Advertise on podcast: Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein

In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries.  This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much  more.  Takeaways Hand pain, weakness, and injuries are common in individuals with joint hypermobility.Hand pain in connective tissue disorders can be caused by hypermobility, subluxations, nerve impingement, and arthritis.TheraPutty is a useful tool for strengthening hands.  Low profile hand support options include kinesio tape, silicone thumb supports, and the Push MetaGrip.Traditional therapies may not work for hand pain in hypermobility if the underlying hypermobility is not addressed.Ring splints can provide support and stability for hypermobile joints in the hands.Insurance coverage for ring splints may vary, and Silver Ring Splints is a US-based provider that offers insurance coverage options. Trigger finger occurs when the tissue surrounding a tendon becomes knotted, causing the tendon to catch and lock when the finger is flexed.Steroid injections combined with splinting can be effective in treating trigger finger, especially in acute cases.Trigger finger may be misdiagnosed in the hypermobile population, as it can be a result of subluxation rather than tissue accumulation.Hypermobility hacks include ergonomic hand movements, swimming, abdominal compression, and prioritizing daily movement. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Chapters 00:00 Introduction and Overview 01:38 Difference between Occupational and Physical Therapy 04:44 Common Reasons for Hand Pain in Connective Tissue Disorders 09:53 Approach to Hypermobility in Hands 12:46 Strengthening Hands with TheraPutty 20:55 Strengthening Hands without Overdoing It 21:27 Reasons Traditional Therapies May Not Work for Hand Pain 24:08 Low Profile Hand Support Options 28:23 Ring Splints and Insurance Coverage 38:34 Ring Splints and Plastic Splints 40:33 Hand Exercises for Different Age Groups 42:33 Avoiding Strain and Hyperextension 45:21 Tips for Traveling with Hand Problems 47:51 Challenges of the Medical System for Chronic Pain 51:22 Hand Pain with Writing 53:52 Hand Pain and Numbness in Sleep 56:16 Thumb Pain and De Quervain's Tendonitis 59:17 Cubital Tunnel Syndrome 01:02:19 Torn Triangular Fibrocartilage Complex (TFCC) 01:06:14 Decuervain's Tendonitis 01:09:17 TFCC Tear 01:13:32 Trigger Finger 01:17:31 Differentiating Trigger Finger from Subluxation 01:18:38 Pulley Injuries in Rock Climbers 01:19:25 Hypermobility Misdiagnosis 01:20:46 Hypermobility Hacks Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   Learn more about guest, Corinne McLees here: https://www.handcoachcorinne.com/ Check out the items mentioned in episode 91 here: https://amzn.to/49FkaGY Check out the Bendy Bodies Amazon Shop here: https://www.amazon.com/shop/hypermobilitymd Links to other products: https://www.silverringsplint.com/ https://www.evabellejewelry.com/ https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&utm_medium=Social&utm_campaign=Corinne #HandPain #HandProblems #HandWeakness #WristPain #BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlying causes. Dr. Ruhoy emphasizes the need for a comprehensive evaluation and individualized treatment approach for patients experiencing brain fog.  They delve into the role of nutrition in cognitive function, emphasizing the impact of food choices on inflammation. They highlight the importance of avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors.  Dr. Ruhoy shares surprising findings on the MRI of mast cell activation syndrome (MCAS) patients.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Brain fog is characterized by cognitive difficulties such as slow thinking, difficulty learning and recalling information, and trouble focusing and paying attention.Conditions such as mast cell activation syndrome (MCAS), craniocervical instability (CCI), dysautonomia, Ehlers-Danlos Syndromes, and CSF leaks can contribute to cognitive dysfunction and brain fog.Intracranial hypertension (high pressure), hypotension (low pressure), and Tarlov cysts can also contribute to brain fog. Identifying the underlying causes of brain fog is crucial for developing an effective treatment plan.A comprehensive evaluation, including medical history, imaging studies, and laboratory tests, can help determine the contributing factors and guide treatment decisions. Applying knowledge gained from podcasts and research in clinical practice can help healthcare professionals provide better care to their patients.Making