Advertise on podcast: Every Voice Speaks

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Every Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care. By centering lived experience, it strengthens advocacy, advances research, and supports better futures for kids and adults living with muscular dystrophy.

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Episode #001 - Uniting the Muscular Dystrophy Community

2026/01/28

The conversation centers around the experiences of individuals living with Muscular Dystrophy, focusing on personal diagnosis stories, the challenges faced during childhood, and the importance of advocacy within the community. The hosts discuss their journeys, the evolution of understanding Muscular Dystrophy, and the founding of the Speak Foundation, which aims to amplify patient voices and support those affected by the condition.

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5 out of 5

4 reviews

FightingMD 2026/02/03

Episode 1

Kat and Pat sound like old friends who are having a friendly conversation around the dining room table. Both of them are pillars of the adult muscular...

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