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Episode Title: Understanding FND | Featuring Professor Jon Stone In this short episode of The FND Podcast, Detty shares an educational presentation from Professor Jon Stone, Consultant Neurologist at the University of Edinburgh and one of the leading researchers in Functional Neurological Disorder (FND). Professor Stone has been at the forefront of improving understanding and awareness of FND around the world. In this presentation, he explains what FND is, how it affects the way the brain and body communicate, and why increasing knowledge and awareness of the condition is so important. Functional Neurological Disorder is a common neurological condition that can cause a wide range of real and often disabling symptoms, yet it remains widely misunderstood. This episode shares part of Professor Jon Stone’s presentation with permission from FND Australia Support Services, helping to bring accurate education and awareness about FND to a wider audience. RESOURCES Neurosymptoms (Educational Resource on FND)https://neurosymptoms.org/en/ Professor Jon Stone Presentationhttps://www.youtube.com/watch?v=IA3FryUr1UQ&t=154s CREDITS Special thanks toFND Australia Support Services Professor Jon Stone Consultant Neurologist, University of Edinburgh Recording shared with permission from FND Australia Support Services Music:Life is Tough But So Are You – Vanessa Campagna (Soundstripe)Seedling – Midnight Daydream (Soundstripe) Edited with Ferrite Edited byMaria Placido / Odettecreates © Maria Placido / Odettecreates 2026

What happens when your body stops functioning? And the neurologist simply says " Deal with it".. Suggesting its all in your head? In this powerful episode, Brad shares his personal journey from collapse and confusion to finding his voice in the FND community.  Diagnosed with functional Neurological disorder after a barrage of symptoms and no clear answers, Brad was left to navigate the system alone. But instead of staying silent he took action: We talk about *The moment it all started * The trauma of misdiagnosis and dismissal *Brads current petition to improve FND care The emotional Toll of FND and how it reshapes identity The importance of community support and speaking out Follow Brad: Youtube : @unshakenbrad Instagram: @fndwarrior2024 Tiktok: @unshakenbrad Click here for Brads current petition:  https://petition.parliament.uk/petitions/727063?utm_medium=social&utm_source=heylink.me Other current petitions that are on Change.org ALSO if you are in NZ or just wanting to find out more about FND FND AWARE NZ Music by soundstripe licensed to be used on this podcast:  Nu Alkemist : At a glance Alsever : Paper Treats Matt Wigton: Thoughts are free Map zoom in   Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.   FND AUSTRALIAN SUPPORT SERVICES    A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.   IF you would like to support FND Australia Services and would like to have a look at some merchandise click here   FND ACTION : https://www.fndaction.org.uk   FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.   FND GUIDE.   A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation   FND DIMENSIONS   FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look The FND Society The FND Society is a welcoming and informative space created by people with FND for people with FND. It offers a growing range of resources — including guides, videos, interviews, real-life stories, and practical support — to help you understand your condition, connect with others, and feel empowered in your journey. It’s not just information — it’s community. It’s validation. And it’s a reminder that you’re not alone. they are also a great resource into learning more about FND.https://www.neurokid.co.uk/\   A website for young people and families living with NEAD and neurological symptom Information on Non Epileptic Seizures or NEAD   https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf https://fndportal.org/   Health Professionals who want to learn about FND, and recommending to learn and follow or if you just want to learn more about FND: Haseel Bhatt Neuro Physiotherapy  Instagram: Functionalneurologicaldisorder  Website: Neurology Rehab ( Click to go to website)  For training about FND especially if you are a health professional or allied health please check this website out for courses available   Jason Kreuzman: Peadiatric Occupational Therapist FND Instagram: FND_OT Website: RewireOT (click here to go to website) A great resource for carers, families and health professionals who want to learn about FND also register your interest in a course for FND   Nada! A MUST FOLLOW Instagram: Fnd_revolution Podcast: FEM AND STEM podcast (click here to listen) Youtube: FND REVOLUTION TV She is a brilliant FND advocate and warrior. I cannot recommend her enough please follow her, subscribe and watch.   The FND Podcast song of the week: Fix you by Coldplay https://open.spotify.com/track/7LVHVU3tWfcxj5aiPFEW4Q?si=c2eecb790ac24dfd It's a song that has got me through a couple of times XO Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.   The Cadenza for fractured consciousness   From Medium.com on the fnd portal   The Road to Functional Neurological Disorder by Gabriel Brownstein   FND is not fake or Malingering   Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. This is a story of courage, advocacy and refusing to be invisible. If you live with FND or love someone who does this ones for you.