a meaningful difference in patients' lives is a rewarding aspect of being a healthcare professional.Nutrition plays a crucial role in cognitive function, and food choices can either be anti-inflammatory or pro-inflammatory.Avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors can positively impact cognitive function. Chapters 00:00 Introduction of Dr. Ilene Ruhoy 01:57 Defining Brain Fog 04:14 Risk Factors for Brain Fog 09:42 Identifying Contributing Factors 11:52 Cognitive Dysfunction and Mast Cell Activation Syndrome 14:09 Cognitive Dysfunction and Craniocervical Instability 18:18 Cognitive Dysfunction and CSF Leak 22:59 Cognitive Dysfunction and Dysautonomia 25:25 Cognitive Dysfunction and Upper Cervical Instability 30:12 Cognitive Dysfunction and CSF Leak 38:11 Applying Knowledge in Clinical Practice 39:04 The Importance of Making a Meaningful Difference 40:31 The Role of Nutrition in Cognitive Function 42:38 The Impact of Food Choices on Inflammation 43:44 Avoiding Processed Foods and Sugar 44:38 The Role of Complex Carbohydrates and Dairy 45:28 Increasing Vegetable Consumption 46:44 Improving Lifestyle Factors 47:09 Where to Find Dr. Ilene Ruhoy Online Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   https://www.bendybodiespodcast.com/13-healing-the-brain-holistically-with-ilene-ruhoy-md-phd/ https://patreon.com/unraveledpod https://instagram.com/ileneruhoymdphd/ https://twitter.com/RuhoyMD https://tiktok.com/ileneruhoymdphd #BrainFog #BrainFogAwareness #BrainHealth #FunctionalMedicine #NutritionForBrainHealth #InflammationAwareness #MastCellActivationSyndrome #MCAS #CSFLeakInsights #TarlovCystAwareness

In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility.  Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep.  Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways: Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility. Understanding the circadian rhythm is important for optimizing sleep. Light, especially blue light, can significantly impact sleep quality. The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle. Morning light exposure is important for setting the body's internal clock. The timing of eating can affect sleep quality. Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality. Shifting sleep patterns can be challenging, especially for individuals with chronic illness. Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes. Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea. Sleep medications should be used cautiously due to potential side effects and dependency issues. Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality. Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep. Education on sleep disorders and their relationship with chronic illness should be improved in medical training. Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education. Chapters 00:00 Introduction of Dr. Roger Seheult 03:22 Understanding the Circadian Rhythm 07:02 Impact of Light on Sleep 09:20 The Suprachiasmatic Nucleus and its Role in Sleep 09:49 The Importance of Light for People with Chronic Illness 13:35 The Effect of Blue Light on Sleep 15:28 Ideal Bedtime for Optimal Sleep 17:25 The Impact of Electronics on Sleep 19:26 The Role of Melatonin in Sleep 20:05 The Importance of Morning Light 23:29 The Timing of Eating and its Effect on Sleep 24:00 Challenges of Working from Home and Small Meals 25:20 Sleep Schedule and Chronic Illness 28:57 Falling Asleep While Watching TV 31:49 Sleep Apnea and Chronic Illness 39:05 Sleep Apnea and Temporomandibular Dysfunction 44:09 EDS and Central Sleep Apnea 44:30 Elevating the Head of the Bed 45:23 Alignment Problems and Breathing 47:37 Sleep Medications and Side Effects 1:00:15 Supplements for Sleep 1:02:01 Sleep Watches and Monitoring Devices 1:03:01 Sleep Positions and Joint Instability 1:04:46 Paresthesias and Numbness in Sleep 1:05:11 Pillow Recommendations for Cervical Instability 1:07:35 Waking Up in Pain 1:09:58 Sympathetic Nervous System Activation 1:12:23 Safety of Melatonin 1:14:49 Improving Education on EDS and HSD Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowled

In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Key points discussed:  **Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations. **Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records. **Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved. **Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities. **Service Dogs:** The episode discusses obtaining a service dog and the associated considerations. **Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations. **Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed. **Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted. **Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed. Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities. Chapters 00:00 Introduction and Overview 01:14 Americans with Disabilities Act 03:28 Reasonable Accommodations in the Workplace 04:38 Determining Reasonable Accommodations 09:07 Accommodations in High School and College 11:22 Challenges with Disability Services in Education 13:59 Advocating for Accommodations in Education 16:36 Disclosing Disabilities to Employers and Universities 19:03 Determining Job Compatibility with Accommodations 21:03 Getting a Service Dog 23:37 Regulations and Considerations for Service Dog Training 36:33 Dealing with Unresponsive Disability Lawyers 38:07 Appealing Denied Disability Benefits 40:03 Legal Recourse for Undertreatment of Pain 43:07 Accommodations for Productivity Standards 43:45 Correcting Inaccuracies in Medical Records 47:46 Knowing When to Get an Accommodation or Apply for Disability 48:36 Considerations for Applying for Disability 50:23 Assets and Poverty Thr

In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion.   Takeaways Dancers, especially those with hypermobility, are at a higher risk for developing eating disorders due to the pressure to achieve a certain body image and the overlap with other mental health issues.Eating disorders are often coping mechanisms that provide a sense of control or avoidance of difficult emotions and stressors.The dance world's emphasis on perfectionism and sacrifice can contribute to the development of eating disorders.It is important for dance studios and companies to have protocols in place for addressing eating disorders and to provide support and resources for dancers.If you suspect someone may be struggling with an eating disorder, reach out to a trusted adult or professional for guidance and support. Chapters 00:00 Introduction and Welcome 00:30 Introducing Josh Spell 01:36 Prevalence of Eating Disorders in Dancers 03:09 The Relationship Between Hypermobility and Eating Disorders 05:08 Understanding Eating Disorders as Coping Mechanisms 08:00 The Intersection of Eating Disorders and Other Mental Health Issues 10:35 The Impact of Social Media and Diet Culture on Eating Disorders 13:25 Self-Image and Body Standards in the Dance World 16:19 The Influence of Social Media and Zoom on Body Image 20:25 Balancing Sacrifice and Suffering in the Dance World 23:00 The Role of Dance Studios and Companies in Supporting Dancers' Mental Health 27:13 Steps for Directors and Teachers to Take When Suspecting an Eating Disorder 32:47 Steps for Friends and Loved Ones to Take When Suspecting an Eating Disorder 36:31 Steps to Take If You Suspect You Have an Eating Disorder 42:18 Hypermobility Hack: Giving the Eating Disorder a Persona 45:12 Where to Find Josh Spell Online This important conversation with Josh Spell about disordered eating in dance will leave you feeling more knowledgeable and better equipped to handle difficult situations.   Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources mentioned during the episode: Links for show notes: https://flexiblemindcounseling.org/ https://www.instagram.com/spellbound20/ https://www.linkedin.com/in/josh-spell-msw-licsw-07b17816/ https://www.jennifer-milner.com/ National Suicide Prevention Lifeline: 1.800.273.8255 Crisis Text Line: Text HOME to 741741; Free crisis support, anywhere in US Eating Disorder Helpline: Call or text 1.800.931.2237 NEDA – National Eating Disorders Association: www.nationaleatingdisorders.org NAMI – National Alliance on Mental Illness: www.nami.org Project Heal – https://www.theprojectheal.org/ Find an Accredited Registered Dietitian (RDN) – www.eatright.org/find-an-expert Find a Therapist: www.psychologytoday.com/us/therapists #Hypermobility #JointHypermobility #BalletLife #HypermobilityAware #DanceWellness #BodyPositiveBallet #HealthyDancer #BalletBodyLove #DancerTips #NutritionForDancers #EmpoweredDancer #NourishYourPassion #MindBodyBallet #BalancedDancerLife #hEDS #EhlersDanlos #HSD

