Advertise on podcast: Lung Cancer Voices of Hope

What side effects should you expect from small cell lung cancer treatment, and when should you call your care team? In this episode, small cell lung cancer survivor Vickie Rose shares her journey through chemotherapy, radiation, immunotherapy, and tarlatamab, and the practical, hard-won strategies she uses to keep eating, stay active, and feel well on treatment. Clinical pharmacist Dr. Mya Tran joins Vickie and hosts Ann Steagall and Dr. Misty Shields to explain how side effects differ across chemotherapy, immunotherapy, and bispecific T-cell engagers, why reporting side effects early can help you stay on treatment, and her simple “traffic light” approach for knowing when to wait, when to call your care team, and when to head to the ER. “ It begins and ends with you, and you have to work with your doctors, with your team. You have to communicate.” - Vickie Rose, small cell lung cancer survivor Key Topics Discussed in This Episode: Vickie’s survivor storyWhat’s typical and what’s unusual when it comes to side effectsManaging side effects of combined treatmentsThe “traffic light” approach to reporting side effectsManaging nutrition when you have taste changesWhy reporting side effects won’t necessarily stop your treatmentThe role of care partnersResources & Support LUNGevity Small Cell Lung Cancer GatewaySmall Cell Lung Cancer NewsLearn About Clinical TrialsExplaining BiTE® TherapyLUNGevity Virtual MeetupsLUNGevity Support ServicesSmall Cell SMASHers Facebook group

Should you avoid sugar when you are living with lung cancer? Or should you eat anything you want? Are supplements something you need to consider? In this episode, non-small cell lung cancer survivor Diane Beall shares how she approaches nutrition, from mindful eating to her go-to snacks for low-appetite days. Thoracic oncologist Dr. Jared Weiss of the University of North Carolina joins Diane and hosts Ann Steagall and Dr. Misty Shields to discuss sugar and supplements, explain why he often recommends liberalizing a cancer patient's diet, and share practical, drug-specific nutrition tips — from managing the symptoms that come with targeted therapies to coping with taste changes on tarlatamab. “ Think hard about what you've eaten that day and maybe what you need to make up at your dinner time or after dinner or in a snack. ” - Diane Beall, non-small cell lung cancer survivor Discussed in This Episode: Diane's nutrition journey: how she built her own eating plan after diagnosis, and why she recommends every patient work with a nutritionistGetting enough protein and calories: practical, low-effort strategies for days when appetite is lowDr. Weiss's approach to nutrition in the clinic: why hydration comes first, and why correcting a true deficiency helps more than adding supplements "just in case"Sugar, supplements, and common myths: what the evidence actually says, and why more isn't always betterWhy liberalizing your diet can improve quality of life: Dr. Weiss explains why he often encourages cancer patients to eat the foods they enjoySupporting a loved one through food: how care partners can help without oversteppingManaging side effects through nutrition: tips for diarrhea on targeted therapies, taste changes on tarlatamab, and cancer-related fatigueResources & Support: Ina, LUNGevity's Intelligent Nutrition AssistantLUNGevity's Virtual MeetupsLearn more about CachexiaLUNGevity Online CommunitiesLUNGevity Peer-to-Peer ProgramThe Cancer-Fighting Kitchen by Rebecca KatzSee all of LUNGevity Support Services

Living with lung cancer can take more than just a physical toll – it comes with a myriad of feelings, like anxiety, fear, and grief. In this episode, non-small cell lung cancer survivor and advocate Nora Taylor shares her journey through diagnosis, clinical trials, and targeted therapy, along with the rollercoaster of emotions that go with it. Licensed clinical social worker Ashley Griffin joins Nora as well as hosts Ann Steagall and Dr. Misty Shields to explain why anxiety and depression are such a common and often unspoken part of the cancer experience. She offers practical, everyday strategies for coping with scanxiety, uncertainty, and the emotional weight that patients and caregivers both feel. Listen as the group discusses the importance of normalizing these emotions, building self-compassion, and finding support through community. “ Both the caregiver and the patient have emotions. If you think you can't share with your loved ones, then definitely groups like you can find at LUNGevity and other organizations have quite honestly changed my life with cancer.” - Nora Taylor, non-small cell lung cancer survivor Key Topics Discussed in This Episode: Nora's lung cancer storyWhy anxiety and depression are a normal part of the cancer journeyScanxiety and the emotional rollercoasterSelf-validation and self-compassionCoping ahead of scan resultsThe caregiver's emotional burdenHow you can be hopeful and honest at the same timeFinding community and purposeResources & Support: LUNGevity Virtual Meetups – connect with other lung cancer patients and survivorsLUNGevity Online Communities – online groups for patients and care partnersLUNGevity Peer-to-Peer Program – connecting people diagnosed with lung cancer to trained survivor mentorsLUNGevity Patient Gateways – information and resources specific to your lung cancer type, including HER2Biomarker Testing – what it is and why it matters for your treatmentRead more about managing your mental health after a cancer diagnosisFind LUNGevity's tips for managing scanxietySee all of LUNGevity Support Services