In this insightful and compassionate episode of The FND Podcast, Detty is joined by Jason Kreuzman, a pediatric occupational therapist based in St. Louis, Missouri, who specialises in treating children with Functional Neurological Disorder (FND). Together, they explore what occupational therapy really is, how it differs from physiotherapy, and the powerful role it can play in helping children and teens with FND rebuild their lives — one meaningful activity at a time. Jason shares how he adapts therapy for young people, how to support kids returning to school, and why building confidence and safety is key to long-term recovery. Whether you’re a parent of a newly diagnosed child, a healthcare professional wanting to understand FND better, or someone looking for practical tools and real hope, this episode is full of heart, helpful insights, and supportive guidance.  Topics covered:
– What occupational therapy looks like for FND
– Explaining FND to children in age-appropriate ways
– Supporting school transitions and daily life
– Creating personalised care plans for families
– Raising awareness in the healthcare system
– Free resources now available for pediatric FND care This one’s a must-listen for families, carers, educators, and therapists — and a powerful reminder that support for kids with FND does exist. This Episodes notes: Follow Jason Kruzeman on instagram @fnd_ot also click here to have a good look at this amazing new FND resource www.rewireot.com All resources mentioned in the podcast can be accessed through this new website. Also check out www.fndsociety.org  they are also a great resource into learning more about FND.   Music used in this Podcast is from Soundstripe : licensed for use   Spring Cleaning by Lunerah Nobody by Ellisan We know by Aaron Sprinkle   Just like me by Thruline   Light the way by Ian Kelosky   Map zoom out   Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.   FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/   A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.   IF you would like to support FND Australia Services and would like to have a look at some merchandise click here   FND ACTION : https://www.fndaction.org.uk   FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.   FND GUIDE. :https://neurosymptoms.org/en/   A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation   FND DIMENSIONS: http://fnddimensions.org/   FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look   https://www.neurokid.co.uk/\   A website for young people and families living with NEAD and neurological symptom   https://fndportal.org/   Amazing website with information and links to fnd   Information on Non Epileptic Seizures or NEAD   https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf   The FND Podcast song of the week:   Stronger by Kelly Clarkson   Just a really uplifting song   Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.   The Cadenza for fractured consciousness   From Medium.com on the fnd portal   The Road to Functional Neurological Disorder by Gabriel Brownstein   The published research Paper on FND by Haseel Bhatt   FND is not fake or Malingering   Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have.

🎙️ The JJ Segment: Catching Up with Jess – Working, Writing, and Living with FND In this deeply honest and joyfully heartfelt episode of The FND Podcast, Detty sits down with the wonderful Jess for a long-overdue catch-up on the JJ Segment. From moving states, to getting married, to navigating life with FND while diving headfirst into a blue-collar job — Jess shares it all with her trademark humour, grit, and glowing resilience.   Together, we unpack what it’s really like returning to work with Functional Neurological Disorder, from workplace seizures and flare-ups to pacing, planning, and the importance of telling your employer. Jess opens up about her journey from overdoing it to finding a more manageable balance — and how she's learned to adapt rather than fight her FND.   But that’s not all — Jess is also a published author! We chat about her newest fantasy release "Woman of Wolves", her passion for storytelling, and how she balances creative life with chronic illness. You’ll laugh, nod, maybe even tear up — and definitely walk away feeling inspired.   ✨ In this episode: – Jess’s journey with FND & employment – Coping with seizures at work – The emotional evolution of living with FND – Why communication with employers matters – Writing through chronic illness – Creating a fantasy world… and lifting 3 tonnes of flour a day?! 💪 – The gift of self-acceptance and finding your pace   📚 Want to support a fellow FND warrior? Check out Jess’s books on Amazon and follow her on TikTok @jessmcfarlane  A massive thank you to Jess for being so open and shining your light. And to our listeners: you’re not alone. Your journey with FND is your own, but we’re right here beside you.   Stay safe, love hard, and peace — see you on the flip side 💛 To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone.  Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes. This Episodes notes: Job Access : the guide to disability employment : click here for more details Disability support services Australia in Victoria click here for more details Employment programs: disability *Aus government.  Returning back to work presentation on FND Australia Support Services Channel : Click here for more details Transitioning from school to work with a disability: click here for more details If you feel like you would like to Volunteer in Australia : click here for more details Caitlins story with FND and work : If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more details Note: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that  I've found so far however there is more out there :   For USA from what I could see : Job Training and programs for people with a disability Americans with Disability Act : protecting people with disabilities from discrimination Office for disability employment policy click here For Canada: Canadian Association for Supported Employment click here Canada employment Strategy for Canadians with disabilities click here For England: Employment disability rights click here:  Careers and work for disabled people from Disability rights UK click here Ability Net : Information about Disability and Employment    Music used in this Podcast is from Soundstripe : licensed for use Flowstate by Pala This and That by Nu Alkemi$t Life in Pastels by Matt Wigton Map zoom out Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community. FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/ A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. IF you would like to support FND Australia Services and would like to have a look at some merchandise click here FND ACTION : https://www.fndaction.org.uk FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND GUIDE. :https://neurosymptoms.org/en/ A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation FND DIMENSIONS: http://fnddimensions.org/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look  https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf The FND Podcast song of the month: Rise above by Alberto Giurioli and Geoff Lawson Click here to listen Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein The published research Paper on FND by Haseel Bhatt FND is not fake or Malingering Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have.