In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers.  Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Approach advocacy from a place of compassion and understandingRegulate your nervous system and slow down to make more intentional and strategic decisionsAcknowledge and process grief as a natural part of living with chronic illnessConsult with trusted individuals and healthcare providers for guidance and support.Collaboration between patients and healthcare providers can be challenging due to the merging of different knowledge and experiences.Patients can advocate for themselves by asking doctors how to prioritize and address multiple symptoms and issues.Dialectical behavioral therapy (DBT) is an effective tool for nervous system and emotional regulation.Patients should remember that their medical journey is often unfair, but there are healthcare providers working to make systemic changes. Chapters 00:00 Introduction 01:04 Motivation for Giving the Talk at the EDS Society Global Conference 04:14 Advocacy and the Challenges of the Healthcare System 07:16 Approaching Advocacy without Blame 10:27 Grief and Acceptance in Chronic Illness 13:34 Key Takeaways from the Talk 18:04 The Role of the Prefrontal Cortex in Chronic Illness 19:12 Neurodiversity and Advocacy 20:12 Presenting Research to Doctors 23:02 Dealing with Suboptimal Experiences with Clinicians 26:09 Processing Traumatic Experiences 29:16 The Role of Grief in Chronic Illness 36:09 Coping with Traumatic Experiences 40:36 Presenting Research to Doctors (Continued) 46:27 Navigating the Challenges of Collaboration 48:07 Addressing Multiple Symptoms and Issues 53:42 Dialectical Behavioral Therapy (DBT) for Nervous System and Emotional Regulation 59:41 Finding Your Way Through an Unfair Journey This important conversation with Dr. Amanda Cassil about the unfair EDS journey will leave you feeling better equipped to handle difficult medical encounters.   Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Resources mentioned during the episode: https://www.STEMpsychology.com https://www.instagram.com/stempsychology/ https://www.linkedin.com/in/drcassil https://drgabormate.com/book/the-myth-of-normal/ https://www.resmaa.com/merch https://www.besselvanderkolk.com/ #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #MedicalGaslighting  #BendyBuddy #HypermobilityMD  #BendyBodies #HealthAdvocacy #SupportPatients #PatientEmpowerment #HealthcareStruggles #WomenInStem #DisabledInStem 

In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed.  Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook.    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Key Highlights: 1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders. 2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative. 3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities. 4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations. 5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells. 6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites. 7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life. 8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions. 9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS. 10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia.  11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved. 12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects. 13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS. 14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions. Chapters 00:00 Introduction00:37 Creating Awareness and Increasing Treatment Options03:09 The Birth of the Documentary Project05:20 Filming in New York07:19 Filming in St. Louis10:32 The Motivation to Work with Complex Patients15:49 The Journey of Recognizing MCAS17:34 The Impact of MCAS Treatment21:00 Personal Experiences and Incorporating MCAS Treatment22:42 The Need for an Educational Library25:29 The Challenge of Condensing Information26:21 Describing MCAS in Sound Bites31:10 The Importance of Raising Awareness34:42 Growth and Development Abnormalities in MCAS40:03 Main Points about Hypermobility Syndromes and Dysautonomia44:48 Partnership with LDN Research Trust51:47 Final Words and Call for Support54:26 Recognition and Treatment of Unrecognized Patients55:44 Importance of Learning and Trying56:13 Gratitude for Dedicated Doctors56:47 Closing Remarks and Resources Connect with YOUR Bendy Specialist, Linda Bl

