters the airway without the coughing response you'd normally expect. And that last one is especially important. Not choking doesn't automatically mean your swallowing is working normally. We also talk about why speech-language pathologists can help assess swallowing difficulties and why noticing patterns early matters. You'll hear Carmen’s Care Partner Corner, where Carmen explains how care partners can recognize changes without turning every meal into an examination. Her advice? “Observation, not accusation.” Because Parkinson’s may change something as automatic as swallowing, but recognizing the signs gives us an opportunity to ask questions, seek help, and protect our health. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
Why Busy Places Make Parkinson’s Symptoms Worse (And Why You Crash Afterwards)
2026/11/02
Have you ever walked into a busy restaurant, shopping mall, or family gathering and suddenly felt your Parkinson’s symptoms get worse? Your walking becomes harder. Your voice gets quieter. Your brain slows down. And suddenly, all you want to do is leave. People may think you're tired, anxious, or antisocial. But something else may be happening. Your brain is trying to do too many things at once. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I explain six reasons busy environments can become overwhelming: • Walking requires more concentration: Movement that used to be automatic now demands attention. • Sensory overload: Noise, lights, movement, and competing conversations can overwhelm your brain's ability to filter information. • Conversations become exhausting: Following discussions, finding words, and responding can become difficult when everything is happening at once. • Stress amplifies symptoms: Crowds and unfamiliar environments may increase stiffness, freezing, anxiety, and other symptoms. • Visual clutter makes movement harder: Crowded aisles, patterned floors, obstacles, and sudden movements can make walking more challenging. • The crash comes afterward: You may hold everything together while you're out, only to feel completely exhausted once you get home. And that last one is something many people don't understand. You looked fine while you were out. But looking fine may have required every ounce of concentration you had. You'll also hear Carmen’s Care Partner Corner, where Carmen explains why asking too many questions when someone is overwhelmed can make things even harder. Sometimes the most helpful question is simply: “Would you like to sit or leave?” Because managing Parkinson’s in busy places isn't always about avoiding them. Sometimes it's about choosing quieter times, planning breaks, reducing distractions, and giving yourself permission to leave early. Leaving early doesn't mean the outing failed. It means you recognized what your brain and body needed. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
6 Things Parkinson’s Takes From You That Nobody Warns You About
2026/10/30
Nobody warned me Parkinson’s would take these things. They warned me about tremors, stiffness, and balance problems. But nobody sat me down and explained how Parkinson’s could slowly take my confidence, spontaneity, privacy, independence, and even pieces of who I thought I was. And sometimes those invisible losses hurt more than the symptoms people can see. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I talk honestly about six things Parkinson’s can quietly take from our lives: • Spontaneity: When a simple dinner invitation becomes a planning exercise involving medication, bathrooms, walking, and energy. • Confidence: When everyday activities become moments of uncertainty, embarrassment, or fear. • Privacy: When symptoms, medication schedules, and personal struggles become things other people suddenly know about. • Independence: When needing help begins changing decisions you used to make entirely on your own. • The size of your world: When restaurants, friendships, travel, hobbies, and outings gradually disappear from your routine. • Your sense of identity: When Parkinson’s changes the roles you've always had and leaves you wondering, “Am I still the same person?” And that final one is deeply personal. Because Parkinson’s doesn't just change what we can do. Sometimes it changes how we see ourselves. But I've learned something important after living with Parkinson’s for more than 15 years: My identity didn't disappear. It had to expand. You'll also hear Carmen’s Care Partner Corner, where Carmen talks about balancing safety and independence without accidentally taking away someone's choices. Her reminder? “Love is not doing everything for somebody. Sometimes love is helping without taking them away from themselves.” Because Parkinson’s may change the way we live. But it doesn't get to decide what our lives are worth. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