In this heartfelt episode of The FND Podcast, Detty welcomes back the inspiring Tiarne, who bravely shares her personal journey of returning to work while living with Functional Neurological Disorder (FND). From the early days of navigating symptoms and mobility aids to finding the balance between part-time work and self-care, Tiarne opens up about the realities, challenges, and victories of employment with a chronic condition. Whether you’re considering re-entering the workforce, looking into volunteering, or simply curious about how others manage FND in the workplace — this conversation is filled with honesty, insight, and encouragement. Tiarne reminds us that pacing, self-awareness, and finding supportive environments can make all the difference. We also talked about – Flexible working arrangements – Managing symptoms on the job – Advocating for your needs – What really matters when you’re living with FND – The power of purpose and doing what you love A huge thank you to Tiarne for being so open and sharing her lived experience working with FND Don’t forget to check out the show notes for helpful resources and past episodes, including Tiarne’s My FND Reality and our insightful chat with Katherine Gill from FND Australia Support Services on returning to work. As always — stay safe, love hard, and peace. See you on the flip side  To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone.  Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes. click here to listen to this episode  To listen to Tiarnes FND Journey and her FND REALITY episode CLICK HERE This Episodes notes: Job Access : the guide to disability employment : click here for more details Disability support services Australia in Victoria click here for more details Employment programs: disability *Aus government.  Returning back to work presentation on FND Australia Support Services Channel : Click here for more details Transitioning from school to work with a disability: click here for more details If you feel like you would like to Volunteer in Australia : click here for more details Caitlins story with FND and work : If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more details Note: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that  I've found so far however there is more out there :   For USA from what I could see : Job Training and programs for people with a disability Americans with Disability Act : protecting people with disabilities from discrimination Office for disability employment policy click here For Canada: Canadian Association for Supported Employment click here Canada employment Strategy for Canadians with disabilities click here For England: Employment disability rights click here:  Careers and work for disabled people from Disability rights UK click here Ability Net : Information about Disability and Employment  Music used in this Podcast is from Soundstripe : licensed for use Lets be three by Sam Marsh Just like me by Thruline Light the way by Ian Kelosky Map zoom out Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community. FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/ A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. IF you would like to support FND Australia Services and would like to have a look at some merchandise click here FND ACTION : https://www.fndaction.org.uk FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND GUIDE. :https://neurosymptoms.org/en/ A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation FND DIMENSIONS: http://fnddimensions.org/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look  RewiredOT (click here to check it out)  is a compassionate, educational resource hub created by an Occupational Therapist Jason Kruzeman. It offers a unique blend of clinical knowledge and personal insight, focusing on nervous system regulation, sensory processing, and trauma-informed support for people living with FND and other complex conditions. The website provides accessible guides, tools, and reflections that help people better understand their body’s responses, build safety into daily life, and work with—not against—their nervous system. Rather than pushing through or "fixing" symptoms, RewiredOT encourages gentle curiosity, pacing, and self-kindness—a refreshing and validating approach for anyone navigating FND. Whether you're newly diagnosed or looking to deepen your understanding, RewiredOT is a safe, thoughtful space that meets you where you are.https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf The FND Podcast song of the week: U & I by Kolidescopes click to listen here Just a really uplifting song Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein The published research Paper on FND by Haseel Bhatt FND is not fake or Malingering Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have.

To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone.  Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes. This Episodes notes: Job Access : the guide to disability employment : click here for more details Disability support services Australia in Victoria click here for more details Employment programs: disability *Aus government.  Returning back to work presentation on FND Australia Support Services Channel : Click here for more details Transitioning from school to work with a disability: click here for more details If you feel like you would like to Volunteer in Australia : click here for more details Caitlins story with FND and work : If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more details Note: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that  I've found so far however there is more out there :   For USA from what I could see : Job Training and programs for people with a disability Americans with Disability Act : protecting people with disabilities from discrimination Office for disability employment policy click here For Canada: Canadian Association for Supported Employment click here Canada employment Strategy for Canadians with disabilities click here For England: Employment disability rights click here:  Careers and work for disabled people from Disability rights UK click here Ability Net : Information about Disability and Employment    Music used in this Podcast is from Soundstripe : licensed for use Daybreak by Ghostbeatz Undeniable by Johanna Cranitch New Start by Jenie Villa Map zoom out Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community. FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/ A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. IF you would like to support FND Australia Services and would like to have a look at some merchandise click here FND ACTION : https://www.fndaction.org.uk FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND GUIDE. :https://neurosymptoms.org/en/ A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation FND DIMENSIONS: http://fnddimensions.org/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look  https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf The FND Podcast song of the month: Rise above by Alberto Giurioli and Geoff Lawson Click here to listen Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein The published research Paper on FND by Haseel Bhatt FND is not fake or Malingering Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have.

