Advertise on podcast: Parkinson's Disease Education Podcast

Incontinence is a sensitive topic, but for those living with Parkinson's, it's a critical conversation for both quality of life and physical safety. In this episode (watch on YouTube), I break down why Parkinson's affects the bladder—from dopamine loss to autonomic nervous system changes—and how these issues can lead to increased fall risks. We explore the different types of incontinence, the impact of "wearing off" periods on nighttime urgency (nocturia), and why constipation and pelvic floor dysfunction shouldn't be overlooked. Most importantly, I share actionable solutions, including pelvic floor therapy and high-absorbency products like LivDry, which can help you stay safe and get a full night's rest. Check out LivDry here: https://lvnta.com/lv_SONCqj7iCh1kLVv08z 0:00 - Introduction: Why we need to talk about incontinence 1:05 - The link between incontinence and safety 1:52 - Cause 1: Dopamine loss and bladder "spasms" 3:30 - Cause 2: Autonomic nervous system breakdown 4:45 - Functional Incontinence: Why mobility makes it harder 5:45 - Nocturia: Managing nighttime urgency and "wearing off" 7:09 - How constipation impacts your bladder 7:46 - Pelvic floor dysfunction in Parkinson's 8:55 - Medications that can worsen bladder issues 9:38 - Cognitive changes and bathroom awareness 10:03 - The hidden danger: Falling while rushing 11:18 - Solutions: Pelvic floor therapy & medication reviews 11:44 - Choosing the right incontinence products (LivDry) 13:08 - Real-life success story: How better sleep transforms days 14:45 - Key takeaways and final thoughts For more members-first content, early access, and to help support this channel sign up for memberships here: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join  https://www.patreon.com/pdeducation  Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION(15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsons #incontinencecare #incontinence

Does Parkinson's disease actually start in the gut? In this episode, I am joined by Martha Carlin, founder of The BioCollective and BiotiQuest (https://biotiquest.com/), to explore the powerful "hidden link" between the microbiome and Parkinson's. From the discovery of "concrete-like" stool in Parkinson's patients to the role of chronic inflammation and endotoxins, we dive deep into how our digestive health influences brain function. Martha shares her personal journey of seeking answers for her husband's young-onset diagnosis, leading to groundbreaking research on the "gut glycocalyx" and molecules like mannitol. In this episode (watch on YouTube) you'll learn: -Why the "gut-brain axis" is central to understanding Parkinson's progression. -The impact of environmental toxins, antibiotics, and cleaning compounds on our microbes. -How certain bacterial strains can help manage symptoms like severe constipation and anxiety. -The potential of systems-based approaches, including supplementation and lifestyle changes. Parkinson's is a whole-body condition. By looking beyond dopamine and focusing on metabolic health, we can discover new ways to empower our daily lives and maintain our sense of adventure. Here are subjects time stamped for this episode: 00:00 - Introduction to the Gut-Brain Axis and Microbiome 01:10 - Martha Carlin's Personal Connection to Parkinson's 03:12 - Examining the Evidence: Food, Water, and Chemicals 04:52 - Founding The BioCollective: Collecting Microbiome Data 05:51 - Explaining the Glycocalyx and Its Role in Parkinson's 07:55 - How Vascular Damage and Blood Pressure Link to PD 09:25 - The Impact of COVID-19 and Cleaning Compounds 12:10 - Pathogenic Bacteria and the "Concrete" Stool Mystery 15:15 - Endotoxins and Chronic Inflammation in the Gut 19:15 - Discovering Mannitol: A Potential Breakthrough Molecule 21:55 - Real-World Results: UPDR Score Improvements 23:45 - Clinical Trials: Blood Sugar and Insulin Resistance 32:30 - Managing Stress and Anxiety with Probiotics 34:10 - The Connection Between Trapped Emotions and Trauma 42:50 - Future Research: Light Therapy and Focused Ultrasound 46:15 - Closing Thoughts: Adventure After a Diagnosis This interview was sponsored by our channel members, who viewed this first as a livestream. For more members-first content, early access, and to help support this channel sign up for memberships here: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join  https://www.patreon.com/pdeducation  Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION(15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider.  Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use.  #parkinsonsawareness #parkinsonsdisease #parkinsons #microbiome #guthealth #gutbrainaxis #parkinsonsresearch

Most Parkinson's treatments focus on replacing dopamine—but what if a medication could target some of the underlying disease processes instead? In this episode, we take a closer look at Fasudil, an experimental therapy that is generating interest in the Parkinson's research community. Originally developed for a completely different neurological condition, Fasudil is now being studied for its potential effects on neuroinflammation, alpha-synuclein accumulation, cellular repair mechanisms, and other pathways involved in Parkinson's disease. We'll discuss: What Fasudil is and how it works The role of ROCK inhibition in Parkinson's research Potential effects on inflammation and alpha-synuclein What animal studies have shown so far The current status of human clinical trials What people with Parkinson's should know right now While Fasudil is not currently an approved treatment for Parkinson's disease, it represents an exciting example of how researchers are looking beyond dopamine to develop future therapies that may one day slow disease progression. Help to support this channel and our efforts to educate the world about Parkinson's Disease and get access to personalized content: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join https://www.patreon.com/pdeducation Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION (15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use

Many people with Parkinson's disease experience dizziness, fatigue, lightheadedness, and even falls when standing up. One possible cause is neurogenic orthostatic hypotension (nOH), a condition related to autonomic nervous system dysfunction. In this episode (watch on YouTube), we explore Droxidopa (Northera), a medication designed to help improve symptoms of nOH by increasing norepinephrine levels. We'll discuss how it works, who may benefit, what the research shows, and important safety considerations. Episode chapters: 00:00 Introduction 02:25 What is Droxidopa and how does it work? 03:00 Why nOH matters in PD 03:30 Physiology of blood pressure regulation 05:15 How Droxidopa helps with nOH 06:10 What the research shows 06:50 Practical management strategies for Parkinson's disease 08:41 How to check if you have OH 10:00 Tying in with patient case and Conclusion For members-first content, early access, and to help to support this channel sign up for memberships here: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join  https://www.patreon.com/pdeducation Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION(15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsonsawareness #orthostatichypotension #droxidopa

Welcome to the 20,000 Subscriber Special! The sponsor of today's episode is Contour Design and the tremor-friendly RollerMouse Red. Be sure to use the code PDEDUCATION at checkout to receive a discount: https://lvnta.com/lv_ipnUBU2K33mzi8eRd4 In this episode (watch on YouTube), I share 20 of the most important things I've learned from working with people living with Parkinson's Disease as a physical therapist. Some are clinical observations. Some are misconceptions that need to be challenged. Others are lessons about resilience, humanity, and the incredible strength of the Parkinson's community. We talk about: • Why Parkinson's is far more than a movement disorder • The hidden world of non-motor symptoms • Tremors, freezing, festination, dystonia, and dyskinesia • Why stress and emotion can worsen physical symptoms • The complicated relationship between medication and symptom management • The neuroprotective role of exercise and physical therapy • Why Parkinson's remains misunderstood — even within healthcare • And why the people living with Parkinson's continue to inspire me every single day This episode is not meant to replace medical advice, diagnosis, or treatment. It is a conversation shaped by years of clinical experience, evidence-based rehabilitation, and most importantly, the people who trusted me to be part of their journey. Whether you are living with Parkinson's, caring for someone who is, or simply trying to understand the disease better, I hope this episode helps you feel more informed, more seen, and more hopeful. For members-first content, early access, and to help to support this channel sign up for memberships here: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join  https://www.patreon.com/pdeducation  Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION(15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #parkinsonsawareness #parkinsonsdisease #parkinsons #physicaltherapy #neurology #lsvtbig #neurorehabilitation

Knowing what to do is only part of the challenge in Parkinson's disease. The harder part? Staying consistent. In this final episode (watch on YouTube) of our Parkinson's Communication Roadmap series, we focus on practical ways to make speech, voice, and communication exercises part of everyday life—without feeling overwhelmed.  We cover: • How to stay consistent with voice and speech practice • Building therapy into daily routines • Habit stacking and "mini therapeutic moments" (See Atomic Habits by James Clear 👉 https://amzn.to/4dZhJDV) • Functional carryover strategies that work in real life • Using music and singing as therapy • Parkinson's choirs and music-based activities • Motivation, accountability, and sustainable routines We also discuss how programs like Get LOUD! Stay LOUD! help people stay engaged through guided practice, community support, and short, manageable daily exercises. This episode is all about shifting from: 👉 "I should do my exercises" to 👉 "This is simply part of how I live." Because long-term success in Parkinson's communication doesn't come from perfection—it comes from consistency. 👥 Featuring collaboration with Sarah Awde, M.Cl.Sc. Speech Language Pathology (Get LOUD! Stay LOUD!) Sign up for Get LOUD Stay LOUD using the link. Try FREE for 30 days, and use code HYLAND50 to get 50% off your first paid month 👉 http://getloudstayloud.mn.co/users/onboarding/plans?via=michael Not sure which classes are the best fit for you? Take the class finder survey here: https://form.jotform.com/253162339857364 📌 Subscribe for more Parkinson's education, therapy strategies, and practical tools for everyday life. For members-first content, early access, and to help to support this channel sign up for memberships here:  https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join  https://www.patreon.com/pdeducation Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION (15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsons #voicetherapy #habitstacking #speechtherapy

Breathing changes in Parkinson's disease can affect much more than people realize. In this episode (watch here on YouTube!), we break down how Parkinson's impacts breathing, posture, voice support, cough strength, and airway protection—and why these changes matter for both communication and overall health. We cover: • Why breathing changes happen in Parkinson's • Posture and rib cage restriction • Reduced respiratory muscle recruitment • Breath support for speech and voice • Why cough strength matters • RMT (Respiratory Muscle Training) • EMST (Expiratory Muscle Strength Training) • Anxiety, breathlessness, and breathing patterns We also discuss how breathing connects directly to speech clarity, swallowing safety, and airway protection—and why respiratory training can be an important part of Parkinson's care. If you've noticed shortness of breath, reduced vocal strength, weaker coughing, or difficulty projecting your voice, this episode will help explain why these changes happen and what can help. 👉 And this is where most people get stuck—not because they don't know what to do, but because it's hard to stay consistent on your own. In the next episode, we'll show you how to stay motivated, build habits, and make these strategies part of everyday life. 👥 Featuring collaboration with Sarah Awde, M. Cl. Sc. Speech Language Pathhology (Get LOUD! Stay LOUD!) Explore Get LOUD Stay Loud today! Use this link and use code HYLAND50 at checkout for 50% off your first month (PLUS your first month is already FREE!): http://getloudstayloud.mn.co/users/onboarding/plans?via=michael 📌 Subscribe to follow the full Parkinson's Communication Roadmap series. For members-first content, early access, and to help to support this channel sign up for memberships here: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join            https://www.patreon.com/pdeducation  Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION(15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation' Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #parkinson #parkinsonsawareness #breathingexercises #speechtherapy #respiration #dyspnea

Dry mouth and drooling can both happen in Parkinson's disease—and surprisingly, they're often connected. By the way, Biotene rinse can be a great tool to use with dry mouth. Here is a link to Biotene on Amazon: https://amzn.to/4tuKAoj In this episode (watch here on YouTube), we break down why saliva problems occur in Parkinson's, how they affect speech, swallowing, comfort, and confidence, and why oral health matters far more than most people realize. We cover: • Dry mouth vs. drooling in Parkinson's • Why both problems can happen at the same time • How saliva issues affect communication and swallowing • Oral bacteria, dental health, and aspiration risk • Why oral care is so important in Parkinson's • Practical strategies to help manage these symptoms safely We also explain the important connection between oral health and aspiration pneumonia risk, one of the most serious complications associated with swallowing difficulties. If you or someone you care about is dealing with drooling, dry mouth, coughing during meals, or frequent throat clearing, this episode will help connect the dots and provide practical next steps.  👉 But here's the piece most people don't think about… Your ability to protect your airway doesn't just depend on swallowing—it also depends on your breathing and your cough. In the next episode, we'll explain why breathing strength matters in Parkinson's and how respiratory training can improve airway protection, communication, and overall function. 👥 Featuring collaboration with Sarah Awde, M.Cl.Sc. Speech Language Pathology (Get LOUD! Stay LOUD!) These educational topics and classes to help are included as part of Get LOUD! Stay LOUD! Use this link and use code HYLAND50 at checkout for 50% off your first month (PLUS your first month is already FREE!): http://getloudstayloud.mn.co/users/onboarding/plans?via=michael 📌 Subscribe to follow the full Parkinson's Communication Roadmap series. #Parkinsons #Dysphagia #SwallowingDisorders #ParkinsonsDisease #SpeechTherapy #Neurology For members-first content, early access, and to help to support this channel sign up for memberships here: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join https://www.patreon.com/pdeducation Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION(15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsons #aspirationpneumonia #drooling #drymouth #speechtherapy

Swallowing changes are one of the most overlooked—and most important—symptoms in Parkinson's disease. In this episode (see on YouTube), we break down how swallowing works, how Parkinson's can interfere with it, and the signs that may point to dysphagia (swallowing difficulty). We cover:  • The normal phases of swallowing • How Parkinson's affects swallowing function • Common signs of dysphagia • Why liquids are often the hardest thing to swallow • What people should *not* try on their own • Why a proper swallowing evaluation matters We also explain the difference between a **Modified Barium Swallow Study (MBSS)** and **FEES** (Fiberoptic Endoscopic Evaluation of Swallowing), when each is used, and why it's important not to make changes—especially thickening liquids—without professional guidance. If swallowing has become more difficult, more frustrating, or more concerning, this episode will help you understand what's happening and what to do next. — 👉 Swallowing is only part of the story… In the next episode, we're talking about **dry mouth, drooling, and one of the most important things you can do to reduce your risk of aspiration pneumonia.** — 👥 Featuring collaboration with Sarah Awde, M.Cl.Sc. Speech Language Pathology (Get LOUD! Stay LOUD!) These educational topics and classes to help are included as part of Get LOUD! Stay LOUD! Use this link and use code HYLAND50 at checkout for 50% off your first month (PLUS your first month is already FREE!): http://getloudstayloud.mn.co/users/onboarding/plans?via=michael 📌 Subscribe to follow the full Parkinson's Communication Roadmap series. #Parkinsons #Dysphagia #SwallowingDisorders #ParkinsonsDisease #SpeechTherapy #Neurology For members-first content, early access, and to help to support this channel sign up for memberships here: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join https://www.patreon.com/pdeducation Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION(15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsons #dysphagia #swallowingdisorders #speechtherapy

If you've noticed changes in your voice or speech with Parkinson's disease, you might be wondering: "Can this actually get better?" The answer is YES — and in this episode, we show you exactly how. In Part 2 of our Parkinson's Communication Series, we break down the most effective, Parkinson's-specific speech therapy approaches, including: • LSVT LOUD (Look up local clinicians HERE: https://www.lsvtglobal.com/lsvtfindclinicians)  • SPEAK OUT! (Look up local clinicians HERE: https://parkinsonvoiceproject.org/program/find-a-provider/) • How these programs are similar—and how they're different • What the core voice exercises actually look like • Simple demonstrations of the most important "bread-and-butter" techniques We also walk through how to access speech therapy, what to expect from treatment, and how ongoing programs like Get LOUD! Stay LOUD! ***SEE BELOW*** help people maintain progress over time with guided practice and support. If you're living with Parkinson's—or supporting someone who is—this episode will give you a clear, practical understanding of what actually works when it comes to improving speech and communication. 👉 And here's something most people don't realize: The same muscles you use for speaking are also responsible for swallowing. In the next episode, we'll break down what happens to swallowing in Parkinson's—and why it matters more than you might think. 👥 Featuring collaboration with Sarah Awde, M.Cl.Sc. Speech Language Pathology (Get LOUD! Stay LOUD!)  📌 Subscribe to follow the full Parkinson's Communication Roadmap series.  ***To get access to Get LOUD Stay LOUD you can try it free for 30 days, and if you choose to continue, you'll get 50% off your first paid month using code HYLAND50 at checkout. 👇 Use this link to get started: http://getloudstayloud.mn.co/users/onboarding/plans?via=michael *** Help to support this channel and our efforts to educate the world about Parkinson's Disease and get access to personalized content: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join  https://www.patreon.com/pdeducation Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION(15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here:  Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsons #lsvtloud #speakout #speechtherapy

In this first episode covering communication and speech changes in Parkinson's Disease (see on YouTube), we break down why communication changes happen in Parkinson's—and what's really going on beneath the surface. We cover: -Changes in speech and voice (reduced volume, clarity, and changes in speaking rate) -Word-finding and sentence formulation difficulties -Nonverbal communication (facial masking, reduced gestures, posture) -Cognitive-communication changes (slowed thinking, attention, planning what to say) -The impact of mood and motivation (anxiety, depression, confidence in social situations) -Understanding these changes is the first step toward improving communication and staying connected. 🎤 Want help putting this into practice? If you're living with Parkinson's and want to improve your voice and communication, I highly recommend checking out Get LOUD! Stay LOUD! — an online program designed specifically for Parkinson's. You can try it free for 30 days, and if you choose to continue, you'll get 50% off your first paid month. 👇 Use my link to get started: http://getloudstayloud.mn.co/users/onboarding/plans?via=michael Use code HYLAND50 at checkout to receive your discount. 🔔 Don't miss the next episode In Episode 2, we'll walk you through the exact therapy approaches and core exercises used to improve speech in Parkinson's—and what you can start doing right away. Help to support this channel and our efforts to educate the world about Parkinson's Disease and get access to personalized content: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join https://www.patreon.com/pdeducation Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION(15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout)  Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use

In this episode (watch on YouTube), we take a closer look at Buntanetap, an investigational therapy that is gaining attention for its potential to target the underlying biology of Parkinson's disease—not just the symptoms. Unlike traditional treatments that focus on dopamine replacement, Buntanetap works upstream by regulating the production of proteins like alpha-synuclein, which are believed to play a central role in neurodegeneration. This represents a fundamentally different approach that could, in theory, slow disease progression. We'll break down: -How Buntanetap works at the cellular level -Why targeting protein production may matter -What early clinical trial data suggests -How it compares to other emerging therapies -What patients and clinicians should realistically take away right now While early findings are promising, it's important to emphasize that Buntanetap is still under investigation and not yet approved for clinical use. As with many emerging therapies in Parkinson's disease, cautious optimism is key. If you're interested in the future of Parkinson's treatment and how research is evolving beyond dopamine, this is a conversation worth understanding. Help to support this channel and our efforts to educate the world about Parkinson's Disease and get access to personalized content: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join https://www.patreon.com/pdeducation Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION(15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsons #buntanetap #movementdisorder

Fibroblast Growth Factor-1 (FGF-1) is being discussed as a potential regenerative therapy for Parkinson's disease. Some claim it may protect or even restore dopamine-producing neurons. But what does the science actually say? In this episode, we break down: • What FGF-1 is and how it works • Why growth factors are being explored in Parkinson's disease • How FGF-1 compares to decades of research on Glial cell line-derived neurotrophic factor (GDNF) • What animal studies show — and what human trials do not yet show • The risks, unknowns, and delivery challenges • How to think critically about regenerative claims Parkinson's disease urgently needs disease-modifying therapies.  Growth factors are biologically plausible and scientifically interesting — but promising is not the same as proven. This video is an evidence-based look at where FGF-1 stands today. If you're living with Parkinson's, caring for someone who is, or simply trying to understand the science behind emerging therapies, this episode is for you. This episode is for educational purposes only and does not constitute medical advice. Head here to learn more about the FGF-1 work being done at Zhittya Genesis Medicine: https://www.pd-studies.org/ Help to support this channel and our efforts to educate the world about Parkinson's Disease and get access to personalized content: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join https://www.patreon.com/pdeducation Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION(15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #parkinsonsawareness #FGF1#Neuroprotection #ParkinsonsResearch #DiseaseModifyingTherapy #MovementDisorders

MRI-guided Focused Ultrasound (FUS) is an FDA-approved treatment option for certain motor symptoms of Parkinson's Disease — particularly medication-refractory tremor and levodopa-induced dyskinesia. But what exactly does it do? And just as importantly — what does it not do? In this episode, I break down: • How MRI-guided Focused Ultrasound works • What part of the brain is targeted • Who may be an appropriate candidate • How it compares to Deep Brain Stimulation (DBS) • The risks, limitations, and realistic expectations Focused ultrasound is not a cure for Parkinson's. It does not slow disease progression. But for carefully selected patients, it can meaningfully reduce specific motor symptoms. As always, this episode is for educational purposes only and is not individual medical advice. Treatment decisions should be made with your neurologist and care team. If you find this helpful, consider subscribing for more evidence-based discussions on Parkinson's treatment options.  Help to support this channel and out efforts to educate the world about Parkinson's Disease and get access to personalized content: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join https://www.patreon.com/pdeducation Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION (15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use. #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsons #focusedultrasound #fus

Parkinson's disease management is constantly evolving, and new tools are always emerging. One device getting attention in the Parkinson's community is the BeechBand — a wrist-worn wearable that provides gentle rhythmic vibrations as a form of sensory cueing. See https://www.beechband.com In this episode (watch on YouTube), we break down:  • What the BeechBand is • How it's thought to work • What users are reporting • What the science currently does — and does not — show • Important limitations to understand before trying it While some people with Parkinson's say the device helps with relaxation, speech rhythm, or movement cueing, it's important to know that the Beech Band is considered a wellness device, not a medical treatment, and large clinical trials are still lacking. The goal of this episode is to give you a balanced, evidence-aware overview so you can make informed decisions and have productive conversations with your healthcare team. If you've tried the BeechBand, feel free to share your experience in the comments — your perspective may help others in the Parkinson's community. Help to support this channel and out efforts to educate the world about Parkinson's Disease and get access to personalized content: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join  https://www.patreon.com/pdeducation Please be sure to give support to our channel sponsors: Comfort Linen: https://comfortlinen.com/PARKINSONSDISEASEEDUCATION (15% off entire order when applying the code PARKINSONSDISEASEEDUCATION at checkout) Kizik Shoes: https://kizik.sjv.io/pdeducation Cure Hydration: https://lvnta.com/lv_XG06Rho8SSlXEq3qlV If you have products that you would like for me to review on the channel please send them here: Parkinson's Disease Education P.O. Box 1678 Broken Arrow, OK 74013 Medical Disclaimer All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use #ParkinsonsDisease #ParkinsonsSupport #ParkinsonsAwareness #BeechBand #Neurorehab #LivingWithParkinsons