5 Reasons Your Parkinson’s Medication Suddenly Seems Less Effective
2026/10/29
Have you ever taken your Parkinson’s medication, waited for it to kick in, and wondered, “Why isn't this working anymore?” You're still stiff. Your feet aren't cooperating. Your brain feels foggy, and suddenly you're wondering whether your Parkinson’s has gotten worse. But sometimes the medication hasn't stopped working. Something else has changed. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I share five reasons your medication may suddenly seem less effective: • Delayed ON time: Your medication may still be working, just taking longer to kick in. • Food and protein timing: Why meals, particularly protein-rich foods, can affect levodopa response for some people. • Constipation and slow digestion: How your digestive system can interfere with medication absorption and make doses unpredictable. • Sleep, stress, dehydration, or illness: Why a difficult day doesn't always mean your medication has failed. • Symptoms that don't respond well to levodopa: Why increasing medication isn't necessarily the answer to fatigue, balance problems, brain fog, or other symptoms. And here's the question I now ask before assuming my medication has stopped working: “What else changed?” Did I sleep poorly? Eat differently? Take my medication later? Am I constipated, dehydrated, or under more stress? Sometimes asking that question turns panic into useful information. You'll also hear Carmen’s Care Partner Corner, where Carmen talks about supporting someone through difficult medication days without constantly asking: “Are you ON yet?” Her reminder is simple: “You don't have to solve the whole disease. Sometimes you just help make the next hour easier.” Because one bad medication day doesn't automatically mean your Parkinson’s has progressed. Sometimes the pill didn't fail. Parkinson’s just changed the rules. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
7 Signs Your Parkinson’s May Be Changing Before You Realize It
2026/10/28
What if your Parkinson’s is changing, but you've been adapting so gradually that you haven't even noticed? Maybe your medication doesn't last quite as long. Maybe walking requires more concentration. Or maybe the same activities you did six months ago now leave you completely exhausted. Parkinson’s doesn't always announce change with a dramatic new symptom. Sometimes the biggest clue is how much harder ordinary life has become. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I share seven signs worth paying attention to: • Automatic movements require more thought: Getting out of a chair, turning, or walking takes more concentration. • Medication windows change: Your medication takes longer to work or seems to wear OFF sooner. • Walking requires more planning: Doorways, crowds, turns, and uneven surfaces demand more attention. • Your voice changes: People ask you to repeat yourself more often, or your speech becomes softer. • Non-motor symptoms become more noticeable: Sleep, constipation, fatigue, anxiety, or brain fog begin affecting your day differently. • Multitasking becomes harder: Doing two things at once requires more effort than it used to. • The same activities cost more energy: You can still do things, but the recovery afterward takes longer. And that final one might be the most important. Stop asking only, “Can I still do it?” Start asking, “What does it cost me now?” I also share a recent experience at the Canada-U.S. border where I suddenly froze while trying to turn away from a customs officer. It was a reminder of how Parkinson’s can make something as automatic as turning around unexpectedly complicated. You'll also hear Carmen’s Care Partner Corner, where Carmen talks about noticing small changes before I do, without making me feel like I'm constantly being monitored. Her advice? “Notice the change. Don't become the change police.” Because noticing changes isn't about assuming the worst. It's about recognizing patterns, having better conversations with your neurologist, and adapting so you can keep doing the things that matter. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