On this episode we talk to Haseel Bhatt who is a specialist Neuro Physiotherapist specialising not only in FND but in other movement Disorders. Join us as we talk FND but also Neurophysiotherapy. Thankyou so very much for talk to us Haseel grateful and very much appreciated we hope you can join us again. Thankyou for all that you do . This Episodes notes: Haseel Bhatt is the founder of Neurology Rehab Clinic   What he offers for treatment with FND click here: and also he has a blog click here to view He has a research paper that has research paper that has been published click here to view For Haseel Bhatts instagram follow him @functionalneurologicaldisorder or click here to go to his page His FND Physiotherapy Course for health practitioners  will be held on 24th-25th May 2025 in Toronto Canada. For more information or to register go to the Neurology Rehab website or click here Music used in this Podcast is from Soundstripe : licensed for use Lucky by Lunareh Just like me by Thruline Just to breath by Novva Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community. FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/ A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. IF you would like to support FND Australia Services and would like to have a look at some merchandise click here FND ACTION : https://www.fndaction.org.uk FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND GUIDE. :https://neurosymptoms.org/en/ A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation FND DIMENSIONS: http://fnddimensions.org/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf The FND Podcast song of the month: Rise above by Alberto Giurioli and Geoff Lawson Click here to listen Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein The published research Paper on FND by Haseel Bhatt FND is not fake or Malingering

Happy FND Awareness day. To celebrate, we are honored to be speaking to one of the biggest FND advocates in Australia. Dr. Katherine Gill has returned to speak about FND and FND Awareness. Thankyou for talking on the FND Podcast it’s always amazing to hear your perspective and insights about FND as well as what services FND Australia support services does. This Episodes notes: If you would like to know more or access the FND Australian Support Services App: Click here to to find out more about the APP: Advocacy: What is patient advocacy? At the present moment QLD and NSW are the only states that have these programs. Other states in Australia you would need to speak with a Patient Advocate in that hospital. In Queensland there is Ryans Rule In NSW there is Reach which is proposed to be renamed recently Joes Rule Music used in this Podcast is from Soundstripe : licensed for use Lightspeed by Pala Leap of Faith by Pala Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community. FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/ A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. FND ACTION : https://www.fndaction.org.uk FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND GUIDE. :https://neurosymptoms.org/en/ A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation FND DIMENSIONS: http://fnddimensions.org/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf The FND Podcast song of the month: Never be alone by Shawn Mendes https://youtu.be/N7VCLNBNJQs?si=0SEAetWzyoNAqylV Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal  The Road to Functional Neurological Disorder by Gabriel Brownstein

The FND podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging. Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community. FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/ A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. FND ACTION : https://www.fndaction.org.uk FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND GUIDE. :https://neurosymptoms.org/en/ A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation FND DIMENSIONS: http://fnddimensions.org/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf The FND Podcast song of the month: Never be alone by Shawn Mendes https://youtu.be/N7VCLNBNJQs?si=0SEAetWzyoNAqylV Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal  The Road to Functional Neurological Disorder by Gabriel Brownstein  MUSIC from Sounstripe: licensed and approved to use on this podcast.

Warning: this episode contains sensitive topics which can be triggering to some listeners. Please be advised. On this episode of the JJsegment Jess talks about how life has been this past year and about Mental Health. We are grateful that she has shared how she has been. Thankyou Jess for sharing. In the meantime she is an incredible author and you can support Jess also by reading her wonderful book!  Follow Jess on Instagram @functionallyjessWIDOWS FLAME: Jess is an author and she has received glowing reviews on her book. She is an amazing writer and you can purchase and read her book at most book stores. https://www.shawlinepublishing.com.au/our-titles/display/252-widowand%2339%3Bs-flame Goodreads: https://www.goodreads.com/en/book/show/63062237 Booktopia: https://www.booktopia.com.au/widow-s-flame-jess-mcfarlane/ebook/9781922850126.html Foreign Accent syndrome https://pubmed.ncbi.nlm.nih.gov/27234850/#:~:text=Foreign%20accent%20syndrome%20(FAS)%20is,a%20video%20of%20her%20speech. https://youtu.be/x18AQT6yKGg NDIS:(available in Australia) https://www.ndis.gov.au/understanding/what-ndis The NDIS Provides funding to eligible people with disability to gain more time with family and friends, greater independence, access to new skills, jobs , or volunteering in their community and an improved quality of life. The NDIS connects anyone with disability to services in their community.  Is it still relevant the BMI index: it's questionable https://www.medicalnewstoday.com/articles/265215#Waist-to-height-ratio-better-than-BMI Food pyramid relevant still? https://www.houstonmethodist.org/blog/articles/2019/dec/is-the-food-pyramid-still-relevant/ Introducing the myplate: https://www.uabmedicine.org/news/myplate-healthy-eating-chart-replaced-the-food-pyramid/#:~:text=In%202011%2C%20the%20U.S.%20Department,start%2C%20MyPlate%20is%20for%20you. A previous episode of medical cannibis: https://thefndpodcast.simplecast.com/episodes/conversations-with-chrissie-lets-talk-medical-cannibis The game:Marrying Mr Darcy https://boardgamegeek.com/boardgame/145308/marrying-mr-darcy The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging. The FND Podcast with detty : song resonating at the moment maybe our song : The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube. https://youtu.be/o3sXlxg4d5c Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal  The Road to Functional Neurological Disorder by Gabriel Brownstein  Also anything covid related and fnd here on neuro symptoms : https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/ A recent article written June this year what do you think ? From MJA  https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist  https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1 FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW https://imprintmerch.com.au/collections/lets-have-the-chat from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out! HELPFUL RESOURCES: A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland. https://www.neurosymptoms.org/ Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0 An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant! Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation https://www.tiktok.com/@drbuttgastro/video/7020472244954549510 https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf FND ORGANISATIONS: https://www.fndaus.org.au/ FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. FND Australia Support services App: Android https://apksos.com/app/fndaustralia.com Apple https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706 Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. https://www.fndaction.org.uk/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. http://fnddimensions.org/ A really helpful article and explanation of what FND is: ' https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ   Other podcasts/ blogs / vlogs to follow: itsmeitsmeitsfnd by none other than our Jake!  https://www.tomplender.com/ Tom Plender : follow this amazing creative human his art, music and writing on fnd  https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1 Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/ John McLeans Fnd Journey https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0 Lmtd Life with FND https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks Instagram follow Emma’s journey :@emmas_fnd_fun People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out Dylan Alcott Athelete , paraolympics , podcaster , raising awareness and voices of the disabled Instagram :@ listenable_podcast @dylanalcott Website: www.abilityfest.com.au   Elle Stella Business Success Coach , Paraolympian & intuitive healer Instagram: @iamellesteele Website: www.iamellesteele.com Carly Findlay Activist, writer, Blogger with a condition called ichtchyosis. Instagram: @carlyfindlay Website: www.carlyfindlay.com.au Sophie Butler Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude Instagram: @sophjbutler YouTube: https://youtu.be/wgfAYDlXXvM Meg Jacks She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND Instagram: @Meg.Jacks_ TicTok: Megjacks   Julian Gavino (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation Instagram:  @thedisabledhippie Nina Tame aka the Lunch Lady She’s a single mum who’s disabled and a disability advocate. Parenting with disability Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/ Chloè Haden she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism. Instagram: @princesssapien Website: https://www.chloehayden.com.au/ Youtube: Chloè Haden   Style like U Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin. Website: https://stylelikeu.com/about-us/ Lucy Dawson who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing. Instagram : @luuudaw Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/ Cripple Media Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important

Following on the episode "Hello Mr. Tom Plender" we talked about the Inform the Doctor campaign that FND ACTION has. With Toms permission we were able to record his explanation he had on this campaign and encourage you wherever you are in the world to utilise this campaign/information. It is a worldwide campaign and it's to help spread the awareness of the advancements of FND. To find out more head to FND ACTION website: www.fndaction.org.uk , follow Tom on his instagram : @tplender and have a look at his website at www.tomplender.com  FND ACTION UK : FND AWARENESS DAY https://www.fndaction.org.uk/fnd-awareness-day-uk/ Click on the link to participate Including two paediatric consultants in FND:  if you are a parent and would like to participate especially you're more than welcome to join and ask questions.  Inform the doctor: https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/ INTERVIEWS AND ARTICLES: Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqko GB News https://youtu.be/8EMspXvKWd8 I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655 FND : Tiktok https://www.tiktok.com/tag/fnd?lang=en FNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor Music:  Winter at east darby by TAYME Europian Sunrise by Anthony Catacoli The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging. The FND Podcast with detty : song resonating at the moment maybe our song : The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube. https://youtu.be/o3sXlxg4d5c Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal  The Road to Functional Neurological Disorder by Gabriel Brownstein  Also anything covid related and fnd here on neuro symptoms : https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/ A recent article written June this year what do you think ? From MJA  https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist  https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1 FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW https://imprintmerch.com.au/collections/lets-have-the-chat from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out! HELPFUL RESOURCES: A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland. https://www.neurosymptoms.org/ Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0 An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant! Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation https://www.tiktok.com/@drbuttgastro/video/7020472244954549510 https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf FND ORGANISATIONS: https://www.fndaus.org.au/ FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. FND Australia Support services App: Android https://apksos.com/app/fndaustralia.com Apple https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706 Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. https://www.fndaction.org.uk/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. http://fnddimensions.org/ A really helpful article and explanation of what FND is: ' https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ   FND TOGETHER: https://fndtogether.com/en   itsmeitsmeitsfnd by none other than our Jake!  https://www.tomplender.com/ Tom Plender : follow this amazing creative human his art, music and writing on fnd  https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1 Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/ John McLeans Fnd Journey https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0 Lmtd Life with FND https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks Instagram follow Emma’s journey :@emmas_fnd_fun People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out Dylan Alcott Athelete , paraolympics , podcaster , raising awareness and voices of the disabled Instagram :@ listenable_podcast @dylanalcott Website: www.abilityfest.com.au   Elle Stella Business Success Coach , Paraolympian & intuitive healer Instagram: @iamellesteele Website: www.iamellesteele.com Carly Findlay Activist, writer, Blogger with a condition called ichtchyosis. Instagram: @carlyfindlay Website: www.carlyfindlay.com.au Sophie Butler Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude Instagram: @sophjbutler YouTube: https://youtu.be/wgfAYDlXXvM