In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS.  Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients.  Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Slipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility.Evaluation and diagnosis of chest wall problems require a thorough physical exam and imaging, such as CT scans.Symptoms of chest wall compression syndromes include pain, breathing difficulties, and organ dysfunction.Emerging areas of discovery include posterior joint disorders and bridging cartilage separation.Self-help strategies, such as improving posture and specific exercises, can help manage chest wall problems and potentially avoid surgery. Maintaining good posture and performing exercises that strengthen the back can help alleviate slipping rib syndrome.Taping strategies and lifestyle changes, such as using lumbar pillows and sit-to-stand desks, can provide relief and improve posture.Avoid high velocity manipulation, as it can exacerbate slipping rib syndrome.Candidates for surgery should have a strong core, realistic expectations, and should reduce or eliminate the use of pain medications before the procedure.The Hansen 3.0 technique is the preferred surgical procedure for slipping rib syndrome, offering better outcomes compared to previous techniques.The surgery has a low rate of complications, with the most common being collapsed lungs, hematomas, and wound infections.There is no significant difference in outcomes between patients with hypermobility spectrum disorder and those with Ehlers-Danlos syndrome.The likelihood of recurrence or additional slipped ribs after repair is low when the surgery is performed correctly.Physicians should be aware of slipping rib syndrome and other chest wall problems and stay updated on the latest techniques and treatments. Dr. Adam Hansen teaches other surgeons how to address slipping ribs and complex chest wall reconstruction.He has built a network of surgeons around the world to provide local treatment options for patients.There is a correlation between cervical instability and slipping ribs, and both are part of the broader issue of hypermobility and skeletal disorders.Focusing on key areas for stability, such as the core, can have a significant impact on overall care and muscle strength.Chapters 00:00 Introduction and Warm-up01:03 Background and Expertise of Dr. Adam Hansen03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility14:01 Evaluation and Diagnosis of Chest Wall Problems21:16 Symptoms and Impact of Chest Wall Compression Syndromes24:49 Emerging Areas of Discovery in Slipping Rib Syndrome28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging36:37 Abdominal Compression Syndromes and Chest Wall Disorders41:19 Self-Help Strategies and Avoiding Surgery43:48 Posture and Exercise45:09 Taping Strategies and Lifestyle Changes46:23 Avoiding High Velocity Manipulation48:08 Qualifications for Surgery51:18 Preparing for Surgery53:21 Surgical Procedures58:08 The Hansen 3.0 Technique01:01:18 Outcomes and Complications01:20:06 Hypermobility Spectrum Disorder and EDS01:21:09 Male-Female Differences01:22:11 Recurrence and Additional Slipped Ribs01:23:49 Physician Awareness and Education01:24:58 Teaching Other Surgeons01:26:05 Building a Network of Surgeons01:26:50 Correlation Between Cervical Instability and Slipping Ribs01:28:38 Hypermobility and Skeletal Disorders01:29:59 Key Areas for Stability01:30:17 Hypermobility Hacks01:31:00 Finding Dr. Adam Hansen Online01:33:33 Closing Remarks This important conversation with Dr. Adam Hansen about surge

In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.'  Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll Model® are found at gyms, yoga studios, hospitals, athletic training facilities and corporations worldwide. Jill is the former anatomy columnist for Yoga Journal, has been featured in New York Times, Wall Street Journal, Shape, Women’s Health, O, the Today Show, and is a contributing expert on the Oprah Winfrey Network.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Jill Miller's book 'Body by Breath' is a comprehensive guide to physical and emotional resilience.Bendy bodies should care about fascia because it is the organizing tissue of the entire body and affects mobility and stability.Self-mobilization and self-myofascial release are important for bendy bodies to address tension and enhance proprioception.The five P's of the parasympathetic nervous system (perspective, place, position, pace of breath, and palpation) can help induce relaxation and enhance body awareness.The low back decompression exercise using therapy balls can provide relief and improve proprioception for bendy bodies. Improving core strength and breathing is essential for hypermobile bodies.Understanding zone one, zone two, and zone three breathing can help manage pain, movement, and emotional states.Self-fascial treatments, such as deep gut and rib massage, can improve breathing and alleviate hypertonicity.Extracorporeal shockwave therapy is a non-invasive treatment that can reduce inflammation and alleviate pain.Community support and engagement are crucial for managing hypermobility.High-intensity interval training can improve aerobic capacity and overall well-being for hypermobile individuals.  