4 Surprising Parkinson’s Connections Hiding in Your Body | WHO KNEW?
2026/10/27
What do facial redness, an eye exam, strange nighttime movements, and skin cancer have in common? Believe it or not, researchers have found surprising connections between all four and Parkinson’s disease! Welcome back to WHO KNEW?, where we explore unusual research, hidden symptoms, and discoveries that make you wonder how nobody told us about this before. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we're exploring four fascinating connections: • Rosacea and Parkinson’s: Why researchers found an association between this common skin condition and an increased likelihood of developing Parkinson’s. • Eye scans and early detection: How researchers discovered subtle retinal changes in OCT eye scans taken years before some people received a Parkinson’s diagnosis. • REM sleep behavior disorder: Why talking, shouting, kicking, or acting out dreams during sleep can sometimes be an important neurological clue. • Parkinson’s and melanoma: Why studies have found an unexpected association between Parkinson’s and this serious form of skin cancer. And that eye scan discovery is particularly fascinating. Researchers found retinal differences in scans taken approximately seven years before a Parkinson’s diagnosis! That doesn't mean an eye exam can currently diagnose Parkinson’s, but it opens some interesting possibilities for future research. You'll also hear Carmen joining me for Carmen’s Care Partner Corner, where she shares her own WHO KNEW? about REM sleep behavior disorder. Sometimes the person with Parkinson’s has no idea what happened overnight. But the care partner? They witnessed the entire production! 😂 Carmen reminds us that unusual nighttime behaviors deserve attention, especially when there's a risk of injury. Because Parkinson’s isn't just about tremors, stiffness, and movement. Sometimes the clues are hiding in our skin, our eyes, our sleep, and places nobody thought to look. WHO KNEW?! For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
4 Parkinson’s Discoveries That Sound Impossible but Are Real | WHO KNEW?
2026/10/26
What do low-fat milk, organizing drawers for hours, involuntary movements, and a fake medication have in common? Believe it or not, they all have surprising connections to Parkinson’s! Welcome back to WHO KNEW?, where we explore the strange, fascinating, and sometimes unbelievable side of Parkinson’s research. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we're exploring four discoveries that made me stop and say, “Wait... WHAT?!” We talk about: • Low-fat dairy and Parkinson’s risk: Why researchers have found an association between higher consumption of skim and low-fat milk and Parkinson’s, without proving that dairy causes the disease. • Punding: A little-known behavior sometimes associated with dopamine replacement therapy, where someone becomes intensely focused on repetitive activities like sorting, organizing, or collecting, sometimes for hours without accomplishing anything. • Dyskinesia awareness: Why someone with Parkinson’s may genuinely be less aware of their involuntary movements than the people watching them. • The Parkinson’s placebo effect: How researchers using brain imaging observed measurable dopamine release in some people who believed they were receiving an active treatment, even when the treatment was inactive. And yes, that last one is absolutely fascinating. The treatment was fake. The dopamine response wasn't. But that doesn't mean Parkinson’s can be cured through positive thinking or that medication is unnecessary. It shows just how complex the brain's response to expectation can be. You'll also hear Carmen joining me for Carmen’s Care Partner Corner, where she shares her own WHO KNEW? discovery about noticing dyskinesia movements that I sometimes don't realize I'm making. And naturally, Carmen manages to be right again. 😂 Her Carmen-ism? “Sometimes love means noticing what Parkinson’s forgot to mention.” Because Parkinson’s research continues to reveal that there's much more happening inside our brains and bodies than we ever imagined. And sometimes even the scientists are surprised. WHO KNEW?! For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
Parkinson’s Fear of Falling: When Losing Confidence Shrinks Your World
2026/10/23
Have you ever said no to something, not because you couldn't do it, but because you were afraid you might fall? Maybe it was a walk, a trip to the grocery store, meeting friends, or crossing an icy parking lot. Sometimes the biggest thing Parkinson’s steals isn't your balance. It's your confidence. And once you stop trusting your body, you start questioning everything. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I talk about how the fear of falling can quietly take over your decisions and make your world smaller. We explore: • Fear before the fall: How a stumble, near miss, or freezing episode can shake your confidence • How fear changes movement: Why tension, rushing, and overthinking every step can make walking harder • When your world starts shrinking: How avoiding stairs, stores, outings, and social activities can slowly take away independence • Losing trust in your body: Why Parkinson’s can make even familiar movements feel unpredictable • Making your environment work for you: How better lighting, safer spaces, mobility aids, and small adjustments can help protect your independence One of the biggest lessons I've learned is this: Don't stop doing everything. Shrink the challenge instead. Maybe it's walking to the mailbox instead of around the block. Visiting the store when it's quieter. Asking someone to walk beside you. Or using a mobility aid that helps you keep doing what you love. You'll also hear Carmen’s Care Partner Corner, where Carmen shares how difficult it can be to know when to help and when to step back. Her simple question? “Would you like a hand?” Because offering help without taking away someone's choices can make all the difference. And I share one sentence I think everyone with Parkinson’s needs to remember: “Confidence doesn't come back because you never fall. Confidence comes back because you stop letting fear make every decision.” That doesn't mean taking unnecessary risks. It means rebuilding confidence through small wins, safer choices, and the right support. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
5 Parkinson’s Pain Traps Nobody Warns You About
2026/10/22
Have you ever had pain with Parkinson’s and wondered, “Is this Parkinson’s, getting older, or did my body just wake up and choose violence?” Sometimes it's stiffness. Sometimes it's cramping. Sometimes it's a deep ache that seems to come out of nowhere. And when someone asks what's wrong, all you can say is, “I hurt.” But pain with Parkinson’s can be complicated, and sometimes the patterns behind it are just as important as the pain itself. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I share five pain traps that can make daily life even harder: • Blaming everything on aging: Why pain deserves a closer look instead of automatically being dismissed as getting older. • Ignoring stiffness until it becomes painful: How stiffness can build throughout the day and why small, safe movements may help. • Missing the timing patterns: Why pain that appears around medication doses, stress, poor sleep, or prolonged sitting deserves attention. • Pushing through pain because of guilt: Why ignoring your body's warning signs can sometimes leave you paying for it later. • Not explaining your pain clearly: Why telling your doctor when, where, and how pain affects your life can lead to a much more useful conversation. And that fifth one is especially important. Don't just tell your doctor you hurt. Tell them what the pain is taking away from your life. You'll also hear Carmen’s Care Partner Corner, where Carmen shares a simple way for couples to communicate about pain using yellow lights and red lights. Yellow means you're uncomfortable but may be able to continue with adjustments. Red means it's time to stop, ask for help, or change the plan. And I share a simple framework you can use with your doctor: “I'm having pain in ___. It usually happens around ___. It feels like ___. It gets worse when ___, and it affects my day by ___.” Because Parkinson’s pain is real, and it deserves more than a shrug and another instruction to just live with it. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips
5 Parkinson’s Traps That Can Make Your Symptoms Feel Worse
2026/10/21
Have you ever looked back on a rough Parkinson’s day and wondered, “What the hell happened?” Your stiffness was worse. Your fatigue showed up early. Your patience disappeared, and your brain fog moved in with luggage. Sometimes Parkinson’s just does what Parkinson’s does. But sometimes we fall into little traps without even realizing it. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I share five everyday traps that can make Parkinson’s symptoms feel harder to manage. We talk about: • Pushing through fatigue: Why ignoring your limits can leave you paying for it later • Skipping movement because you're stiff: Why even a few minutes of gentle movement may help • Waiting too long to eat, drink, or take medication: How timing, hydration, and missed routines can affect your day • Letting stress take over: Why stress can amplify stiffness, tremor, freezing, anxiety, and brain fog • Pretending you're fine until you crash: Why constantly saying “I'm fine” can sometimes make a difficult day even harder And that fifth one might be the sneakiest. Because sometimes we spend so much energy trying to look okay that there's nothing left when we finally get home. Pretending you're fine isn't a treatment plan. You'll also hear Carmen’s Care Partner Corner, where Carmen talks about recognizing these traps without making the person with Parkinson’s feel watched, managed, or criticized. Her reminder? “The goal is not to control each other. The goal is to protect the day together.” Because managing Parkinson’s isn't about getting everything perfect. It's about recognizing patterns, making small adjustments, and knowing when to rest, move, ask for help, or simply admit that today is a rough one. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

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4.3 out of 5
23 reviews
★★★★★
BaBaBaBaBarbara Ann 2026/09/05
Thank God for you!
A friend referred me to your podcast. I have learned so much ever since. You truly know how to explain what it’s like to have Parkinson’s. And I can r...
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