Meg Jacks She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND Instagram: @Meg.Jacks_ TicTok: Megjacks   Julian Gavino (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation Instagram:  @thedisabledhippie Nina Tame aka the Lunch Lady She’s a single mum who’s disabled and a disability advocate. Parenting with disability Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/ Chloè Haden she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism. Instagram: @princesssapien Website: https://www.chloehayden.com.au/ Youtube: Chloè Haden   Style like U Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin. Website: https://stylelikeu.com/about-us/ Lucy Dawson who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing. Instagram : @luuudaw Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/ Cripple Media Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness Instagram: @cripple media Website: https://cripplemedia.com/about/ Aaron Rose Philip  For more information check out this wonderful article here https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893 Instagram:aaron_phillip transgendered disabled fabulous Model check him out Nicole Parish she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest A great news platform for young Australians to get the

Follow Jake on his podcast! Check it out!!!!! Itsmeitsmeitsfnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L Check out Jake on his youtube channel:  and as they say if you love what he does  : like follow and subscribe! @punkchef41 https://youtube.com/shorts/JVoLO3Vtt8s?feature=share Foreign Accent Syndrome: https://pubmed.ncbi.nlm.nih.gov/30826739/ Kelly Clarkson show : on youtube @thekellyclarksonshow https://www.youtube.com/watch?v=X20Spi7EOQY Kelly Clarkson and Pink sing on this youtube video and they are crazy amazing   The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging. The FND Podcast with detty : song resonating at the moment maybe our song : The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube. https://youtu.be/o3sXlxg4d5c Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal  The Road to Functional Neurological Disorder by Gabriel Brownstein  Also anything covid related and fnd here on neuro symptoms : https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/ A recent article written June this year what do you think ? From MJA  https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist  https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1 FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW https://imprintmerch.com.au/collections/lets-have-the-chat from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out! HELPFUL RESOURCES: A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland. https://www.neurosymptoms.org/ Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0 An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant! Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation https://www.tiktok.com/@drbuttgastro/video/7020472244954549510 https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf FND ORGANISATIONS: https://www.fndaus.org.au/ FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. FND Australia Support services App: Android https://apksos.com/app/fndaustralia.com Apple https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706 Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. https://www.fndaction.org.uk/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. http://fnddimensions.org/ A really helpful article and explanation of what FND is: ' https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ   FND TOGETHER: https://fndtogether.com/en   itsmeitsmeitsfnd by none other than our Jake!  https://www.tomplender.com/ Tom Plender : follow this amazing creative human his art, music and writing on fnd  https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1 Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/ John McLeans Fnd Journey https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0 Lmtd Life with FND https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks Instagram follow Emma’s journey :@emmas_fnd_fun People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out Dylan Alcott Athelete , paraolympics , podcaster , raising awareness and voices of the disabled Instagram :@ listenable_podcast @dylanalcott Website: www.abilityfest.com.au   Elle Stella Business Success Coach , Paraolympian & intuitive healer Instagram: @iamellesteele Website: www.iamellesteele.com Carly Findlay Activist, writer, Blogger with a condition called ichtchyosis. Instagram: @carlyfindlay Website: www.carlyfindlay.com.au Sophie Butler Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude Instagram: @sophjbutler YouTube: https://youtu.be/wgfAYDlXXvM Meg Jacks She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND Instagram: @Meg.Jacks_ TicTok: Megjacks   Julian Gavino (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation Instagram:  @thedisabledhippie Nina Tame aka the Lunch Lady She’s a single mum who’s disabled and a disability advocate. Parenting with disability Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/ Chloè Haden she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism. Instagram: @princesssapien Website: https://www.chloehayden.com.au/ Youtube: Chloè Haden   Style like U Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin. Website: https://stylelikeu.com/about-us/ Lucy Dawson who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing. Instagram : @luuudaw Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/ Cripple Media Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness Instagram: @cripple media Website: https://cripplemedia.com/about/ Aaron Rose Philip  For more information check out this wonderful article here https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893 Instagram:aaron_phillip transgendered disabled fabulous Model check him out Nicole Parish she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out https://www.thedailyaus.com.au/

On this episode of the FND Podcast we are talking to Mr. Tom Plender who is a massive Campaigner for FND. We talk to him about FND and he brings up what we need to do to help FND Awareness and talk about FND. Thankyou so much for your time and for talking to us Tom it's been an amazing conversation with you, food for thought, inspiration and just so valuable. To follow Tom on instagram : @tplender. He has a website: www.tomplender.com and also FND ACTION: www.fndaction.org.uk  FND ACTION UK : FND AWARENESS DAY https://www.fndaction.org.uk/fnd-awareness-day-uk/ Click on the link to participate Including two paediatric consultants in FND:  if you are a parent and would like to participate especially you're more than welcome to join and ask questions.  