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★★★★★

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81 reviews

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I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism

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SED 588: Beach Plus Pica

2026/04/22

This week, Tess goes somewhere she hasn't been in many years, a place we've avoided for a very good reason.

SED 587: You Answered - A Project Centauri Update

2026/04/15

This week, I called, you answered. An update on Project Centauri, our effort to get 100 new families on Matrix.

SED 586: A Critical Mistake

2026/04/08

This week, a critical mistake lands Tess back in the emergency room.

SED 585: How We're Using AI to Help Cure our Rare Disease

2026/04/01

This week, I want to tell you about how I'm using AI to help with our foundation's work in our quest for a cure or treatment for Hao-Fountain syndrome.

SED 584: Tuning In

2026/03/25

This week, we're delighted as Tess expands her video library into uncharted territory.

SED 583: Project Centauri

2026/03/18

This week, we're launching a new initiative that's going to make our Hao-Fountain crew a million times stronger.

SED 582: Tess Skips Breakfast

2026/03/11

This week, it's an earth metal, a chemical element, a thing you can use when making fireworks. And hey, maybe we should drink it.

SED 581: IEP Meeting - All About the Coffee part 1

2026/03/04

This week, the three letters that have often invoked dread in many a parent are instead making me feel positively gleeful about our girl.

SED 580: Mystery Tess

2026/02/25

This week, we're working hard to manage some new factors in Tess's life.

SED 579: Get On Matrix Already

2026/02/18

This week, we know what we need in order to get to a cure or treatment for Hao-Fountain syndrome. And you can help. Get started with Matrix: https://usp7x.acrossmatrix.com/en-US/#/user-request

SED 578: Get Well Soon

2026/02/11

This week, a couple fun updates about Tess's re-entry after her seizure.

SED 577: Many Moons

2026/02/04

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 5 of 5.

SED 576: A New Record

2026/01/28

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 4 of 5.

SED 575: Shark Fins

2026/01/21

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 3 of 5.

SED 574: The Woods

2026/01/14

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility.

Podcast reviews

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5 out of 5

81 reviews

★★★★★

bshort68 2021/06/29

Chicken Soup for MY Soul

I was listening to a podcast and the host referenced this podcast. All I can say is WOW. Bo's stories are relatable and inspiring. He navigates the ci...

★★★★★

Effielyn 2020/05/23

Heartwarming and real

I love keeping up with Tess and learning from this family. As a fellow rare disease parent, it’s so comforting to hear from others who get it. Tune in...

★★★★★

ashley (tony's mom) 2020/01/22

Beautiful every week

Bo speaks with authenticity, grace and wisdom about Tess, the unique challenges he faces as a special needs dad and the unique beauty she embodies. Br...

★★★★★

DCDavid 2019/08/07

Worth subscribing to! 🙂

In theory, I love podcasts. I have only subscribed to a few that really interest me and I always have the best of intentions to listen to new episodes...

★★★★★

Npphd 2018/06/07

Huge thank you to the Bigelows

I am so honored to be part of the Tess Army. Thank you so much for teaching us all about Tess, of course, and also about parenting, sibling issues and...

★★★★★

Katius 2016/02/17

Awesome podcast

I'm a stepparent to a special needs kid - it's been fast forward jumping in with both feet to learn everything I can about what it's like living with ...

★★★★☆

Jenise Jensen 2016/11/13

Powerful

This is one of the best and most worthwhile podcasts I have ever listened to...as a pediatric neuropsychologist, as a parent, as a human being. Thank ...

★★★★★

Great Uncle Mark 2016/02/10

Not for the hard of heart

This podcast is beautifully written and quickly draws the listener into the issues involved in caring for a special-needs child. Unbelievably touching...

★★★★★

Lol a car 2015/11/12

NPRs next truth teller right here.

Not only does Bo weave his poignant and wonderful stories together leaving you wanting more, he also tells the truth with humor. As another special ne...

★★★★★

Alisha (Zev’s mom) 2015/11/12

Stronger Every Day

This is a unique, honest, and intelligent perspective on raising a child with special needs. As the parent of a boy with a rare disorder, I welcome t...

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