How do clinical trials work? What actually happens when you enroll in one? And how do you find a trial that's right for you? In this episode, small cell lung cancer survivor Wendy Brooks and thoracic oncologist Dr. Arthi Sridhar join hosts Ann Steagall and Dr. Misty Shields to break down the intricacies of clinical trials — the phases, the safeguards in place, and what it's like to be a part of one. Listen as Wendy shares her own experience moving through multiple trials after her cancer progressed on standard treatment. Dr. Sridhar walks through what a clinical trial actually involves, from the safety oversight behind every study to why a trial isn't just a last resort, but instead something patients can and should ask about at any point in their care. "By participating in these trials, I'm not just helping myself, but I'm helping those that are coming behind me." - Wendy Brooks, small cell lung cancer survivor Key Topics Discussed in This Episode: What clinical trials are and how the phases workWendy's experience moving through multiple trialsCommon misconceptions about clinical trial safetySafety oversight: IRBs and the role of the principal investigatorWhy trials aren't just a last resortHow to find a trial that's right for youResources & Support: LUNGevity Clinical Trials: What clinical trials are, how they work, and how to find oneClinical Trial Ambassadors: Connect one-on-one with someone who's been on a clinical trial before youClinicalTrials.gov: The U.S. government's full listing of open clinical trialsUT Southwestern Medical Center: Learn more about the academic medical center where Dr. Sridhar practices and conducts clinical trial research

What are biomarkers, why do they matter, and what should every person living with lung cancer know about getting tested? Dr. Ross Camidge, a world-renowned thoracic oncologist and lung cancer researcher at the University of Colorado, joins Ann Steagall and Dr. Misty Shields to explain the ins and outs of biomarkers. Dr. Camidge helped pioneer biomarker testing as a standard of care, but he also brings the patient perspective as well - he was diagnosed with EGFR-mutant non-small cell lung cancer several years ago. They discuss what biomarkers are, how biomarker testing works, why you might need to repeat your testing over time, and why you should know your biomarker status before you begin treatment. “ If you don't have a specific biomarker identified, you've got to ask the question: was the testing complete?” – Dr. Ross Camidge, lung cancer world expert and survivor What You'll Hear: Biomarker testing in lung cancer from a patient and expert perspectiveWhat is biomarker testing and why does it matter for lung cancer treatmentThe evolution of lung cancer biomarker testingLiquid biopsy vs. tissue biopsy for lung cancerWho should get lung cancer biomarker testing and whenRepeat biomarker testing and treatment resistanceResources & Support: Biomarker Testing – What it is, why it matters, and how to ask your team about itLUNGevity’s No One Missed – Biomarker testing information for lung cancerWhat to Ask Your Doctor – Questions to guide your treatment conversations at every stepLUNGevity Patient Gateways – Information and resources specific to your lung cancer typeEGFR Resistors – Patient-led community for people living with EGFR-positive lung cancerALK Positive – Community for patients with ALK-positive lung cancerROS1ders – Community for patients with ROS1-positive lung cancerVirtual Meetups – Connect with other lung cancer patients and survivors, including LUNGevity's weekly Tuesday calls

How do you make the most of your visits with your healthcare team? In this episode, lung cancer survivor Bill Morris shares his experience with lung cancer and how he approaches his healthcare visits now. Oncology nurse practitioner Rasheda Persinger shares her insights after 20 years of working with patients. Hosts Ann and Dr. Shields discuss with Bill and Rasheda what they wish every patient knew, from writing down questions before an appointment to asking about biomarker testing to why recording your visit can make all the difference. “It’s always on the ride home that I thought of the perfect question to ask.” - Bill Morris, lung cancer survivor What You'll Hear: Bill's experience navigating appointments as a stage IIIB lung cancer patientHow to prepare before your visit and why it mattersWhy you should ask to record your appointmentWhen and how to bring up biomarker testingThe importance of shared decision-making and seeing the whole patientResources & Support: LUNGevity Patient Gateways — Resources and latest news for your specific cancer type What to Ask Your Doctor — Questions to guide your treatment conversations at every step Biomarker Testing — What it is and why it matters for your treatment Virtual Meetups — Connect with other lung cancer patients and survivors, including LUNGevity's weekly Tuesday calls