Inform the doctor: https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/ INTERVIEWS AND ARTICLES: Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqko GB News https://youtu.be/8EMspXvKWd8 I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655 FND : Tiktok https://www.tiktok.com/tag/fnd?lang=en FNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor Music:  Sam Barsh Yellow Letter Sam Bars Hope Springs Internal The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging. The FND Podcast with detty : song resonating at the moment maybe our song : The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube. https://youtu.be/o3sXlxg4d5c Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal  The Road to Functional Neurological Disorder by Gabriel Brownstein  Also anything covid related and fnd here on neuro symptoms : https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/ A recent article written June this year what do you think ? From MJA  https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist  https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1 FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW https://imprintmerch.com.au/collections/lets-have-the-chat from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out! HELPFUL RESOURCES: A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland. https://www.neurosymptoms.org/ Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0 An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant! Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation https://www.tiktok.com/@drbuttgastro/video/7020472244954549510 https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf FND ORGANISATIONS: https://www.fndaus.org.au/ FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. FND Australia Support services App: Android https://apksos.com/app/fndaustralia.com Apple https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706 Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. https://www.fndaction.org.uk/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. http://fnddimensions.org/ A really helpful article and explanation of what FND is: ' https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ   FND TOGETHER: https://fndtogether.com/en   itsmeitsmeitsfnd by none other than our Jake!  https://www.tomplender.com/ Tom Plender : follow this amazing creative human his art, music and writing on fnd  https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1 Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/ John McLeans Fnd Journey https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0 Lmtd Life with FND https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks Instagram follow Emma’s journey :@emmas_fnd_fun People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out Dylan Alcott Athelete , paraolympics , podcaster , raising awareness and voices of the disabled Instagram :@ listenable_podcast @dylanalcott Website: www.abilityfest.com.au   Elle Stella Business Success Coach , Paraolympian & intuitive healer Instagram: @iamellesteele Website: www.iamellesteele.com Carly Findlay Activist, writer, Blogger with a condition called ichtchyosis. Instagram: @carlyfindlay Website: www.carlyfindlay.com.au Sophie Butler Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude Instagram: @sophjbutler YouTube: https://youtu.be/wgfAYDlXXvM Meg Jacks She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND Instagram: @Meg.Jacks_ TicTok: Megjacks   Julian Gavino (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation Instagram:  @thedisabledhippie Nina Tame aka the Lunch Lady She’s a single mum who’s disabled and a disability advocate. Parenting with disability Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/ Chloè Haden she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism. Instagram: @princesssapien Website: https://www.chloehayden.com.au/ Youtube: Chloè Haden   Style like U Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin. Website: https://stylelikeu.com/about-us/ Lucy Dawson who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing. Instagram : @luuudaw Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/ Cripple Media Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness Instagram: @cripple media Website: https://cripplemedia.com/about/ Aaron Rose Philip  For more information check out this wonderful article here https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893 Instagram:aaron_phillip transgendered disabled fabulous Model check him out Nicole Parish she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible an

An announcement for FND awareness day , especially for caregivers and Parents who are looking after child/children with FND there is an amazing even happening today. To check it out please look at the FND ACTION UK website.  https://www.fndaction.org.uk/fnd-awareness-day-uk/ The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging. The FND Podcast with detty : song resonating at the moment maybe our song : The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube. https://youtu.be/o3sXlxg4d5c Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal  The Road to Functional Neurological Disorder by Gabriel Brownstein  Also anything covid related and fnd here on neuro symptoms : https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/ A recent article written June this year what do you think ? From MJA  https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist  https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1 FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW https://imprintmerch.com.au/collections/lets-have-the-chat from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out! HELPFUL RESOURCES: A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland. https://www.neurosymptoms.org/ Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0 An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant! Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation https://www.tiktok.com/@drbuttgastro/video/7020472244954549510 https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf FND ORGANISATIONS: https://www.fndaus.org.au/ FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. FND Australia Support services App: Android https://apksos.com/app/fndaustralia.com Apple https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706 Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. https://www.fndaction.org.uk/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. http://fnddimensions.org/ A really helpful article and explanation of what FND is: ' https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ   FND TOGETHER: https://fndtogether.com/en   itsmeitsmeitsfnd by none other than our Jake!  https://www.tomplender.com/ Tom Plender : follow this amazing creative human his art, music and writing on fnd  https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1 Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/ John McLeans Fnd Journey https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0 Lmtd Life with FND https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks Instagram follow Emma’s journey :@emmas_fnd_fun People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out Dylan Alcott Athelete , paraolympics , podcaster , raising awareness and voices of the disabled Instagram :@ listenable_podcast @dylanalcott Website: www.abilityfest.com.au   Elle Stella Business Success Coach , Paraolympian & intuitive healer Instagram: @iamellesteele Website: www.iamellesteele.com Carly Findlay Activist, writer, Blogger with a condition called ichtchyosis. Instagram: @carlyfindlay Website: www.carlyfindlay.com.au Sophie Butler Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude Instagram: @sophjbutler YouTube: https://youtu.be/wgfAYDlXXvM Meg Jacks She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND Instagram: @Meg.Jacks_ TicTok: Megjacks   Julian Gavino (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation Instagram:  @thedisabledhippie Nina Tame aka the Lunch Lady She’s a single mum who’s disabled and a disability advocate. Parenting with disability Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/ Chloè Haden she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism. Instagram: @princesssapien Website: https://www.chloehayden.com.au/ Youtube: Chloè Haden   Style like U Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin. Website: https://stylelikeu.com/about-us/ Lucy Dawson who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing. Instagram : @luuudaw Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/ Cripple Media Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness Instagram: @cripple media Website: https://cripplemedia.com/about/ Aaron Rose Philip  For more information check out this wonderful article here https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893 Instagram:aaron_phillip transgendered disabled fabulous Model check him out Nicole Parish she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out https://www.thedailyaus.com.au/

On this episode we are proud to talk to Dr. Katherine Gill president and founder of FND Australia Support Services. For those newly diagnosed in Australia we describe what FND Australia Services does and provides and hearing about a new FND  wellbeing course that is going to be available. We thankyou Katherine Gill for giving us the opportunity to talk to you again. Check out the website and the app.  FND Australia Support Services https://fndaus.org.au/ The FND AUS APP Apple https://apps.apple.com/au/app/fnd-aus-app/id1635024300 Andriod: https://play.google.com/store/apps/details?id=com.fndaustralia&pli=1   Walk and Wheel  Awareness day tshirt/jumpers are available here:  https://www.etsy.com/au/shop/KraftyDesignsByKate Go for a walk : raise awareness , raise funds and do it within their community.  Expressions of interest for Kokoro Mollitia a 12 week FND wellbeing program link is below: https://www.surveymonkey.com/r/KokoroMollitia The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging. The FND Podcast with detty : song resonating at the moment maybe our song : The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube. https://youtu.be/o3sXlxg4d5c Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal  The Road to Functional Neurological Disorder by Gabriel Brownstein  Also anything covid related and fnd here on neuro symptoms : https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/ A recent article written June this year what do you think ? From MJA  https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist  https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1 FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW https://imprintmerch.com.au/collections/lets-have-the-chat from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out! HELPFUL RESOURCES: A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland. https://www.neurosymptoms.org/ Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0 An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant! Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation https://www.tiktok.com/@drbuttgastro/video/7020472244954549510 https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf FND ORGANISATIONS: https://www.fndaus.org.au/ FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. FND Australia Support services App: Android https://apksos.com/app/fndaustralia.com Apple https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706 Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. https://www.fndaction.org.uk/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. http://fnddimensions.org/ FND TOGETHER: https://fndtogether.com/en/ This is a FND charity/ in Canada run by volunteers.  "Our goal is to support individuals diagnosed with Functional Neurological Disorder (FND). FND Together provides a platform for individuals affected by FND to join together in support of one another as peers. We exist to help people living with FND experience better recognition and support, improved health and social services, and we strive to provide a strong common voice on behalf of people affected by FND. Our focus is to help patients with FND and to create a network of services with other organizations and institutions in Canada and beyond our borders.A really helpful article and explanation of what FND is: ' https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ   Other podcasts/ blogs / vlogs to follow: itsmeitsmeitsfnd by none other than our Jake!  https://www.tomplender.com/ Tom Plender : follow this amazing creative human his art, music and writing on fnd  https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1 Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/ John McLeans Fnd Journey https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0 Lmtd Life with FND https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks Instagram follow Emma’s journey :@emmas_fnd_fun People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out Dylan Alcott Athelete , paraolympics , podcaster , raising awareness and voices of the disabled Instagram :@ listenable_podcast @dylanalcott Website: www.abilityfest.com.au   Elle Stella Business Success Coach , Paraolympian & intuitive healer Instagram: @iamellesteele Website: www.iamellesteele.com Carly Findlay Activist, writer, Blogger with a condition called ichtchyosis. Instagram: @carlyfindlay Website: www.carlyfindlay.com.au Sophie Butler Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude Instagram: @sophjbutler YouTube: https://youtu.be/wgfAYDlXXvM Meg Jacks She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND Instagram: @Meg.Jacks_ TicTok: Megjacks   Julian Gavino (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation Instagram:  @thedisabledhippie Nina Tame aka the Lunch Lady She’s a single mum who’s disabled and a disability advocate. Parenting with disability Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/ Chloè Haden she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism. Instagram: @princesssapien Website: https://www.chloehayden.com.au/ Youtube: Chloè Haden   Style like U Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin. Website: https://stylelikeu.com/about-us/ Lucy Dawson who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing. Instagram : @luuudaw Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/ Cripple Media Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness Instagram: @cripple media Website: https://cripplemedia.com/about/ Aaron Rose Philip  For more information check out this wonderful article here https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893 Instagram:aaron_phillip transgendered disabled fabulous Model check him out Nicole Parish she is raising awarenes