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Description

Interviews with grant recipients from the Ontario Rett Syndrome Association's Hope Fund. The Hope Fund exists solely to fund Canadian research to find a cure and/or treatment for Rett syndrome. 100% of all dollars within this fund go directly to research. It is currently the only fund dedicated to Rett syndrome research in Canada. Since the creation of The Hope Fund in 2014, O.R.S.A. has awarded over $600,000 in research grants. To help fund The Hope Fund, please make a donation at rett.ca/donate.

Podcast episodes

Check latest episodes from Listening To Hope podcast

Dr. Kerry Delaney

2021/07/27

In 2018, a $25,000 grant was awarded to Dr. Kerry Delaney to study neural connectivity in mosaic brain tissues using newer optogenetic techniques, hoping to shed further light on the clinical implications of the real-world heterozygosity in female Rett syndrome brains.

Dr. Alexander Weber

2021/07/23

In 2021, O.R.S.A. awarded $25,000 to Dr. Alexander Weber's study is entitled Functional, Metabolic, and Structural MRI Findings in Rett Syndrome.

Dr. Mojgan Rastegar

2021/07/23

In 2018, a $25,000 grant was awarded to Dr. Mojgan Rastegar to study the role of metformin (a current and commonly available drug, used most frequently in the treatment in diabetes) as a potential therapeutic agent in the treatment of Rett Syndrome.

Dr. Juan Ausio

2021/07/23

In 2015, Dr. Juan Ausio was awarded $50,000 in partnership with Dr. John Vincent for their project entitled Translational correlation of MeCP2 chromatin alterations in male and female missense mutations. In 2019, the pair was awarded a further $100,000 for Therapeutic small molecules and peptides targeting missense mutations in Rett Syndrome.

Dr. John Vincent

2021/07/23

In 2015, Dr. John Vincent was awarded $50,000 in partnership with Dr. Juan Ausio for their project entitled Translational correlation of MeCP2 chromatin alterations in male and female missense mutations. In 2019, the pair was awarded a further $100,000 for Therapeutic small molecules and peptides targeting missense mutations in Rett Syndrome.

Dr. James Eubanks

2021/07/23

Dr. James Eubanks was awarded $25,000 in 2016 for his study: Testing new read-through drugs for prospective treatment of Rett Syndrome. In 2019, Dr. Eubanks was awarded a second grant of $50,000 for his project entitled A Preclinical Trial In MeCP2-Deficient Mice To Test The Repurposing Potential Of An FDA-Approved Drug For Use In Rett Syndrome.