It is highly recommended to have individual guidance for this. Chapters 00:00 Introduction and Background03:01 Inspiration for Writing the Book09:11 Organization of the Book13:30 Why Bendy Bodies Should Care About Fascia15:40 Starting with Limited Budget19:02 Helpful Exercises for Bendy Bodies23:27 Addressing Mixed Picture of Bendiness and Stiffness28:07 The Five P's of the Parasympathetic Nervous System36:14 Low Back Decompression Exercise46:07 Improving Core Strength and Breathing51:41 Understanding Zone One, Zone Two, and Zone Three Breathing57:29 Self-Fascial Treatments for Better Breathing01:00:10 Managing Hypermobility Symptoms01:03:35 Extracorporeal Shockwave Therapy for Acute Pain01:09:10 The Power of Community and High-Intensity Interval Training This important conversation with Jill Miller about using the breath to reduce pain will leave you feeling more knowledgeable and with a better understanding of the contributing factors to suboptimal pain control.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: www.tuneupfitness.comhttps://thereadystate.com/https://thereadystate.com/product/becoming-a-supple-leopard-2nd-edition/https://fasciaguide.com/experts/carla-stecco/ https://jen.health/ https://www.tuneupfitness.com/shop/online-course/roll-into-hiit https://patternpt.com/ https://www.youtube.com/@TuneUpFitness https://www.amazon.com/Yoga-Bendy-People-Optimizing-Hypermobility/dp/B0B2TSN3W3/ref

In this episode, YOUR guest is Colin Halverson, PhD.  He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS). YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Patients with Ehlers-Danlos syndrome often face an antagonistic relationship with healthcare professionals, leading to mistrust and negative health outcomes.The diagnostic odyssey experienced by patients with EDS can be likened to a hero's journey, characterized by challenges, misdiagnoses, and a long path to diagnosis.The panoply of symptoms in EDS and the complexity of chronic pain make it difficult for patients to describe their experiences and receive appropriate care.Clinician-associated traumatization is a distinct construct that captures the negative experiences and trauma patients with EDS face in their interactions with healthcare professionals.Building a trustworthy team of clinicians and seeking support from the EDS community can help patients navigate the challenges of their condition and improve their healthcare experiences.Chapters 00:00 Introduction 00:29 Dr. Halverson's Background and Research Interest 03:02 The Hero's Journey of Patients with Ehlers-Danlos Syndrome 05:51 Challenges Faced by Patients with Ehlers-Danlos Syndrome 07:02 Antagonistic Relationship with Healthcare Professionals 08:29 Impact of Antagonistic Relationship on Patients 09:47 Triggers for Transition into Unbearable Symptoms 12:36 The Panoply of Symptoms in Ehlers-Danlos Syndrome 13:44 Importance of Panoply of Symptoms in Diagnosis 15:22 Challenges in Describing Multi-Systemic Symptoms 16:26 Numeric Pain Scales and the Complexity of Chronic Pain 19:40 Research on Hypermobile Ehlers-Danlos Syndrome 20:39 Research on Other Forms of Ehlers-Danlos Syndrome 23:56 Failure of Empathy in Patient-Provider Relationships 27:24 Worse Health Outcomes and Trust Issues 28:06 Impact of Failure of Empathy on Patients 30:33 Dealing with Antagonistic Relationships 31:45 The Isolation and Invisibility of Ehlers-Danlos Syndrome 36:12 Clinician-Associated Traumatization and its Differences from Other Constructs 39:21 Surprising Aspects of the Research 42:01 Recommendations for Patients with Clinician-Associated Traumatization 45:01 Future Directions of Research 49:04 Closing Remarks This important conversation with Dr. Halverson about clinician-associated trauma in patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) will leave you feeling better prepared to advocate for the care you need.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, articles, and services mentioned in this episode: https://bioethics.iu.edu/people/colin-halverson.html https://pubmed.ncbi.nlm.nih.gov/34524722/ https://doi.org/10.1016/j.ssmqr.2023.100237 Dr. Halverson can be reached at chalver@iu.edu. #InvisibleIllness #HealthJourney #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #BendyBuddy #HypermobilityMD #BendyBodies #EhlersDanlosResearch #MedicalGaslighting #PatientSupport #ResearchOpportunity #DiagnosticJourney

