Advertise on podcast: Rare Disease Parent Bootcamp

Description

When you have a child, you want the best for that child in every way. For parents of children born with a genetic disorder, a correct diagnosis is the first step to receiving proper care. Unfortunately, there are many logistical and financial complications that make the diagnostic odyssey challenging for rare disease parents. Amber Freed and Brittany Stineman are rare disease moms who have gone through incredible lengths to pursue cures for their sons battling rare diseases. Hear their stories & how they navigated the diagnostic odyssey now!