Why does finding community matter in lung cancer care? In this episode, lung cancer survivor and advocate Jill Feldman shares her experience, from losing multiple family members to lung cancer to her own diagnosis, as well as her work building patient communities around the world. Jill discusses how connecting with others has shaped her journey and why community is important for support, information, and advocacy. Hosts Ann Steagall and Dr. Misty Shields explore with Jill how patients and families can find community, the role of advocacy, and how care teams can support patients and families. " I always say that no amount of therapy could have ever helped me through my losses and then my own diagnosis, like my involvement with the lung cancer community." -Jill Feldman, lung cancer survivor and advocate What You'll Hear: Jill's experience and advocacy journeyThe role of community in navigating diagnosisHow patients can find support after diagnosisAddressing stigma in lung cancer Resources and Support: LUNGevity Virtual Meetups – Join a live video group to connect with others living with lung cancerLifeLine Peer-to-Peer Support – Get matched 1-to-1 with a survivor or caregiver mentor with a similar experience.LUNGevity Online Communities – Connect with other people who've been where you areEGFR Resistors – Join the patient-led community founded by Jill Feldman and dedicated to EGFR-positive lung cancerLUNGevity Patient Gateways – Find information and resources specific to your lung cancer type

What happens after a lung cancer diagnosis? In this first episode of LUNGevity’s Lung Cancer Voices of Hope podcast, lung cancer survivor Lisa Bistline shares her experience, from initial scans and biopsies through multiple treatments, and the moment a later biopsy revealed a biomarker that led to a targeted therapy. Hosts Ann Steagall and Dr. Misty Shields then speak with Yale University thoracic oncologist Dr. Anne Chiang about what patients can expect at their first visit, including how doctors determine the type and stage of cancer, plan treatment, and approach care. Together, they discuss how lung cancer research and treatment options continue to evolve, and the pace of progress in recent years.  "I just gaped and said, 'I have lung cancer?' and I looked over at my husband and I said, ‘I have lung cancer?’” - Lisa Bistline, lung cancer survivor What You'll Hear: Lisa’s diagnosis and treatment journeyWhat happens at a first oncology visitHow biomarkers guide treatment decisionsThe role of support systems and community Resources and Support: The LUNGevity Foundation – Support programs, education, and patient resources.Patient Gateways – Resources specific to your lung cancer type.LifeLine Support Program – 1-on-1 peer mentorship for patients and survivors.Search Clinical Trials – Tool to find relevant trials and research.Small Cell SMASHERS – Learning series for small cell lung cancer (SCLC).Recently Diagnosed Guide – Providing the information you need right away

Meet the hosts behind LUNGevity Foundation's new podcast, Lung Cancer Voices of Hope. In this introductory episode, Ann Steagall and Dr. Misty Shields share their personal and professional connections to lung cancer and what led them to this work. Ann reflects on more than 30 years as a thoracic oncology nurse supporting patients across care settings, and Dr. Shields shares how her father’s diagnosis shaped her path to becoming a thoracic oncologist and physician scientist. They also share what listeners can expect from the podcast, including patient stories and expert insights to help navigate a lung cancer diagnosis. "Hope is really here to stay." -Dr. Misty Shields, co-host and thoracic oncologist

After a lung cancer diagnosis, there are two things most people want: information -- and to hear from people who've been there. Lung Cancer Voices of Hope is a podcast that brings together people living with lung cancer and experts in lung cancer care, so that those navigating this diagnosis and their care partners have support they need from people who truly understand. Hosted by Ann Steagall, an oncology nurse and head of Patient Services at LUNGevity Foundation, and Dr. Misty Shields, a thoracic medical oncologist, each episode shares stories and insights that reflect the latest in lung cancer care -- and the hope that comes from hearing from others on a similar journey. Starts April 23. This show is brought to you by LUNGevity Foundation.