In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing.  Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Posture and alignment play a crucial role in foot pain in people with joint hypermobility.Orthotics can be an effective intervention for managing foot pain in hypermobile patients.Assessing and addressing foot pain early in children can prevent the development of other pain problems.Proper shoe selection and tying techniques are important for managing foot pain. Failed physical therapy may be due to a lack of addressing all systems and factors contributing to the condition.Orthotics can fail if they are not properly assessed and customized to the individual's foot flexibility and posture.Over-the-counter orthotics can be a more affordable option, but it is important to choose ones that provide proper support and alignment.Self-mobilization exercises, such as using a foam ball to mobilize the foot joints, can help improve foot mobility and relieve pain.Addressing foot stability and proprioception is crucial for maintaining proper foot alignment and preventing issues related to hypermobility.Hypermobility in ice skaters is a specific topic that may be worth exploring in a future episode. Foot problems are common and can cause significant discomfort and pain.Proper lacing techniques can help alleviate foot pain and discomfort.Lisa Ralston provides valuable insights and tips for managing foot problems.Chapters 00:00 Introduction and Guest Introduction 02:05 Causes of Foot Pain in People with Joint Hypermobility 06:12 Approach to Hypermobility Patients 08:18 Common Causes of Foot Pain 10:10 Pain Begets Pain 11:36 Approach to Hypermobile Patients 14:59 Orthotics for Children 17:02 Different Approach for Hypermobile Patients 19:06 Assessment and Treatment of Foot and Ankle 21:00 Shoe Selection and Tying Techniques 23:19 Different Foot Types and Shoe Recommendations 26:31 Importance of Firm Heel Counter in Shoes 27:45 Tying Shoes Properly 31:40 Recommended Shoe Brands 34:53 Orthotics and Failed PT 39:51 Addressing Failed PT 47:51 Orthotics and Failed Orthotics 53:48 Over-the-Counter Orthotics 56:06 Self-Mobilization of Feet 01:08:46 Hypermobility in Ice Skaters 01:09:16 Hypermobility Hacks 01:09:26 Foot Problems and Solutions 01:10:21 Lacing Techniques for Foot Comfort 01:10:54 Finding More Information Online This important conversation about foot pain and orthotics in people with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD) and other hypermobility conditions will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the contributing factors to suboptimal foot function.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://lisaralstonpt.janeapp.com/ https://www.bauerfeind.com/b2c/ https://www.oofos.com/ https://www.abeofootwear.com/ https://www.humanlocomotion.com/ https://www.brooksrunning.com/en_u https://www.hoka.com/en/us/ https://www.aetrex.com/home https://yoursole.com/us https://www.vasylimedical.com/ https://www.birkenstock.com/us https://www

In this episode, YOUR guest is Dacre Knight, MD.  Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.   Explored in this episode: ·  What specialty evaluations are most important for patients with hypermobility syndromes ·  What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD ·  How they determine when to perform genetic testing and the findings in this group of patients ·  How his approach has evolved since the clinic’s inception in 2019 ·  The research that he has conducted and relevant findings ·  The role of autoimmunity in EDS and HSD ·  Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS) ·  The role of the immune system in symptomatic joint hypermobility ·  The relationship with fibromyalgia ·  What percentage of patients are diagnosed with hEDS vs HSD ·  What he says to people who assume that HSD is a less serious condition This important conversation about Dr. Knight’s approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic Connect Ehlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinic https://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206 https://x.com/knidac?s=21 https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/full https://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdf https://pubmed.ncbi.nlm.nih.gov/35687402/ https://www.ehlers-danlos.com/ https://www.ehlers-danlos.com/healthcare-professionals-directory/ #BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax #SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration #InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility