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Rating
5from
This podcast has
1 episodes
Language
EnglishPublisher
The SPEAK FoundationExplicit
No
Date created
2026/01/28
Latest episode
2026/01/28
Average duration
35 min.
Release period
- days
Description
Every Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care. By centering lived experience, it strengthens advocacy, advances research, and supports better futures for kids and adults living with muscular dystrophy.
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Episode #001 - Uniting the Muscular Dystrophy Community
2026/01/28
The conversation centers around the experiences of individuals living with Muscular Dystrophy, focusing on personal diagnosis stories, the challenges faced during childhood, and the importance of advocacy within the community. The hosts discuss their journeys, the evolution of understanding Muscular Dystrophy, and the founding of the Speak Foundation, which aims to amplify patient voices and support those affected by the condition.
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FightingMD 2026/02/03
Episode 1
Kat and Pat sound like old friends who are having a friendly conversation around the dining room table. Both of them are pillars of the adult muscular...
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